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.. I’m Batman just not as cool .. this is what my day consists of with bad pain flares so bad my hair follicles and teeth hurt, not to mention vertigo 🤢.. #chronic #chronicillness #chronicpain #severe #migrainessuck #migraine #fybromyalgia #fml #pain #invisiblepain #itsreal #imreal #struggle #invisiblesickness #plussize #curvygirl #pinupgirl
xSay2
Some of you know that I am having my surgery on Feb 20th. But one thing I really want to do is to RAISE AWARENESS OF CROHNS AND COLITIS IN TURKEY. Why? Because everyone(really everyone) believes that it is an infectious sickness just by touching each other. While I was dealing with UC, I also had to deal with people’s unknowledge of IBD. Some of them thought that it was caused by sex,or public toilets, even underwears! Like seriously? I really had hard times at school! One of my classmates ignored touching me because he thought that if he touched me,he would get Ulcerative Colitis. I really receive lots of messages from Turkey who are dealing with UC or crohns but afraid to come out! I am not saying you have to! But don’t be scared! We are not ALIENS! Come on 👽 I hope I can do something one day to change their point of views for IBD! #ulseratifkolit #ülseratifkolitlemücadele #ulcerativecolitis #uc #crohns #ibd #inflammatoryboweldisease #ulcerativecolitisandcrohns #raiseawareness #happiness #love #like #laugh #invisiblesickness #sickness #chronic #chronicpain #chronicillness #illness #farkindalikyarat
Some of you know that I am having my surgery on Feb 20th. But one thing I really want to do is to RAISE AWARENESS OF CROHNS AND COLITIS IN TURKEY. Why? Because everyone(really everyone) believes that it is an infectious sickness just by touching each other. While I was dealing with UC, I also had to deal with people’s unknowledge of IBD. Some of them thought that it was caused by sex,or public toilets, even underwears! Like seriously? I really had hard times at school! One of my classmates ignored touching me because he thought that if he touched me,he would get Ulcerative Colitis. I really receive lots of messages from Turkey who are dealing with UC or crohns but afraid to come out! I am not saying you have to! But don’t be scared! We are not ALIENS! Come on 👽 I hope I can do something one day to change their point of views for IBD! #ulseratifkolit  #ülseratifkolitlemücadele  #ulcerativecolitis  #uc  #crohns  #ibd  #inflammatoryboweldisease  #ulcerativecolitisandcrohns  #raiseawareness  #happiness  #love  #like  #laugh  #invisiblesickness  #sickness  #chronic  #chronicpain  #chronicillness  #illness  #farkindalikyarat 
Update to the Graves disease post✌
I'm feeling much better! I have my positive vibes going strong again 💫
📝 My action plan for getting back on track.... Bloodwork done✔
Appt scheduled with my Endo Dr✔
Eating clean(er) ✔
Balanced schedule for the ahead✔
Positive mindset✔
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#gravesdisease #gravesrecovery #stayingstrong #healthymindset #healthmatters #selfcare #autoimmunedisease #bossbabe #invisiblesickness #takingcontrol
The worst thing about being sick all the time is some days you feel like a train hit you...but you gotta smile, and go on. Right here I am fatigued, having terrible joint pain, and I can barely keep my hands from shaking. My skin feels like fire and I am extremely weak today but oh well....the world goes on and so must I. #autoimmune #invisiblesickness #roughday #suckingitup #smilechild
The worst thing about being sick all the time is some days you feel like a train hit you...but you gotta smile, and go on. Right here I am fatigued, having terrible joint pain, and I can barely keep my hands from shaking. My skin feels like fire and I am extremely weak today but oh well....the world goes on and so must I. #autoimmune  #invisiblesickness  #roughday  #suckingitup  #smilechild 
Hell no! My UC can’t control my life! I control my UC! My doctor even told me the same thing! Just live your life don’t worry I am here for you and I will be checking up on you 24/7! When you focus on other stuff,especially the things you LOVE , you really forget about everything. Motivate yourself. Do make up, wear the best clothes you have, look in the mirror and be proud of yourself! You are the beautiful warrior I have ever seen! Don’t let people bully you (like they did to me!) because YOU HAVE INVISIBLE SICKNESS😒 be the one who they wanna become!- oh Maybe some of you would think that I am on remission, and it is easy to talk but no! I have been bleeding alot. Trying to fight with this thing as well!  #uc #invisiblesickness #ibd #ulcerativecolitis #colitis #crohns #inflammatoryboweldisease #pain #remission #bleeding #chronic #chronicpainprincess #princess #love #like #laugh #instagram #awareness #sickness #joy #enjoy #behappy #happy #friends #support #bully #bullying #anger #doctor #hospital
