It's so fun to see how Heidi makes eye contact with us. We didn't really expect her to be as alert as she is but, as usual, she's blown us away. I wouldn't be surprised if her attention span is longer than my own. 😂 I'm not even kidding. (Update: it's taken me at least 3 attempts to finally finish this post)
Thankfully we scheduled a 'staycation' week and it just happened to fall before Heidi's heart surgery 🤗 No appointments, no therapy, no nurses, no germs, no flu, nothing but the family chillin together 😏 We've been trying to enjoy the cool, cloudy, breezy days at the park as much as we can before Heidi has to be in recovery mode for a while. I'm worried it will be blazing hot by the time we can take her to the park again. She's not a fan of heat and sunlight... She takes after me 🙄
Continue to be praying for her. She's a tough kid with an extra challenge ahead of her. We know we're in God's hands and we know he's brought us to the right surgeon for Heidi.
Thank you all for you lovely messages and prayers 😊 also, thank you to everyone who donated or even tried to donate blood for Heidi's surgery! We really appreciate the love
I discovered something today and I’m so glad I did! Go check out my insta stories for the full low down! @dailyharvest is my new fave! Especially during this time after my heart procedure. I’m in no mood to prepare food at the moment. 😜
Your daily dose of smoothie sent right to your door, frozen and ready to go. •
No added preservatives or yucky stuff. Just straight up chopped produce. •
And at a great price too! •
Check out my referral link for 3 free cups! Link is in my bio.
Note: when clicking on this link I do make a slight commission, but as always the price is the same to you or in this case even better since you are getting 3 FREE CUPS! Thank you for purchasing thru this link! You are helping me keep my blogs running, so I can continue to bring you more tips. ❤️ (I was not compensated for this review. It comes straight from the heart.)
Fletcher is recovering beautifully but is pretty uncomfortable this morning. Here’s the snapshot of what he’s got going on: He has two lines in his chest that are sewn on, a line in his leg that's sewn on, a chest tube through his chest which is also sewn on. He has an IV in his groin, an IV in his neck, two IV's in his hand, and an IV in his foot. He has two electrical wires that are sewn on to his heart and coming out of his chest to use in the event he needs help pacemaking. A nasal cannula, a special headband to monitor his brain activity. A monitor on his back for his kidney. And the little stickers to monitor his heart activity and an spo2 monitor to measure his oxygen levels. Machines and medications and tests galore. We look up to this kid, he’s a champ ❤️
DAY 22 CHD AWARENESS challenge - MILESTONES. What a perfect day to be milestones because seven years ago TODAY when Tagg was just a few days shy of turning 2 years old, he took his first solo steps in physical therapy. What most don't think or realize but children born with Congenital Heart Defects are often bedridden, weak, classified as "failure to thrive" because of eating issues or poor hear function. Taggert was around 6 pounds when he was born and 19.5 inches long yet by the time he turned one he was still barely over 8 pounds. He didn't sit up on his own without support until a year, he didn't crawl until much later and first steps at 2 years old. He had a feeding tube called a g-tube port in his stomach until age three because he couldn't eat by mouth and was in feeding therapy weekly. For any parent the first steps and words are a big milestone but for us they are MAJOR! #Teamtagg#heartwarrior#chdawareness
🍇🍓Berries are some of the healthiest foods you can eat. They're low in calories, but high in fiber, vitamin C and antioxidants. ⠀
Great for the heart, benefits of these delcious fruits include lowering blood pressure and cholesterol, as well as reducing oxidative stress.⠀
What's your favorite kind of berry? #BeWellFans#AmericanHeartMonth | ✍️: @healthline
1 year ago today. 💔 It feels crazy and unreal and heavy and painful. February has proven to be one hell of a month for our grief. So many feelings and memories. So much sadness and pain. I tried explaining to a friend recently just how much we long for Everett and miss him...it’s suffocating most days...but there are really no accurate enough words to put that longing into perspective. It’s like nothing I’ve ever felt...it can make me physically sick and knock me off my feet and make me scream f*#@ at the top of my lungs driving down the road. I just want my baby back. And I’d walk this same road 1000 times over to know Everett, to be loved by Everett and to be his mama. Our whole family would...in an instant. Everett made our family even better and being his mama is my greatest honor. I know so true that I am surely the luckiest mama around. Yet another day closer to holding our boy again. ❤️👦🏻❤️ #kelleychinaadventure .
11 Months!! 💗
16.3lbs & 4 teeth! 💗
These pictures were fun to take and show her personality as sass so well! 💗
She loves to give kisses, Shake her head no-no and show you how big she is “so big”! She says mama, dada, bye bye, Shay Shay and luloo (love you). She’s every bit as sassy as we expected but STILL the happiest baby ever! 💗
I can’t believe in one month she will be ONE!! 😢. She has blown us away with how far she’s come in such a short time ❤️❤️ 💗
SHARING from @brandi.lee23 😘
Are you feeling the call to open your heart to ever deepening levels so you can continue expanding into the truth of your essence?
Maggie & I recorded a Masterclass this week on 3 Ways to Heal Your Heart & Become a Heart Warrior.
It was SO healing.
We shared about:
- What it felt like to work in the corporate world with closed hearts
- How Maggie and I formed our strong sisterhood
- How I was gifted the opportunity of leading my first Cacao ceremony in 2015
- How women can shift from competition with each other to empowering each other
- A sacred morning ritual to help you connect to Spirit with your Cacao
- How Ayahuasca is helping us heal deep feminine wounds
- Our favorite tips for staying centered during Ayahuasca ceremonies
- and so much more
To watch it click the 1st link in my bio and you will receive the video in your inbox.
