It’s important to us that our models stories are told, to inspire & give hope, and they are our motivation every single day.
This is darling Daisy, she was born with fibula hemimila, a birth defect that was picked up on her scan. Her feet never formed properly & her fibula bones never formed.
She had to wait until she was 18 months old before she had and above & below knee amputation.
Alex her Daddy writes:
“Looking back on these photos from 6 years ago when Daisy had her double amputation, it was the worst experience and time ever, leaving your child in a room knowing what was going to happen to her.
We were not fully supported and had to learn how to do bandaging ourselves and had no home care. She got an infection in the hospital causing her to have more operations.
She is such a brave child for what she had to go through and if I could I would give my own legs to her in a heartbeat.
6 years later she is my inspiration,my motivation- everything. She has changed me for a better person and watching her now doing so well, I couldn’t be prouder.
It’s my job to encourage and support her to become what I know she will be and do everything she wants in life, and when I’m not around anymore I hope that someone else will be by her side doing the same for my baby.
Enjoy your lives and do what makes you happy and don’t make excuses because life is too short.”
A year ago today I photographed some of the wonderful Zebedee Performing Arts group for the 'This Is Me' Exhibition. Zoe then asked me if I had ever considered being the other side of the camera and wanted to be a part of @zebedee_management . At first I was a little reluctant, but a year on I have made so many friends and even a boyfriend! (@jamesshawtennis 😘) and with every shoot I have precious photographs and memories to keep forever 💕 #teamzebedee
How boring would life be without diversity? 💙💛 We're very excited for World Downs Syndrome Day this year - 21/03/2018 💙💛 Wear blue and yellow or odd socks to show your support!
Photograph by @ched53
Raising awareness for @britishdeafassociation #signlanguage this week.
Here is Amazing Andrew and his story written by mum Donna:
Andrew was diagnosed with sensorineural deafness when he was four months old and has worn aids ever since. He has had numerous sets of grommets fitted and I've lost count of the hearing aids lost but it's quite a lot - fortunately we have a very understanding audiologist! He has had lots of different picture earmoulds over the years from Tweenies, Barney, Dr Who, pirates, footballs and England FC but they still don't do moulds with the Crystal Palace logo in!
He has now been diagnosed with a cholesteatoma of possibly both ears but we are waiting for an exploratory operation to establish exactly what needs to be done. Andrew also has selective hearing loss especially when bedtime is involved 😂
If you haven’t met our amazing TESS yet- where have you been?!? Tess has a huge social media following and is a beauty and make up influencer. We think she’s one incredible lady with the best style, attitude and sense of humour and one of the nicest people you could meet.
Go join the oodles of people following her brilliant account!
#teamzebedee#zebedeemanagement#beautybloger#makeupgoals#fashionblogger#beautyinfluencer#model#modelagency#Repost @tess.daly with @get_repost
#OOTD “Encourage yourself, believe in yourself and love yourself. Never doubt who you are” 💜
Off Shoulder Biker Jacket: @fashionnova
Raising awareness for British Deaf Association this week. Here is Lois’ story:
Lois failed her newborn hearing screening at just 4 days old. She was then referred several times from various hospitals until she was confirmed at 6 weeks to be deaf through a genetic cause. Just a few weeks later Lois was given a hearing aid on a headband. She hated wearing it but later began to understand she needed it and would wear during school hours. She did makaton sign language from baby to around 5 years of age, we allowed her to lead the way and she decided to use verbal speech as her choice of communication.
In September 2014 at 7 years old she received her first Baha magnetic implant and later in May 2015 she was implanted on the opposite side, she was implanted late as her skull was not fully grown to have the previous available design, she was the first child at GOSH to have binural magnetics which made her so proud as the consultant made a lot of fuss telling her she has two ears to hear now rather than one, she now wears both processors full time and loves the advantages of wearing them, she says they are much more comfortable. Her speech and language has improved massively since she has been wearing them.
Lois is a bright, observant child with a great sense of humour and bags of confidence. She has a smile that lights the room. Lois accepts being deaf with no confidence issues wearing aids, she has a great support network from family, friends and her education, we have also had a lot of support from NDCS over the years.
#childmodel#kidsfashion#imwearingri#deafmodel#deafawareness#kidsstyle#teamzebedee#zebedeemanagement @riverisland @britishdeafassociation #signlanguageweek
We are raising awareness for the British Deaf Association. This is Holly’s story written by her mum Alison:
Holly wears bone anchored hearing aids as she has some hearing loss (BAHA). Hollys ears were too small for moulds for standard hearing aids so she had to wear her BAHA on a softband until she was old enough to have surgery on her skull. It was a 2 stage operation to.fit the abutments which the aids click on to, which she had done when she was about 5. Holly was quite used to surgery by then as she'd had her tracheostomy, and gastrostomy procedures, as well as tonsilloadenoidectomy and a few tracheoscopys and bronchoscopys.