Hell no! My UC can’t control my life! I control my UC! My doctor even told me the same thing! Just live your life don’t worry I am here for you and I will be checking up on you 24/7! When you focus on other stuff,especially the things you LOVE , you really forget about everything. Motivate yourself. Do make up, wear the best clothes you have, look in the mirror and be proud of yourself! You are the beautiful warrior I have ever seen! Don’t let people bully you (like they did to me!) because YOU HAVE INVISIBLE SICKNESS😒 be the one who they wanna become!- oh Maybe some of you would think that I am on remission, and it is easy to talk but no! I have been bleeding alot. Trying to fight with this thing as well! #uc  #invisiblesickness  #ibd  #ulcerativecolitis  #colitis  #crohns  #inflammatoryboweldisease  #pain  #remission  #bleeding  #chronic  #chronicpainprincess  #princess  #love  #like  #laugh  #instagram  #awareness  #sickness  #joy  #enjoy  #behappy  #happy  #friends  #support  #bully  #bullying  #anger  #doctor  #hospital 
My attitude towards to my UC! Even though you create cramps or bleed to death! I am trying to live my life you little thing 😂 please just stop ! Sometimes it is really hard to deal with UC. I get so emotional really quickly, you can see me crying and crying and crying 😔 But I believe that we will manage to win this thing! If you ask me how I am feeling ; I am feeling okay even though I bleeedddd A LOT. Going to visit my doctor tomorrow.. #uc #ulcerativecolitis #ulcerativecolitissucks #invisiblesickness #pain #cramps #bleeding #doctor #hospital #appointment #ibd #inflammatoryboweldisease #love #live #life #like #girlwithulcerativecolitis #fun #enjoy
My attitude towards to my UC! Even though you create cramps or bleed to death! I am trying to live my life you little thing 😂 please just stop ! Sometimes it is really hard to deal with UC. I get so emotional really quickly, you can see me crying and crying and crying 😔 But I believe that we will manage to win this thing! If you ask me how I am feeling ; I am feeling okay even though I bleeedddd A LOT. Going to visit my doctor tomorrow.. #uc  #ulcerativecolitis  #ulcerativecolitissucks  #invisiblesickness  #pain  #cramps  #bleeding  #doctor  #hospital  #appointment  #ibd  #inflammatoryboweldisease  #love  #live  #life  #like  #girlwithulcerativecolitis  #fun  #enjoy 
💩 I am Elif who deals with Ulcerative Colitis since 2015 baby! We really have a weird relationship❤️ try to live your life, love your life and laugh with it!  #uc #ulcerativecolitis #ibd #inflammatoryboweldisease #disease #sickness #invisiblesickness #chronic #chronicillness #pain #remission #bleeding #toilet #bowel #guts #hospital #doctor #nurse
In 2 hours it will officially be my 6 month craniotomy anniversary, 12pm on June 26, I was challenged and overcame a 4 hour brain surgery; removing a tumor from my cerebellum. Happy 6th months crainaversity to me :) half way there but have made tremendous progress! Be kind, stay strong and never give up🙏🏼💪🏻💕 I have written "full" bits and pieces to explain my full journey from endless doctor and ER visits to being diagnosed. When one doctor finally listened to me and wasn't going to stop until he could figure out what was wrong. Symptomatic for months, uncomfortable and not knowing what was wrong. So many people have saved and touch my life this year. Thank you to everyone. 💕 I will continue to spread braintumor awareness- link in bio #invisiblesickness #braintumorssuck #braintumor #survivor #craniotomy #craniotomyrecovery
In 2 hours it will officially be my 6 month craniotomy anniversary, 12pm on June 26, I was challenged and overcame a 4 hour brain surgery; removing a tumor from my cerebellum. Happy 6th months crainaversity to me :) half way there but have made tremendous progress! Be kind, stay strong and never give up🙏🏼💪🏻💕 I have written "full" bits and pieces to explain my full journey from endless doctor and ER visits to being diagnosed. When one doctor finally listened to me and wasn't going to stop until he could figure out what was wrong. Symptomatic for months, uncomfortable and not knowing what was wrong. So many people have saved and touch my life this year. Thank you to everyone. 💕 I will continue to spread braintumor awareness- link in bio #invisiblesickness  #braintumorssuck  #braintumor  #survivor  #craniotomy  #craniotomyrecovery 
