Just a bit of meningitis humour after last week’s snow storm and this week’s ophthalmologist appointment. I made this meme for a friend after the kids said my dilated eyes looked like the White Witch of Narnia. But now I realise it could mean meningitis has turned me into a bearded dwarf. The good news is the ophthalmologist says meningitis didn’t damage my eyes. The bad news is his nurse told me she had viral meningitis in her late twenties and it took her a year (two years if she was honest) to fully recover. I have my good days & my bearded dwarf days, but I’m determined to see this through.
Sounds better when you roll it all into one: "lovacollab". No, not some strange breed of dog 🐶, but the process of finding someone else who loves doing what they do, and working with them. So exciting, inspiring and empowering 🙌🏻. We are currently collaborating with a lovely venue to add another dimension of awesomeness to our 2 hour Baby & Child First Aid sessions... very excited. Think good coffee ☕️, great cakes 🍰, and amazing staff 🤵🏻. Finalising very soon, so watch this space!!
14 years ago lost my baby sister Becky to meningitis when she was only 20 years old. I still remember getting that phone call and later that night went to an industrial club to get drunk and that's when I first met @tolivedeliciously , who became my better half who I've lived with her more than any other human in my adult life hence why she's referred to as my "sister" and I don't know whay I would do without her. Worst and best day of my life.
Cannot believe that is was 7 years ago that Amelia had meningococcal meningitis and sepsis. We were so lucky to be given a second chance with our beautiful girl, many others aren't so lucky. We are thankful everyday to have this beautiful little button in our lives and words cannot express how proud we all are of her! No one expects to have to watch their 18 month old Fight for their life, one of the hardest things life has thrown at us, we are so lucky to have such a strong little lady! 💞💞#meningitisawareness#survivor#proud
2 hour Baby & Child First Aid. £20/pp. CPR. Choking. Burns. Bumps. Febrile seizures. Meningitis awareness. Friendly. Relaxed. Nurse teacher. Jump on board the proactive parent train. Choo choo!! Link to FB page in bio 👆🏻or DM me for more info. X
I’m so going on school run & to Assertive mentoring (parent teacher conferences) in yoga leggings & this Queen of Naps t-shirt. Just living my truth here. Still recovering & I have some serious questions about what my health is doing post meningitis. But also getting ready for some big dates like our move to the Netherlands in July. So each day I approach slow & steady. I’m so grateful for the self discipline learnt running & training with Krav Maga because I’m using it all now. As well as napping. #queenofnaps
| Meningitis |
Meningitis scares me so much as it can kill in hours and the tell-tale non-blanching blotchy purple rash (glass test) can often be the last symptom to appear, if it does at all, so you need to know the other symptoms and go straight to A&E for a blood test, before the infection has taken hold.
These 2 infographics (swipe to see) from @meningitis_now are so clear and I give them out on all my paediatric courses. So please screen shot the most relevant to you - babies/toddlers or children/adults.
It's harder to spot in babies as they can't talk. Children and adults will tell you about their painful joints and stiff neck but babies will just show flu-like symptoms. So make sure you look out for a bulging fontanelle and rapid breathing amongst others. A friend said the unusual cry was the worrying clue for her so she dashed to A&E and it was caught early 👍
Have you heard of the glass test?
Minor recovery setback today as I’ve caught whatever cough+fever going around that one of my littles brought home. Speaking of home, did I mention they’re home- all four of them- all week? We managed toilet scrubbing & salt dough this morning before the lurgy set in. But here’s the advantage of having a teenage daughter- she made the salt dough & cleaned up the kitchen after. We also used most of the dough to make hearts for a Valentine’s Day garland. We used the recipe from Asia Citro’s book ‘150 Screen Free Activities for Kids’ so there was not hot cooktop necessary to mix it. Today we just kneaded salt dough (bad pun intended).
From being sat in our hospital room with a 12 day old baby, being told we don’t know what his future would hold regarding the after effects of bacterial meningitis, to name a few - physical disabilities, deafness, memory loss, lack of concentration, paralysis, speech problems, epilepsy...
Trying to do our own hearing tests by standing at different corners of our hospital room clapping and making weird bird noises to make sure he is looking at us because he can hear rather than just seeing us being crazy (😆poor kid “are these really my parents”😅)
Over analysing every thing about his body, he has a weird cartilage pokey thing behind his left ear and I would ask the doctor if it’s normal, he kept twitching (as babies do) but I still questioned it because I wanted answers and google wasn’t enough. I was sure his feet were twisted and not growing normally (😬🙄)
Thinking back, I sound absolutely mental and it makes me laugh now because I know that it was just in my head and he is fine.
I am so proud of how far we have come.
He is an actual superstar.
Today is hard and I have a feeling it always will be. It’s been three years without my brother and it still isn’t easy, it still doesn’t feel normal, it still hurts. Meningitis took his life in an instant, please please please take the time to educate yourselves and your family’s about ways you can prevent and know the warning signs of meningitis. A lot of the symptoms are similar to having the flu which is why it goes undetected. I wish every single day that I could have done something to prevent this from happening. I miss him so much✨
Not a day goes by without you on my mind, each year it won’t get easier. I’ll always cherish the memories we had. Ohana means family and family means no one gets left behind or forgotten ❤️ #meningitisawareness