Holly does have some hearing as she won't always wear her aids but I know she can hear me, she's giggling when she chooses to.ignore after I've asked her to tidy up!! #deafmodel#deafcommunity#deaf#raisingawareness#teamzebedee#modelagency#disabledmodel#childmodel#kidsstyle#hearingaids#redhair#girl#downsyndrome
Helping spread awareness for the British Deaf Association, this is SOPHIES Story:
When I was younger my parents noticed something was wrong from my speech and how loud I spoke sometimes and always asking 'Pardon' or 'What?' or seeming rude or not listening. After hearing tests and appointments I was diagnosed with deafness in my right ear. I had my first hearing aid when I was at primary school - I was a tomboy so I wanted the Birmingham City Football Club logo on the mould part which goes inside my ear - as I was allowed to choose (probably due to it being a children's hospital) however I just remember the football club refused, I was so upset! Since then, I went through school and college with a hearing aid, and I have tried devices out such as the one whereby the teacher would wear a piece of equipment around their neck and I could hear them better, however the teachers sometimes forgot to turn it off, so when they went out of the room I could hear all of their conversations, that I did not want to hear!
I was offered a hearing aid where they put a bone-anchored hearing aid - which is where they have to drill into the skull, however due to my other conditions and how many operations I have had, and mainly the fact I have Arnold Chiari Malformation - which is where the lower part of the brain pushes down onto the spinal canal and I was told I need brain surgery in the future, this type of hearing aid was not appropriate.
I do however now have a roger pen for university lectures for the lecturers to wear, or to leave on a desk if I have to work in big groups so it picks up where it has came from and highlights it to my aids and blocks out background, I can also attach it to my laptop/TV to maximise the quality. This was provided by the university due to being eligible for disabled student allowance, along with a digital recorder to record lectures so I can listen to them at home in case I could not hear or understand properly what was said. It has been a life changer.
I think growing up deaf is one of the hardest things as it makes me feel un-included sometimes, a lot of the time i misunderstand what people say and I feel confused where a noise Cont.......
To help raise awareness for British Deaf Association week we would like to share with you SANTIAGOs story:
I was born with moderate hearing loss, but it only got properly picked up when i was 4 years old now i am nearly 8. I began to use 2 hearing aids when i was 4.5, which i call my 'special ears'. I didn't want to wear them so my mum decided to decorate them so i could feel more confident on wearing them.
It was difficult at first to get used to all the new sounds and volume of the outside world; but i just got on with it.
I can lip read very well and understand basic Makaton and BSL. I upload video tutorials of me signing as it is fun, easy to do and very important.
I am very proud of my Special Ears and try to promote the importance of understanding hearing loss wherenever i can.
It has been a difficult journey for me but i wouldn't change it as my Special Ears are a part of me! •
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Our darling #childmodel Grace for the #behindthescars project by the super talented @sophiemayanne
#love and #thanks#teamzebedee
Here is Grace’s story:
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BEHIND THE SCARS: GRACE "I was born with an oesophageal atresia: this meant there was a huge gap where my oesophagus should have been. Due to this, I couldn’t swallow or eat, and the saliva I produced was going into my trachea. Doctors placed a tube down my throat which was attached to a suction machine to drain my saliva and a tube was put into my stomach so I could get nutrition. I stayed in hospital for 3 months whilst I grew big enough for the surgeons to be able to operate on me and create my new oesophagus.
When the day came for my surgery, my mummy and daddy were very frightened but they knew it needed to be done to allow me to leave the hospital.
After 9 hours in theatre, the amazing doctors created a replacement oesophagus using a piece of my colon. Only 2 weeks later, I was ready to go home and I have never looked back. By the time I was 6 months old, I was defying the odds and eating all my food orally. I still have a gastrostomy tube, which is a feeding tube into my stomach, but that is only used to give me medication. I have two scars to show for this surgery, one down my chest/stomach and one under my arm.
My other scar is on the base of my spine from surgery I had at 9 months old. I had a tethered spinal cord and had surgery to untether it. The surgery went well, but due to post op complications I had to have my wound restitched numerous times. This meant that my scar wasn’t as neat as the doctors would have liked.
My mummy and daddy say I am the bravest, strongest little girl in the world. I don’t really remember how I got my scars but when I notice them, my mummy tells me the stories of them. My scars have always been part of who I am and I am very proud of them." @zebedee_management
Thanks to @muratozkasim 📷 and @ready.steady.riot 💄for the shoot yesterday. Was strange being told not to smile for once 😂😊 More images coming your way soon, but for the moment they are top secret! @zebedee_management