DOING CHECK UPS BEFORE ENTYVIO INFUSION 💉 “starting my entyvio infusion on Wednesday” —> when the nurse saw me she was like “omg where have you been?! I missed you!” Because last month I had like 5-6 blood tests every one week.. so she got used to me! 😂 today it wasn’t painful at all! Smiling and loving it! But it was so emotional at my doctor’s room! I started to cry.. he told me some beautiful stuff! From the way I look, how I manage to fight with this invisible sickness, from love & relationships.. and at the end of our conversation he gave me huge hug ! I really needed this.. and getting support from your doctor, it is INCREDIBLE❤️ #doctor #patience #hospital #pain #invisiblesickness #sickness #chronic #chronicillness #support #uc #ulcerativecolitis #girlwithulcerativecolitis #crohns #ibd #inflammatoryboweldisease #nopainnogain #relationship #love #hate #emotional #bloodtest #tests #entyvioinfusion
DOING CHECK UPS BEFORE ENTYVIO INFUSION 💉 “starting my entyvio infusion on Wednesday” —> when the nurse saw me she was like “omg where have you been?! I missed you!” Because last month I had like 5-6 blood tests every one week.. so she got used to me! 😂 today it wasn’t painful at all! Smiling and loving it! But it was so emotional at my doctor’s room! I started to cry.. he told me some beautiful stuff! From the way I look, how I manage to fight with this invisible sickness, from love & relationships.. and at the end of our conversation he gave me huge hug ! I really needed this.. and getting support from your doctor, it is INCREDIBLE❤️ #doctor  #patience  #hospital  #pain  #invisiblesickness  #sickness  #chronic  #chronicillness  #support  #uc  #ulcerativecolitis  #girlwithulcerativecolitis  #crohns  #ibd  #inflammatoryboweldisease  #nopainnogain  #relationship  #love  #hate  #emotional  #bloodtest  #tests  #entyvioinfusion 
#Repost from @juan_rekers with @regram.app ... Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible #invisiblesickness #breakthestigma #breakthesilence #education #mentalhealthawareness #mentalhealth #mentaldisorders #mentaldiseases #mentalissues #mentalillness #psychicpain #neurological #ignorance #specialneeds #unhappy #unloved #tired #fibromyalgia #eds #borderlinepersonalitydisorder #invisibledisability #chronicpain
#Repost  from @juan_rekers with @regram.app ... Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible  #invisiblesickness  #breakthestigma  #breakthesilence  #education  #mentalhealthawareness  #mentalhealth  #mentaldisorders  #mentaldiseases  #mentalissues  #mentalillness  #psychicpain  #neurological  #ignorance  #specialneeds  #unhappy  #unloved  #tired  #fibromyalgia  #eds  #borderlinepersonalitydisorder  #invisibledisability  #chronicpain 
#truestory #facts #thisisme #fibromyalgia
#truthbetold #overcomer 
@juan_rekers with @repostsaveapp ・・・ Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible #invisiblesickness #breakthestigma #breakthesilence #education #mentalhealthawareness #mentalhealth #mentaldisorders #mentaldiseases #mentalissues #mentalillness #psychicpain #neurological #ignorance #specialneeds #unhappy #unloved #tired #empty #warriors #mentalhealthwarriors #teachers  #zorgverlener #ambulantbegeleider
#truestory  #facts  #thisisme  #fibromyalgia  #truthbetold  #overcomer  @juan_rekers with @repostsaveapp ・・・ Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible  #invisiblesickness  #breakthestigma  #breakthesilence  #education  #mentalhealthawareness  #mentalhealth  #mentaldisorders  #mentaldiseases  #mentalissues  #mentalillness  #psychicpain  #neurological  #ignorance  #specialneeds  #unhappy  #unloved  #tired  #empty  #warriors  #mentalhealthwarriors  #teachers  #zorgverlener  #ambulantbegeleider 
Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible #invisiblesickness #breakthestigma #breakthesilence #education #mentalhealthawareness #mentalhealth #mentaldisorders #mentaldiseases #mentalissues #mentalillness #psychicpain #neurological #ignorance #specialneeds #unhappy #unloved #tired #empty #warriors #mentalhealthwarriors #teachers #Dragoncoaching #zorgverlener #ambulantbegeleider
