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  • lillyrosestairs
    Lilly Stairs
    @lillyrosestairs

Images by lillyrosestairs

This photo was taken 10 years ago (not the most flattering I know 🙈🤣). A lot has changed since this photo was taken... 6 years ago I was diagnosed with multiple autoimmune diseases.

6 years ago I was lying in a hospital bed unsure if I would ever make it out. 
And 6 years ago, I discovered my reason for being...to fight for patients, always. 
1 year ago I quit my job, took a chance, and became Head of Patient Advocacy at @clarahealth. 
Today I’m moving to San Francisco to pursue my passion, continue the fight to improve patient lives, and help accelerate the pathway to breakthrough treatments and cures with Team Clara 
If you told the girl in this picture she would one day move across the country she would have laughed in your face. 
But my experiences have given me a strength I never knew I had. I’m not afraid, but excited to see where life takes me next.

To Boston and my people: I love you. I’ll be back. Come visit me 😘

Cheers to the next chapter ✨
This photo was taken 10 years ago (not the most flattering I know 🙈🤣). A lot has changed since this photo was taken... 6 years ago I was diagnosed with multiple autoimmune diseases. 6 years ago I was lying in a hospital bed unsure if I would ever make it out. And 6 years ago, I discovered my reason for being...to fight for patients, always. 1 year ago I quit my job, took a chance, and became Head of Patient Advocacy at @clarahealth. Today I’m moving to San Francisco to pursue my passion, continue the fight to improve patient lives, and help accelerate the pathway to breakthrough treatments and cures with Team Clara If you told the girl in this picture she would one day move across the country she would have laughed in your face. But my experiences have given me a strength I never knew I had. I’m not afraid, but excited to see where life takes me next. To Boston and my people: I love you. I’ll be back. Come visit me 😘 Cheers to the next chapter ✨
What a trip to the SCOPE 2018 conference!! I’m so proud of the Clara Health team for winning the 2nd Annual Participant Engagement Award for our #BreakthroughCrew program! I have the best job in the world getting to work with patient advocates who are making a difference every day!! #Repost @clarahealth with @get_repost
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We are so proud to share that at today’s #SCOPE2018 Conference, the #BreakthroughCrew was a recipient of the Participant Engagement Award! 
We are so honored and thankful for all of our amazing Ambassadors who make the program possible. You are the true champions making a difference and propelling research forward.
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#SCOPE2018 #BeLikeJerry #BreakthroughCrew #PatientsHavePower
What a trip to the SCOPE 2018 conference!! I’m so proud of the Clara Health team for winning the 2nd Annual Participant Engagement Award for our #BreakthroughCrew  program! I have the best job in the world getting to work with patient advocates who are making a difference every day!! #Repost  @clarahealth with @get_repost ・・・ We are so proud to share that at today’s #SCOPE2018  Conference, the #BreakthroughCrew  was a recipient of the Participant Engagement Award! We are so honored and thankful for all of our amazing Ambassadors who make the program possible. You are the true champions making a difference and propelling research forward. . . . #SCOPE2018  #BeLikeJerry  #BreakthroughCrew  #PatientsHavePower 
This means everything to me. THANK YOU @natalieannhayden  for sharing how the #BreakthroughCrew brought you and @amanda.osowski together.