If you're reading this, I believe that YOU are a heart warrior here to bring more light into this world. It's time to step into a more expanded, powerful Self than you’ve ever imagined, and I'm here to support you.
I hope that this video heals your heart and empowers your spirit!
Big hug, familia! 💞
February is Congenital Heart Defect Awareness Month!❤💗❤️💗 .
Up until the day that Paisley was diagnosed with multiple heart defects [while still swimming around in utero], I didn't really think all that often about the heart or the vital role it plays.
Since that day when I was told her special little heart was broken & could result in fatality either in utero or shortly after birth, my life was quickly consumed with all things HEART!
I know more about the heart than I ever thought I would ..... and all the fellow heart warrior mamas said, 'Amen!' 😬
Hours spent online researching, sleepless nights crying, countless cardiologist visits, echocardiograms, EKGs, hospital stays & last but most certainly not least - at 2.5 years old, undergoing a big open heart surgery to fix that special little broken heart.
And because of that special little broken heart, I will forever have a broken place in my own heart for all the amazing heart warriors ... 💗
PS ... You can check out a few stats about CHD in my story
Malcolm’s wish — to go to Disney World with his family — was officially “granted” last night at his Wish Party. We are headed to Orlando on Sunday morning for some VIP treatment, courtesy of Make A Wish. Fast pass holders, you’ve got nothing on us. Team Malcolm! #makeawish#makeawishoregon#hlhs#heartwarrior#survivor
About me..Im a Christian senior (66). I have two adult sons. My daughter passed away in 1999 from complications of Spina Bifida. On October 31st I had open heart surgery to replace my defective aortic valve. Five weeks later, on December 3rd, I had a radical hysterectomy for endometrial cancer. The cancer was stage one and I didn't need chemo or radiation. I'm recovering from both surgeries and easing back into daily living.
I've been crafting for twenty five years. Polymer clay is my favorite with felt craft being a close second. I blog about my crafting and life after the surgeries, along with personal dialogues.
I have arthritis in every joint and mild muscular weakness in my arms and legs. My right leg being weaker. I use a walker for short distances outdoors and para transportation around town. I've adapted every area of my life to my physical limitations, including crafting.
All she needs is gloves 😁 After Emma had stressful medical procedures as a baby, including open heart surgery, we were concerned that she would be scared of going to the doctor 👩⚕️ Luckily, it’s the total opposite. She has developed great coping skills & doesn’t mind the appointments 💛 She loves medical gloves so much that we have made it into a game. Before every docs visit, we guess what color gloves they will have. Yesterday, during an appointment @childrensla she added blue to her collection 💙#SwedestMoments
1 year ago- We kissed Charlie as they wheeled her to the OR and said, "We'll see you in a little bit." She was high as hell on whatever they gave her. She pretended her hospital bed was a parade float and was doing a better wave than Sandra Bullock in Ms. Congeniality and blowing kisses. I grabbed Stacey's number, one of the nurses walking back with her, so I could get updates as needed.
We went to the waiting room and sat there. I didn't know what to feel. I didn't know what to expect. I went to the gym the night before and I stood over a bar loaded with a few hundred pounds and angrily picked it up and threw it back down, trying not to let it get to me (SN: it didn't work. I ended up giving in and crying on a box in the corner.). It was my out; but sitting in this waiting room for hours at a time... staring off into space and listening for the door. I felt the grey hairs on my head multiplying.
What felt like days, was about 5 hours, I think. I don't know, but the doctors came in and said everything went well. I'm sitting there next to my dad, my jaw clenched trying to choke back tears. I'm a dude; we can't cry. The doctor says it'll be a bit until we can see Charlie so he heads out and I'm still in a twilight zone, my body tensed. I take a blink to process it and go give Amanda a hug, and sit there for a few minutes while my eyes leaked again.
I had done research the past two days on her condition and I still had zero idea of what was actually going on. The fact that she was even alive for so long while her enlarged heart crushed her lungs is beyond anything i can comprehend. An hour or two pass by and they say she's ready. I still remember him saying, "look, when you go in there, that is not the Charlie you know. Just understand that this is temporary." Of course, me having had enough of my own surgeries I expected a zonked out kid, no big deal.
We rounded the corner in the PICU and this is what greeted me. Tubes, wires, machines, a dozen lines going to one little port in her neck. Absolutely zero things can ever prepare you for walking into a room like that. I sat there and stared at her, wondering if my little girl was still in there somewhere.
Day 21 #heartmonth challenge: Strength. We are thankful everyday for Tank's tremendous amount of strength. Over the past year or so we have discovered just how strong we can be as parents, as a family and for ourselves. This road isn't the easiest, but it is guaranteed to make you stronger.
In February 2011, something unimaginable happened in Southern California, it began to pour pellets of hail... what are the odds of that?! But for my family, this was a day of victory, a day to celebrate something we weren’t sure would happen. We had made it through the first year... we made it through countless doctors appointments, open heart surgery, panic attacks, sleepless nights, sleepless days, anxiety, worry, despair... we made it though. We being Mom, Dad and our first born child. That first year left a lot of questions unanswered, uncertainty... yet we made it though. We were told 17months prior to this day very grim odds... one might even go so far to say our odds of celebrating our baby’s first birthday were as unimaginable as a hail storm in Southern California😉
by Life of Mom Co-Founder, @lucyriles