Be careful how you mention these vulnerable people! Mental Illness is INVISIBLE......Never judge.....Support, care and kisten to these warriors!😈🐺🖤 #invisible  #invisiblesickness  #breakthestigma  #breakthesilence  #education  #mentalhealthawareness  #mentalhealth  #mentaldisorders  #mentaldiseases  #mentalissues  #mentalillness  #psychicpain  #neurological  #ignorance  #specialneeds  #unhappy  #unloved  #tired  #empty  #warriors  #mentalhealthwarriors  #teachers  #Dragoncoaching  #zorgverlener  #ambulantbegeleider 
Ya know when your bike chain gets stuck and you try to pedal but you just get that stubborn grinding gears thing. Thats how my joints/body feel almost everyday. I struggle with PMDD and on top of that the last few months I’ve gotten more sick, having to quit my job and my school work is suffering. Some days I stay in bed and sleep all day simply bc I don’t have the energy to do anything and I’m in so much pain. Some days I’m stuck in the bathroom sick as a dog. We’re not sure what is causing all these symptoms bc I cant get into a specialist until mid December. This was a super rough week for me And as it gets colder out and my pain gets worse I just want to send love and peace to all of my friends out there struggling with invisible illness no matter how big or small just remember that you are not alone. Just because we don’t look sick doesn’t mean it isn’t real. THIS IS NO WAY A POST FOR SYMPATHY OR PITY, but for awareness and support. Keep fighting brothers and sisters.  These illnesses do not define us. Don’t give up. ☮️💜💪🏼☀️much much love. #pmddawareness #invisiblesickness #dontgiveup
Ya know when your bike chain gets stuck and you try to pedal but you just get that stubborn grinding gears thing. Thats how my joints/body feel almost everyday. I struggle with PMDD and on top of that the last few months I’ve gotten more sick, having to quit my job and my school work is suffering. Some days I stay in bed and sleep all day simply bc I don’t have the energy to do anything and I’m in so much pain. Some days I’m stuck in the bathroom sick as a dog. We’re not sure what is causing all these symptoms bc I cant get into a specialist until mid December. This was a super rough week for me And as it gets colder out and my pain gets worse I just want to send love and peace to all of my friends out there struggling with invisible illness no matter how big or small just remember that you are not alone. Just because we don’t look sick doesn’t mean it isn’t real. THIS IS NO WAY A POST FOR SYMPATHY OR PITY, but for awareness and support. Keep fighting brothers and sisters. These illnesses do not define us. Don’t give up. ☮️💜💪🏼☀️much much love. #pmddawareness  #invisiblesickness  #dontgiveup 
UPDATE about my journey with Ulcerative Colitis! Just came back from my MRI, going to start my entyvio infusion soon.. Sorry the video cuts in the end! I just want to say that I hope you guys are feeling great and I am sending you lots of kisses😘 #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #invisiblesickness #pain #remission #infusion #mri #entyvioinfusion #doctor #hospital #nurse #sickness #chronic
Ima gettin' there... 🤷🏽‍♂️😓😅 #invisiblesickness  #hyperthyroidism #getmeros solid 120 💪🏽💪🏽💪🏽
it is CROHN’S AND COLITIS AWARENESS WEEK 💜 1. Medications that I am using (also remicade infusion) 2. Things I used to love before UC 😃 If you don’t know me, my name is Elif and I am Ulcerative Colitis warrior since 2015! I have been fighting with this invisible sickness like crazy! We have ups and downs! Our favorite place to hang out is the BATHROOM 💩💩 she shows her love for me by having cramps or bleeding.. 💜 she just adores me! I know! She loves my gut so much that she bleeds a lot! 😂 so this my love story! I am not single, sorry guys! I am in love with my Ulcerative Colitis. We have a weird relationshit, I mean relationship 💩- I am always here for you! LET’S RAISE OUR AWARENESS! #crohns #colitis #ulcerativecolitis #ibdawarenessweek #awareness #raiseawareness #shareawareness #invisiblesickness #pain #remission #flareup #nopainnogain #loveyourself #happy #fun #sad #love #doctor #hospital
it is CROHN’S AND COLITIS AWARENESS WEEK 💜 1. Medications that I am using (also remicade infusion) 2. Things I used to love before UC 😃 If you don’t know me, my name is Elif and I am Ulcerative Colitis warrior since 2015! I have been fighting with this invisible sickness like crazy! We have ups and downs! Our favorite place to hang out is the BATHROOM 💩💩 she shows her love for me by having cramps or bleeding.. 💜 she just adores me! I know! She loves my gut so much that she bleeds a lot! 😂 so this my love story! I am not single, sorry guys! I am in love with my Ulcerative Colitis. We have a weird relationshit, I mean relationship 💩- I am always here for you! LET’S RAISE OUR AWARENESS! #crohns  #colitis  #ulcerativecolitis  #ibdawarenessweek  #awareness  #raiseawareness  #shareawareness  #invisiblesickness  #pain  #remission  #flareup  #nopainnogain  #loveyourself  #happy  #fun  #sad  #love  #doctor  #hospital 