This is why I do what I do and why Team @clarahealth loves our Crew to pieces! Finding your tribe when living with chronic illness is so important and I feel honored that our team gets to help fellow patients do that each and every day! •••
#Repost @natalieannhayden with @get_repost
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NEW BLOG POST: Canceled Plans—Dealing with the unexpected with IBD
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“Making plans. It’s almost an oxymoron when you battle Crohn’s disease or ulcerative colitis. For the past month or so, I’ve been corresponding with @amanda.osowski . We were brought together by a patient advocacy group through @clarahealth known as “The Breakthrough Crew.” Shout out to @lillyrosestairs for connecting us because she thought we’d be friends.
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Lilly was right. Amanda and I both have Crohn’s. We both grew up in the Chicago suburbs. We both have bald husbands who are incredible caretakers. 😍 This past week, Amanda and I were supposed to meet in person. Click the link in my profile to find out why those plans had to change and why IBD friendships—virtual and in real life are SO important. 💜👊🏻
This means everything to me. THANK YOU @natalieannhayden for sharing how the #BreakthroughCrew  brought you and @amanda.osowski together. This is why I do what I do and why Team @clarahealth loves our Crew to pieces! Finding your tribe when living with chronic illness is so important and I feel honored that our team gets to help fellow patients do that each and every day! ••• #Repost  @natalieannhayden with @get_repost ・・・ NEW BLOG POST: Canceled Plans—Dealing with the unexpected with IBD • “Making plans. It’s almost an oxymoron when you battle Crohn’s disease or ulcerative colitis. For the past month or so, I’ve been corresponding with @amanda.osowski . We were brought together by a patient advocacy group through @clarahealth known as “The Breakthrough Crew.” Shout out to @lillyrosestairs for connecting us because she thought we’d be friends. • Lilly was right. Amanda and I both have Crohn’s. We both grew up in the Chicago suburbs. We both have bald husbands who are incredible caretakers. 😍 This past week, Amanda and I were supposed to meet in person. Click the link in my profile to find out why those plans had to change and why IBD friendships—virtual and in real life are SO important. 💜👊🏻
Had such an INCREDIBLE time at the #CCCongress! Thanks a million to the @crohnscolitisfoundation for giving me the opportunity to attend. I learned so much that I look forward to sharing in a blog post coming soon 😊I also had the opportunity to connect with other inspiring IBD advocates @aaronblockeribd @itsmemegaroo and @crazycreolemama. Stay tuned for some crazy awesome @clarahealth #PatientsHavePower podcasts live from the conference!! .
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#IBD #crohnsdisease #ulcerativecolitis #crohnscolitis #treatments #cures #crohnswarrior #colitiswarrior #ibdwarrior #patientadvocate
Had such an INCREDIBLE time at the #CCCongress ! Thanks a million to the @crohnscolitisfoundation for giving me the opportunity to attend. I learned so much that I look forward to sharing in a blog post coming soon 😊I also had the opportunity to connect with other inspiring IBD advocates @aaronblockeribd @itsmemegaroo and @crazycreolemama. Stay tuned for some crazy awesome @clarahealth #PatientsHavePower  podcasts live from the conference!! . . . #IBD  #crohnsdisease  #ulcerativecolitis  #crohnscolitis  #treatments  #cures  #crohnswarrior  #colitiswarrior  #ibdwarrior  #patientadvocate 
Dr. King, you did so much to change the world and have continued to inspire us long after you’ve been gone. 
These words of wisdom are a constant reminder of why I do what I do and why I will continue to fight for patients and their rights across the healthcare continuum.
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#MLK #MLKDay #patientadvocacy #patientadvocate #chronicwarrior #chronicillness #healthcare #chronicallyfabulous #advocate #changetheworld #mondaymotivation
It’s been an overwhelming week to say the least. But I can always count on a good workout to help me relieve stress (and a glass of 🥂after of course)! #autoimmunewarrior #workout #champagneismyspiritanimal #crohnsdisease #psoriaticarthritis #chronicallyfabulous #chronicillness #patientadvocate #workoutmotivation #workoutgear
Shout out to @bostoniapublichouse for being SO super accommodating for my gluten, dairy, and soy free diet. The chef made me a custom burger after figuring out we were going to have a tough time making any of the other menu items work.

