In support of @getloudforkidneys and...well... kindness, I ordered a shirt.
You can get in on it as well before the March 20 deadline. A purchase supports @asomics and her efforts to make a huge difference in the kidney world plus kindness is like gold and rare gems these days. Show the world you know how to do kindness.
www.bonfire.com and search “choose kindness” 💙
Don’t be jealous of how good I look 🧟♀️
4:30am barfing 👧🏻
Trying to get any ounce of rest until Jeff has to go to work.
Putting this @vogmask to work although I fear it’s too late!
We may be the only 2 people in Canada who aren’t grumbling about the snow.
For some reason it doesn’t bother me.
It’s spring snow so it’s heavy and wet which means spring is coming and then we get summer!
I didn’t even mind shovelling the driveway and chipping the ice that had formed.
It felt good to have a little energy to spare, to get some fresh air and to move a little more.
And to catch snowflakes on our tongues.
Four years ago we found out this little magical miracle was setting up camp in me. Then we hopped on a plane and took "her" to San Diego. The next 7 months were some of the scariest, stressful, worrisome yet most amazing, joyful and exciting of my life. And then she was born and I realized that there was a reason we went through all that.
It's because she is the one for us.
I can't believe I get to be her mom.
Love you so much little S, so much you'll never believe how much ❤️ (Thinly-veiled secret # 2: I like my kid a lot!)
Going on 4 days of dragging myself around.
There are some days and even weeks like this but the time change didn’t help
It is 6:12pm and I am going to bed.
That may or may not help tomorrow but today it’s what I need because I’m incapable of anything else .
#boringselfcare is awesome
Here’s a thinly-veiled secret about me:
I struggle with mornings.
I always have but even more so now.
I have a love-hate relationship with morning activities. I hate them because it means less time for resting my eyes and morning snuggles but I love them because on some days, without them, my get-up-and-go is absent.
True, some days I drop Sydney at preschool and go back to bed but I can’t always do that
So today, instead of hiding inside, I filled up some spray bottles with water and food colouring and Sydney and I went to vandalize the snow and leave messages for neighbours.
Because it was so warm out many melted away by the time we had walked down to the river and back (@kimmydg you probably wouldn’t even notice yours now)
Truthfully some days I drag myself out and in the end it’s for the good of all of us but sometimes I’m just too worn out. .
We had so much fun spraying and playing by the river and then picnicking on the back deck that I don’t even feel guilty lying on the couch now!
A week ago I ended up at an unexpected destination that made me re-live a hard time in life.
But instead of the reaction I had expected I smiled and knew all had worked out as it was meant to.
Link in bio for a story about Sydney’s home for the 1st 10 days of her life. Hint: it wasn’t in a bassinet in our cozy home.
We made it to the beach on our last morning in Victoria.
Besides the @getloudforkidneys shirt and the beach scene this is a pretty special place.
One of the houses I spent part of my childhood in is behind me and this was my first ocean love 🌊
Yesterday on the way home from the airport - Sydney fell asleep while waiting for her call from the astronaut dispatcher (her story). She missed her shuttle launch.
No picture from today but it was the exact same scene on the 6pm drive home from @thefithappymom’s house.
Love easy bedtime!
I celebrated World Kidney Day in what may seem like insignificant ways (and certainly in a different way than I had envisioned and planned)
I spent time outside and playing - which despite kidney failure I am still able to do.
I spent today with my mom who has supported and carried me further than she should have to in life.
I spent today with my brother-in-law and my nephew. My brother-in-law used to be a dialysis tech and my nephew is letting me explore the world through his 2-year-old eyes.
I spent today talking nephrology, research and transplants with my sister for as long as our 2 and 3 year old children would allow.
I spent today making plans to volunteer with local kidney support organizations.
And I spent today laughing with, eating with, playing with, teaching, being taught by and walking in the rain with Sydney.
There are a million reasons why she shouldn’t even exist and one major one is kidney failure. And yet, despite it all and all the struggle to get her here, there she is yelling “mama, come wipe my butt!” 😂 And that is a miracle that I will accept any day! I look over at her sleeping beside me and still can’t believe she is here and that my failing kidneys didn’t keep her from me
Kidneys are things that can get taken for granted, often until it’s too late.
I share so much of this and advocate for awareness of kidney failure, disease and transplantation because I don’t want others to end up like me or any of a huge number of kidney warriors I am proud to call friends.
Kidney failure can be identified, slowed and even in some cases prevented if more people knew the facts and the things to look for.
So I @getloudforkidneys - not for me but for you.
I’m already here at kidney failure but you don’t have to join me and the millions of others in the world who are like me 💚
#getloudforkidneys @world_kidney_day_official @transplanttrot @kidneynabt @kidneyhealth #kidneyfailure#chronickidneydisease#chronickidneyfailure#ckd#kidneywarrior#worldkidneyday#worldkidneyday2018
Happy International Women’s Day. - From this little force in the world and for this little force in the world
My wish for her is that by the time she is able to write about this day for herself she won’t have to.
105 years of needing to acknowledge that woman are no less than any other gender is long enough.
We all know the reasons why this day exists and obviously the message still is not getting through.
Or there wouldn’t be an international woman’s day.
Women have enough to think about and if you’re a a woman *and* part of a minority group then I stand with you because the barriers against you can be even more reinforced
Every single person I know (of any gender) who is raising children (of any gender) is leading the way away from bias and bigotry of any kind and I am proud to be raising my daughter alongside them.
And to every child-free home who is fighting for an end to gender inequality by going to work, speaking their minds and treating every individual as an equal, I’m with you too
One month ago today we were supposed to be heading off for 3 weeks in Australia. I ended up in the ER instead and we made the decision to cancel that trip.
Today we landed in Victoria, BC and as soon as I got out of the car at my sister’s house I saw this.
When we booked the flights here (a week ago) I didn’t realize it was a month exactly since the last attempted flight. For some reason significant dates mean something to me.
It’s amazing the changes that can happen over time.
Barely days after our cancelled Australia trip I was over the disappointment. Maybe I was too sick to care and I knew I was glad to be home and that ill. But I also know I have worked hard to accept, embrace, let go and move on over the last couple years.
There is so much in life that is out of our control. Even more so for me lately. So getting hung up on ifs, but, I wish I had, and all the other negative emotions from challenging events gone by does me no good.
And now I am in Victoria, having a reprieve from the snow, enjoying the abundance that seems to grow around my sister and watching newborn lambs that were born this morning.
And being grateful for the great as well as the lessons from the challenges so I can @liveagreatstory
2 tests down, 1 to go.
No signs of active Crohn’s disease 🙌🏻
Almost recovered from the sedation and ready for my dinner of brownies!
Now that I have an MRI coming up I realize I’ve never had one before.
How will I lie still for so long?
Inspired by @jenskidney my family and I are participating in the @transplanttrot in Calgary on April 28 to support the Canadian Transplant Association.
The Canadian Transplant Association promotes awareness of organ donation as well as supporting transplant recipients' in their desire to achieve healthy lifestyles. This is a goal of mine now and post-transplant so I can explore the great outdoors and keep up with Sydney in the years to come.
The CTA helps both donors and recipients through support networks and programs.
There are lots of great causes out there but if you feel drawn to support our fundraising efforts the link is in my bio. 💚