While dealing with Ulcerative Colitis,Cronhs or IBD it’s really important to keep your feet warm 😌 whenever I get a cold from my feet, I really have a bad pain! Keep your feet warm! 😂❤️ #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #pain #warm #remission #flareup #bleeding #doctor #hospital #home #nurse #invisiblesickness #sickness #chronic #chronicpain #chronicsickness #crohns #crohnsandcolitisfoundationofamerica
So is it horrible to travel while you are on your flare up? 🧐 I don’t know.. but can you guess where I am at?! Of course ! BATHROOM 🚽 I am not on my worst flare up so.. I am able to travel ✈️ as I told you before, try to do stuff that you love even it’s just a short of time! With this you will motivate yourself! Suddenly you will start to forget about your pain, and focus on your happiness! Love y’all ❤️😘 #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #sickness #invisiblesickness #pain #flareup #bathroom #toilets #mirrorselfie #doctor #airport #remission #holiday #shorttrip
So is it horrible to travel while you are on your flare up? 🧐 I don’t know.. but can you guess where I am at?! Of course ! BATHROOM 🚽 I am not on my worst flare up so.. I am able to travel ✈️ as I told you before, try to do stuff that you love even it’s just a short of time! With this you will motivate yourself! Suddenly you will start to forget about your pain, and focus on your happiness! Love y’all ❤️😘 #uc  #ulcerativecolitis  #crohns  #ibd  #inflammatoryboweldisease  #sickness  #invisiblesickness  #pain  #flareup  #bathroom  #toilets  #mirrorselfie  #doctor  #airport  #remission  #holiday  #shorttrip 
Had so much fun while chatting with @thrivebyfood ! It was so helpful to talk with someone who has UC or who used to! 😍❤️😘 I am so happy that we had time to chat and talk about everything! Thank you for your kind post! Looking forward to talk to you guys as well! Let’s all keep in touch 😘😘😍❤️☘️ #uc #ulcerativcolitis #crohns #ibd #inflammatoryboweldisease #invisiblesickness #illness #chronic #chronicpain #warrior #survivor #pain #remission #flareup
Had so much fun while chatting with @thrivebyfood ! It was so helpful to talk with someone who has UC or who used to! 😍❤️😘 I am so happy that we had time to chat and talk about everything! Thank you for your kind post! Looking forward to talk to you guys as well! Let’s all keep in touch 😘😘😍❤️☘️ #uc  #ulcerativcolitis  #crohns  #ibd  #inflammatoryboweldisease  #invisiblesickness  #illness  #chronic  #chronicpain  #warrior  #survivor  #pain  #remission  #flareup 
Just a girl who deals with Ulcerative Colitis 🙋🏼☘️ no matter how much pain you have, try to do stuff that you love so as to motivate yourself ❤️ or you can talk with me! Or you can just dance ☘️🙋🏼😉 #uc #ulcerativecolitis #ibd #inflammatoryboweldisease #crohns #chronic #chronicpain #illness #sickness #invisiblesickness #pain #survivor #warrior #raiseawareness #awareness #nopainnogain
Logan's surgery went well. Had to remove 9" of colon and his appendix 😞 BUT! He's strong, he's recovering, and he has lots of people rooting for him. So, THANK YOU! All your prayers and good vibes did their job. ❤️😘
Logan's surgery went well. Had to remove 9" of colon and his appendix 😞 BUT! He's strong, he's recovering, and he has lots of people rooting for him. So, THANK YOU! All your prayers and good vibes did their job. ❤️😘
Chilling with my remicade💪🏼 as you  all know, my bleeding did not stop.. according to my doctors We have to give one last try to remicade infusion! If this doesn’t work I will be starting the Entyvio Infusion! I am going to sleep now😂 big kissess😘 #ulcerativecolitis #ibd #inflammatoryboweldisease #uc #crohns #colitis #ulcerativecolitisremission #remicadeinfusion #invisiblesickness #sickness #pain
When you are on your flare up, and it keeps bleeding and bleeding and bleeding.. it feels like you are in a horror movie 😂💩 KEEP BLEEDING KEEP BLEEDING LOVE ❤️ This is the best way to describe how we are dealing with ulcerative colitis,crohns or ibd - funny,painful,scary,crazy and weird 😂💩 get your shit together baby 💩 I mean literally. #dealingwith #ulcerativecolitis #uc #crohns #ibd #inflammatoryboweldisease #halloween #scare #scary #nopainnogain #funny #fun #behappy #flareup #remission #invisiblesickness #sickness #chronicillness
