This picture makes me a bit sad, but also happy.
On the one hand, it shows that CF can make a person very dependent on all the respiratory therapies and tablets.
One day without therapy? Inconceivably!
On the other hand, you should try to pursue your dreams and live your life as well as you want according to your own ideas.
Sometimes you really have to find a balance in your thoughts for not giving up on something you like.
My personal goal is to be able to scratch some countries on the map until the end of life - even if this is not so easy with cystic fibrosis 🌍💫
Sat down, started reading, finished coffee, made tea, finished the book, finished tea. Cried throughout. Duncan Macmillan is a genius! Loved Lungs and performing that, and I’ve enjoyed Every Brilliant Thing even more - I will perform it one day. 📖☀️🎭 .
I apologize for the absence lately. Thank you to everyone who has liked, shared and commented on my photos. I am so glad you enjoy them, and the feedback has been incredible. I haven't been able to get out and photograph due to my oldest sons continued health issues. Will we ever get these breathing issues under control, or the seizures? Another ER visit this week resulted in nothing really. Two additional doctors visits may have slightly helped. One day I hope my munchkin will be able to go longer than two weeks without his lungs and bronchial tubes getting flared up. Thank you to everyone who sent their well wishes and prayers for him this week. #sickkids#chronicillness#stillnoanswers#lungs#emergencyroom#noanswers
I'm making a dance show with a "body theme" (yes, very mysterious. You'll hear more about it in the near future).
I was playing around with the theme for a while in paint/pictures/drawings. Lots of it won't be used but I kinda liked this.