This photo was taken 10 years ago (not the most flattering I know 🙈🤣). A lot has changed since this photo was taken... 6 years ago I was diagnosed with multiple autoimmune diseases.
6 years ago I was lying in a hospital bed unsure if I would ever make it out.
And 6 years ago, I discovered my reason for being...to fight for patients, always.
1 year ago I quit my job, took a chance, and became Head of Patient Advocacy at @clarahealth.
Today I’m moving to San Francisco to pursue my passion, continue the fight to improve patient lives, and help accelerate the pathway to breakthrough treatments and cures with Team Clara
If you told the girl in this picture she would one day move across the country she would have laughed in your face.
But my experiences have given me a strength I never knew I had. I’m not afraid, but excited to see where life takes me next.
To Boston and my people: I love you. I’ll be back. Come visit me 😘
Cheers to the next chapter ✨
What a trip to the SCOPE 2018 conference!! I’m so proud of the Clara Health team for winning the 2nd Annual Participant Engagement Award for our #BreakthroughCrew program! I have the best job in the world getting to work with patient advocates who are making a difference every day!! #Repost @clarahealth with @get_repost
We are so proud to share that at today’s #SCOPE2018 Conference, the #BreakthroughCrew was a recipient of the Participant Engagement Award!
We are so honored and thankful for all of our amazing Ambassadors who make the program possible. You are the true champions making a difference and propelling research forward.
This means everything to me. THANK YOU @natalieannhayden for sharing how the #BreakthroughCrew brought you and @amanda.osowski together.
This is why I do what I do and why Team @clarahealth loves our Crew to pieces! Finding your tribe when living with chronic illness is so important and I feel honored that our team gets to help fellow patients do that each and every day! •••
#Repost @natalieannhayden with @get_repost
NEW BLOG POST: Canceled Plans—Dealing with the unexpected with IBD
“Making plans. It’s almost an oxymoron when you battle Crohn’s disease or ulcerative colitis. For the past month or so, I’ve been corresponding with @amanda.osowski . We were brought together by a patient advocacy group through @clarahealth known as “The Breakthrough Crew.” Shout out to @lillyrosestairs for connecting us because she thought we’d be friends.
Lilly was right. Amanda and I both have Crohn’s. We both grew up in the Chicago suburbs. We both have bald husbands who are incredible caretakers. 😍 This past week, Amanda and I were supposed to meet in person. Click the link in my profile to find out why those plans had to change and why IBD friendships—virtual and in real life are SO important. 💜👊🏻
Shout out to @bostoniapublichouse for being SO super accommodating for my gluten, dairy, and soy free diet. The chef made me a custom burger after figuring out we were going to have a tough time making any of the other menu items work.
I so appreciated how accommodating the staff was and that they didn’t make me feel bad about all of the extra work they had to go through.
It’s become incredibly difficult for me to dine out because most restaurants cook with vegetable oil, which fun fact, is actually just soybean oil. So for now I’m doing a lot of cooking at home and scouting out the best restaurants that are food allergy friendly! Any and all suggestions welcome for those of you living in the Boston area!! •••
Merry Christmas Eve 🎄and happy belated birthday to my beautiful mother @stairs.karen ❤️Thank you for being the most amazing Mom in the world. I don’t know where I would be without you! Thank you for being my rock, my champion, my mentor, and friend. I love you!!