When you are on your flare up, and it keeps bleeding and bleeding and bleeding.. it feels like you are in a horror movie 😂💩 KEEP BLEEDING KEEP BLEEDING LOVE ❤️ This is the best way to describe how we are dealing with ulcerative colitis,crohns or ibd - funny,painful,scary,crazy and weird 😂💩 get your shit together baby 💩 I mean literally. #dealingwith  #ulcerativecolitis  #uc  #crohns  #ibd  #inflammatoryboweldisease  #halloween  #scare  #scary  #nopainnogain  #funny  #fun  #behappy  #flareup  #remission  #invisiblesickness  #sickness  #chronicillness 
Another day at the hospital and another blood test 💉 of course I close my eyes because it hurts 😂 the nurse knows me really well. She can now easily find my vein and get the blood 🚀 so we did some test to see what is going on with my inflammation etc. because even though I used Entocort Enema it didn't work on me! My bleeding did not stop. My doctor will have a meeting if I should continue with my remicade infusion or start the new "entyvio infusion" if so, on 3rd of November 2017 I will either get Remicade or Entyvio Infusion.. we will see ❤️ #entyvioinfusion #entvyio #remicade #infusion #uc #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #disease #sickness #pain #bloodtest #doctor #nurse #patient #invisiblesickness
Another day at the hospital and another blood test 💉 of course I close my eyes because it hurts 😂 the nurse knows me really well. She can now easily find my vein and get the blood 🚀 so we did some test to see what is going on with my inflammation etc. because even though I used Entocort Enema it didn't work on me! My bleeding did not stop. My doctor will have a meeting if I should continue with my remicade infusion or start the new "entyvio infusion" if so, on 3rd of November 2017 I will either get Remicade or Entyvio Infusion.. we will see ❤️ #entyvioinfusion  #entvyio  #remicade  #infusion  #uc  #ulcerativecolitis  #crohns  #ibd  #inflammatoryboweldisease  #disease  #sickness  #pain  #bloodtest  #doctor  #nurse  #patient  #invisiblesickness 
After my blood sample test, I am having a beautiful Turkish breakfast at my favorite place! Because I am on my flare up I can't eat tomatoes, so those are for my mom 😂🙈 living with ulcerative colitis! #ulcerative #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #inflammation #flareups #remission #invisiblesickness #sickness #pain #nopainnogain
Hello my loves! ❤️ Today I wanted to share a boomerang with you guys 😂🙈 even though I am on my flare up right now, I still try to smile don't give a 💩about my bleeding! thanks god, I don't have any pain or cramps! Don't have to wake up from sleep to go to the bathroom❤️ - Well I have one question for you guys! My doctor told me that Remicade Infusion might not be working on me so he said we can try "Entyvio Infusion" has anyone ever used it before? Because in Turkey they have used it only on 3-4 patients.. they really don't know about its side effects etc. Can you give information about it😘 thank you my loves! Keep on going❤️ SMILE #Smile #behappy #entyvioinfusion #entyvio #infusion #remission #flareup #chronic #chronicpain #pain #cramps #bleeding #uc #ulcerativecolitis #colon #guts #sickness #invisiblesickness #crohns #ibd
Hello my loves! ❤️ Today I wanted to share a boomerang with you guys 😂🙈 even though I am on my flare up right now, I still try to smile don't give a 💩about my bleeding! thanks god, I don't have any pain or cramps! Don't have to wake up from sleep to go to the bathroom❤️ - Well I have one question for you guys! My doctor told me that Remicade Infusion might not be working on me so he said we can try "Entyvio Infusion" has anyone ever used it before? Because in Turkey they have used it only on 3-4 patients.. they really don't know about its side effects etc. Can you give information about it😘 thank you my loves! Keep on going❤️ SMILE #Smile  #behappy  #entyvioinfusion  #entyvio  #infusion  #remission  #flareup  #chronic  #chronicpain  #pain  #cramps  #bleeding  #uc  #ulcerativecolitis  #colon  #guts  #sickness  #invisiblesickness  #crohns  #ibd 
That moment when you feel so bad you have to try and look the opposite. #invisiblesickness #isitfridayyet