I so appreciated how accommodating the staff was and that they didn’t make me feel bad about all of the extra work they had to go through. 
It’s become incredibly difficult for me to dine out because most restaurants cook with vegetable oil, which fun fact, is actually just soybean oil. So for now I’m doing a lot of cooking at home and scouting out the best restaurants that are food allergy friendly! Any and all suggestions welcome for those of you living in the Boston area!! •••
#autoimmunedisease #autoimmunewarrior #IBDwarrior #crohnsdisease #psoriaticarthritis #soyfree #glutenfree #dairyfree #foodismedicine #foodislife #Boston #bostoneats
Shout out to @bostoniapublichouse for being SO super accommodating for my gluten, dairy, and soy free diet. The chef made me a custom burger after figuring out we were going to have a tough time making any of the other menu items work. I so appreciated how accommodating the staff was and that they didn’t make me feel bad about all of the extra work they had to go through. It’s become incredibly difficult for me to dine out because most restaurants cook with vegetable oil, which fun fact, is actually just soybean oil. So for now I’m doing a lot of cooking at home and scouting out the best restaurants that are food allergy friendly! Any and all suggestions welcome for those of you living in the Boston area!! ••• #autoimmunedisease  #autoimmunewarrior  #IBDwarrior  #crohnsdisease  #psoriaticarthritis  #soyfree  #glutenfree  #dairyfree  #foodismedicine  #foodislife  #Boston  #bostoneats 
As I work on pulling together my 2018 goals, I am inspired by this perfect card given to me by my AH-MAZING cousin and one of the most fierce and inspirational people I know @alainajbaker ❤️ As always, many of my goals are centered around bettering the lives of patients through my advocacy work. Here’s to becoming the fire in 2018 and doing everything possible to make a difference🔥
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#autoimmune #autoimmunewarrior #patientadvocate #patientshavepower #patientadvocacy #psoriasiswarrior #psoriaticarthritis #healthcare #2018goals #newyearsresolution #goals #motivation #ladyboss #chronicallyfabulous #chronicillness #chroniclife
As I work on pulling together my 2018 goals, I am inspired by this perfect card given to me by my AH-MAZING cousin and one of the most fierce and inspirational people I know @alainajbaker ❤️ As always, many of my goals are centered around bettering the lives of patients through my advocacy work. Here’s to becoming the fire in 2018 and doing everything possible to make a difference🔥 ••• #autoimmune  #autoimmunewarrior  #patientadvocate  #patientshavepower  #patientadvocacy  #psoriasiswarrior  #psoriaticarthritis  #healthcare  #2018goals  #newyearsresolution  #goals  #motivation  #ladyboss  #chronicallyfabulous  #chronicillness  #chroniclife 
Ringing in the New Year with my ☀️!
Ringing in the New Year with my ☀️!
2017 you have been so good to me. Everyday I get to work my dream job @clarahealth and advocate for patients. I feel so lucky I’ve had the opportunity to grow and expand my work in advocacy from biotech to digital health to Beacon Hill to Capitol Hill! Nothing brings me more joy than making a positive difference in the lives of others ❤️ As always, I’m also thankful to have had such an incredible support system. From my family and dear friends to all of the new friends I’ve met along the way. Cheers to 2017! Can’t wait to see what 2018 brings ✨
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#2017bestnine #autoimmunedisease #crohnsdisease #autoimmunewarrior #psoriaticarthritis #psoriasiswarrior #chronicallyfabulous #chronicillness #newyear #patientshavepower #patientadvocacy #patientadvocate
2017 you have been so good to me. Everyday I get to work my dream job @clarahealth and advocate for patients. I feel so lucky I’ve had the opportunity to grow and expand my work in advocacy from biotech to digital health to Beacon Hill to Capitol Hill! Nothing brings me more joy than making a positive difference in the lives of others ❤️ As always, I’m also thankful to have had such an incredible support system. From my family and dear friends to all of the new friends I’ve met along the way. Cheers to 2017! Can’t wait to see what 2018 brings ✨ • • • #2017bestnine  #autoimmunedisease  #crohnsdisease  #autoimmunewarrior  #psoriaticarthritis  #psoriasiswarrior  #chronicallyfabulous  #chronicillness  #newyear  #patientshavepower  #patientadvocacy  #patientadvocate 
So glad to have this beauty back in the Bean if only for one night. My girl since day 1 ✨🥂👯‍♀️
So glad to have this beauty back in the Bean if only for one night. My girl since day 1 ✨🥂👯‍♀️
Merry Christmas Eve 🎄and happy belated birthday to my beautiful mother @stairs.karen ❤️Thank you for being the most amazing Mom in the world. I don’t know where I would be without you! Thank you for being my rock, my champion, my mentor, and friend. I love you!!
Merry Christmas Eve 🎄and happy belated birthday to my beautiful mother @stairs.karen ❤️Thank you for being the most amazing Mom in the world. I don’t know where I would be without you! Thank you for being my rock, my champion, my mentor, and friend. I love you!!
Ok so I’ve been gluten, dairy, and soy free for a month now and I’m feeling GREAT! It’s been so much easier than when I tried to do this a few years ago. There are SO many more options. Cheese has always been the hardest to let go of but I am OBSESSED with this @treelinecheese! Going to get me through the holidays. Seriously. @marysgonecrackers are pretty fab too! •
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#glutenfree #dairyfree #soyfree #veganfood #autoimmunedisease #autoimmunewarrior #psoriaticarthritis #crohnsdisease #chronicallyfabulous #chronicillness