My dear friends, I wanted to share something with you guys.. well these photos were taking on May 15th 2017. It was my prom night. Finally graduating from University. I really had difficulties while going to the school and having exams while I was on my flare ups😞 I always dreamt about my prom night.. wanted to wear the beautiful dress.. however before that day, I had my baddest flare up.. I couldn't breath,walk.. I was so scared. I lost lots of blood! I lost lots of weight.. I felt so horrible.. but I still wanted to go that prom. Even though I used the bathroom 20 times a day! I got up, did my hair and make up and dressed up! Went to that prom❤️ I felt so beautiful! Even though the dress got big because I lots weight😞 even though I didn't have any date, I managed to talk, and even dance! Even though I had to rest every 5 minutes❤️ another important thing is that while at my prom I didn't even go to the bathroom! Not even once! I WAS SO HAPPY 😍as you can see, I tried my best! I will fight with this stupid invisible sickness 👍🏼 because we are warriors! And survivors! #prom #promnight #doctor #health #ulcerativecolitis #colitis #crohns #ibd #inflammatoryboweldisease #invisiblesickness #sickness #pain #flareups #bleeding #cramps #enjoy #warrior #fight #survivor
My dear friends, I wanted to share something with you guys.. well these photos were taking on May 15th 2017. It was my prom night. Finally graduating from University. I really had difficulties while going to the school and having exams while I was on my flare ups😞 I always dreamt about my prom night.. wanted to wear the beautiful dress.. however before that day, I had my baddest flare up.. I couldn't breath,walk.. I was so scared. I lost lots of blood! I lost lots of weight.. I felt so horrible.. but I still wanted to go that prom. Even though I used the bathroom 20 times a day! I got up, did my hair and make up and dressed up! Went to that prom❤️ I felt so beautiful! Even though the dress got big because I lots weight😞 even though I didn't have any date, I managed to talk, and even dance! Even though I had to rest every 5 minutes❤️ another important thing is that while at my prom I didn't even go to the bathroom! Not even once! I WAS SO HAPPY 😍as you can see, I tried my best! I will fight with this stupid invisible sickness 👍🏼 because we are warriors! And survivors! #prom  #promnight  #doctor  #health  #ulcerativecolitis  #colitis  #crohns  #ibd  #inflammatoryboweldisease  #invisiblesickness  #sickness  #pain  #flareups  #bleeding  #cramps  #enjoy  #warrior  #fight  #survivor 
Hello guys! As I told you before, I had some bleeding but no pain or cramps etc. we did lots of tests with my doctor! We have no idea what is going on.. So my doctor told me to start this new medication. Which is called "Entocort Enema" --> Entocort Enema (budesonide) belongs to a group of medicines called ‘corticosteroids’. Entocort Enema is used to treat inflammation and ulcers in the large intestine (colon) and rectum. This is known as ulcerative colitis. So this new medication is new for me.. I have been using it for 4 days now, and in the mornings from 8am till 1pm I don't see any blood but at the afternoon I see bleeding.. I have no idea what is going on 😂 still don't have any cramps or pain. Before using it I used to go to the bathroom 7 times a day 💩 but now it is 4-5 times a day.. HAS ANYONE USED THIS ENTOCORT ENEMA BEFORE? If so, did it work.. #ulcerativecolitis #ulcerativecolitislife #ulcerativecolitisremission #flareups #pain #crohns #chronic #illness #sickness #invisiblesickness #entocort #entocortenema #enema #ibd #inflammatoryboweldisease #livingwith #ulcerative #colitis
Hello guys! As I told you before, I had some bleeding but no pain or cramps etc. we did lots of tests with my doctor! We have no idea what is going on.. So my doctor told me to start this new medication. Which is called "Entocort Enema" --> Entocort Enema (budesonide) belongs to a group of medicines called ‘corticosteroids’. Entocort Enema is used to treat inflammation and ulcers in the large intestine (colon) and rectum. This is known as ulcerative colitis. So this new medication is new for me.. I have been using it for 4 days now, and in the mornings from 8am till 1pm I don't see any blood but at the afternoon I see bleeding.. I have no idea what is going on 😂 still don't have any cramps or pain. Before using it I used to go to the bathroom 7 times a day 💩 but now it is 4-5 times a day.. HAS ANYONE USED THIS ENTOCORT ENEMA BEFORE? If so, did it work.. #ulcerativecolitis  #ulcerativecolitislife  #ulcerativecolitisremission  #flareups  #pain  #crohns  #chronic  #illness  #sickness  #invisiblesickness  #entocort  #entocortenema  #enema  #ibd  #inflammatoryboweldisease  #livingwith  #ulcerative  #colitis 
Hello guys! A little note from a girl with Ulcerative Colitis ❤️: lots of people are dealing with chronic illnesses and invisible sicknesses like I do.. lots of people tell me that I look fine & normal from outside because I never give up smiling and being happy❤️ but you get used to the pain that you suffer and try to live your life in a good way.. because of this reason I don't keep people who has negative energy and try to ruin my life or others.. why I do even have to be friends with them? When I can be happy & surround myself with positive things ☘️ and also Thanks to you guys, I am much more happier 😍 loving my life, living my life - never give up 💪🏼 #ulcerativecolitis #uc #ibd #inflammatoryboweldisease #chrons #guts #invisiblesickness #chronic #chronicpain #chronicillness #pain #suffer #warrior #survivor #happy #behappy #nevergiveup #loveyourself
Hello guys! A little note from a girl with Ulcerative Colitis ❤️: lots of people are dealing with chronic illnesses and invisible sicknesses like I do.. lots of people tell me that I look fine & normal from outside because I never give up smiling and being happy❤️ but you get used to the pain that you suffer and try to live your life in a good way.. because of this reason I don't keep people who has negative energy and try to ruin my life or others.. why I do even have to be friends with them? When I can be happy & surround myself with positive things ☘️ and also Thanks to you guys, I am much more happier 😍 loving my life, living my life - never give up 💪🏼 #ulcerativecolitis  #uc  #ibd  #inflammatoryboweldisease  #chrons  #guts  #invisiblesickness  #chronic  #chronicpain  #chronicillness  #pain  #suffer  #warrior  #survivor  #happy  #behappy  #nevergiveup  #loveyourself 
I really don't know how many blood tests I have given in this past few weeks! Even though it hurts alot, I try to stay calm 😂my doctors and I are trying to figure out, what is going on with me! According my results I am not on my flare up, but I have bleeding and rushing to the bathroom.. sometimes I have cramps🤦🏼‍♀️ so another day at the hospital! Chilling and killing lol😂 #nocolonstillrollin #ulcerativecolitis #ulcerativecolitisandcrohns #ulcerativecolitisremission #flareups #sickness #invisiblesickness #pain #ibd #inflammatoryboweldisease #bloodtest #hospital #doctor #nurse
I really don't know how many blood tests I have given in this past few weeks! Even though it hurts alot, I try to stay calm 😂my doctors and I are trying to figure out, what is going on with me! According my results I am not on my flare up, but I have bleeding and rushing to the bathroom.. sometimes I have cramps🤦🏼‍♀️ so another day at the hospital! Chilling and killing lol😂 #nocolonstillrollin  #ulcerativecolitis  #ulcerativecolitisandcrohns  #ulcerativecolitisremission  #flareups  #sickness  #invisiblesickness  #pain  #ibd  #inflammatoryboweldisease  #bloodtest  #hospital  #doctor  #nurse 
Hello my sweet IG family! 🖤 well as you know, I was at the hospital and did some tests.. so here are the results: I had sigmoidoscopy without any anesthesia or any prep.. 😣 it was not "that painful" but I was crying alot 🙁 we had to do it like this because my bleeding was increasing day by day and my doctor told me that he has to figure it out ASAP! Omg.. it was horrible.. according to my #sigmoidoscopy I have flare ups! I had #pathology and waiting for their results😞 I am going to the bathroom 5-6times a day.. as you can see living with Ulcerative colitis is hard but still trying to enjoy it! I am chilling with my PJs and my water 😂 #ulcerativecolitis #crohns #ibd #inflammatoryboweldisease #nocolonstillrollin #colon #intestines #invisiblesickness #sickness #health #water #diet #flareups #remission #survivor #warrior #fight #raiseawareness
Hello my sweet IG family! 🖤 well as you know, I was at the hospital and did some tests.. so here are the results: I had sigmoidoscopy without any anesthesia or any prep.. 😣 it was not "that painful" but I was crying alot 🙁 we had to do it like this because my bleeding was increasing day by day and my doctor told me that he has to figure it out ASAP! Omg.. it was horrible.. according to my #sigmoidoscopy  I have flare ups! I had #pathology  and waiting for their results😞 I am going to the bathroom 5-6times a day.. as you can see living with Ulcerative colitis is hard but still trying to enjoy it! I am chilling with my PJs and my water 😂 #ulcerativecolitis  #crohns  #ibd  #inflammatoryboweldisease  #nocolonstillrollin  #colon  #intestines  #invisiblesickness  #sickness  #health  #water  #diet  #flareups  #remission  #survivor  #warrior  #fight  #raiseawareness