Ok so I’ve been gluten, dairy, and soy free for a month now and I’m feeling GREAT! It’s been so much easier than when I tried to do this a few years ago. There are SO many more options. Cheese has always been the hardest to let go of but I am OBSESSED with this @treelinecheese! Going to get me through the holidays. Seriously. @marysgonecrackers are pretty fab too! • • • #glutenfree  #dairyfree  #soyfree  #veganfood  #autoimmunedisease  #autoimmunewarrior  #psoriaticarthritis  #crohnsdisease  #chronicallyfabulous  #chronicillness 
Behind the scenes with @peachypains! Episode 2 of the Patients Have Power! Podcast is now available on iTunes. Kelby and I chat about career and chronic illness and how living with autoimmune diseases is like living with a roommate. I love this girl and was so honored to have the opportunity to sit down and chat with her. Happy listening!! 🎤🎧 (Link in bio)
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#PatientsHavePower #podcast #podcasthost #podcastshow #chronicallyfabulous #chronicillness #arthritis #anklosingspondylitis #psoriaticarthritis #autoimmunewarrior #autoimmunedisease #hashimotos #rheumatoidarthritis #invisibleillness
Behind the scenes with @peachypains! Episode 2 of the Patients Have Power! Podcast is now available on iTunes. Kelby and I chat about career and chronic illness and how living with autoimmune diseases is like living with a roommate. I love this girl and was so honored to have the opportunity to sit down and chat with her. Happy listening!! 🎤🎧 (Link in bio) • • • #PatientsHavePower  #podcast  #podcasthost  #podcastshow  #chronicallyfabulous  #chronicillness  #arthritis  #anklosingspondylitis  #psoriaticarthritis  #autoimmunewarrior  #autoimmunedisease  #hashimotos  #rheumatoidarthritis  #invisibleillness 
Accurately captures ALL THE FRUSTRATION I feel dealing with specialty pharmacies and insurance companies. My biologic injection is currently a week past due because of administrative BS. 
I am consistently disheartened by the inefficiencies of these systems and the burden that falls to the patient to deal with them. I’m sick of patients not getting the medications they need when they need them. I will keep fighting and doing everything I can to try to make this better.
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#patientshavepower #patientadvocate #patientadvocacy #crohnsdisease #autoimmunewarrior #chronicallyfabulous #autoimmunedisease #psoriaticarthritis #biologics #medicine #specialtypharmacy #insurance #healthcare #patientsfirst #invisibleillness #chroniclife #chronicillness
Accurately captures ALL THE FRUSTRATION I feel dealing with specialty pharmacies and insurance companies. My biologic injection is currently a week past due because of administrative BS. I am consistently disheartened by the inefficiencies of these systems and the burden that falls to the patient to deal with them. I’m sick of patients not getting the medications they need when they need them. I will keep fighting and doing everything I can to try to make this better. • • • #patientshavepower  #patientadvocate  #patientadvocacy  #crohnsdisease  #autoimmunewarrior  #chronicallyfabulous  #autoimmunedisease  #psoriaticarthritis  #biologics  #medicine  #specialtypharmacy  #insurance  #healthcare  #patientsfirst  #invisibleillness  #chroniclife  #chronicillness 
One of my favorites. This sits on my desk as a reminder of how lucky I am to be passionate about the work I do for and alongside patients.
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#patientadvocate #patientshavepower #doitwithpassionornotatall #passion #dowhatyoulove #healthadvocate #healthadvocacy #spoonie #chronicallyfabulous #autoimmunewarrior #arthritis #crohnsdisease #IBD
Running my own Santa’s workshop today pulling together thank you packages and #BreakthroughCrew welcome kits! Infinitely blessed to work with so many incredible advocates!
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#BreakthroughCrew #PatientsHavePower #PatientAdvocate #PatientAdvocacy #ClinicalTrials #Research #Treatment #Cures #Passion #dowhatyoulove #chronicallyfabulous #arthritis #crohnsdisease #IBD
Today’s adventures in advocacy brought me to the #MA State House for a hearing on #StepTherapy. Step therapy occurs when an insurance company makes patients try and fail a series of medications before they can get the one their doctor actually wants them on. Patients traveled from across the state to testify and share their experiences. Was SO proud of @anna_evangeline for doing an absolutely phenomenal job telling her story and fighting for patients. •
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#h492 #s551 #mapoli #massachusetts #policy #steptherapy #patientshavepower #invisibleillness #spoonie #psoriaticarthritis #rheumatoidarthritis #autoimmune #crohnsdisease #IBD #chronicillness #chronicallyfabulous #patientadvocate #patientadvocacy
Today’s adventures in advocacy brought me to the #MA  State House for a hearing on #StepTherapy . Step therapy occurs when an insurance company makes patients try and fail a series of medications before they can get the one their doctor actually wants them on. Patients traveled from across the state to testify and share their experiences. Was SO proud of @anna_evangeline for doing an absolutely phenomenal job telling her story and fighting for patients. • • • • #h492  #s551  #mapoli  #massachusetts  #policy  #steptherapy  #patientshavepower  #invisibleillness  #spoonie  #psoriaticarthritis  #rheumatoidarthritis  #autoimmune  #crohnsdisease  #IBD  #chronicillness  #chronicallyfabulous  #patientadvocate  #patientadvocacy