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It's so fun to see how Heidi makes eye contact with us. We didn't really expect her to be as alert as she is but, as usual, she's blown us away. I wouldn't be surprised if her attention span is longer than my own. 😂 I'm not even kidding. (Update: it's taken me at least 3 attempts to finally finish this post)

Thankfully we scheduled a 'staycation' week and it just happened to fall before Heidi's heart surgery 🤗 No appointments, no therapy, no nurses, no germs, no flu, nothing but the family chillin together 😏 We've been trying to enjoy the cool, cloudy, breezy days at the park as much as we can before Heidi has to be in recovery mode for a while. I'm worried it will be blazing hot by the time we can take her to the park again. She's not a fan of heat and sunlight... She takes after me 🙄 
Continue to be praying for her. She's a tough kid with an extra challenge ahead of her. We know we're in God's hands and we know he's brought us to the right surgeon for Heidi. 
Thank you all for you lovely messages and prayers 😊 also, thank you to everyone who donated or even tried to donate blood for Heidi's surgery! We really appreciate the love

#lovingHeidi #everylifehasvalue #heartwarrior #trisomy18 #t18 #compatiblewithlife
It's so fun to see how Heidi makes eye contact with us. We didn't really expect her to be as alert as she is but, as usual, she's blown us away. I wouldn't be surprised if her attention span is longer than my own. 😂 I'm not even kidding. (Update: it's taken me at least 3 attempts to finally finish this post) Thankfully we scheduled a 'staycation' week and it just happened to fall before Heidi's heart surgery 🤗 No appointments, no therapy, no nurses, no germs, no flu, nothing but the family chillin together 😏 We've been trying to enjoy the cool, cloudy, breezy days at the park as much as we can before Heidi has to be in recovery mode for a while. I'm worried it will be blazing hot by the time we can take her to the park again. She's not a fan of heat and sunlight... She takes after me 🙄 Continue to be praying for her. She's a tough kid with an extra challenge ahead of her. We know we're in God's hands and we know he's brought us to the right surgeon for Heidi. Thank you all for you lovely messages and prayers 😊 also, thank you to everyone who donated or even tried to donate blood for Heidi's surgery! We really appreciate the love #lovingHeidi  #everylifehasvalue  #heartwarrior  #trisomy18  #t18  #compatiblewithlife 
xSay2
Miss Floppy Pants has been working hard over the past month. She can now hold her head up like in this video during tummy time for about 20 seconds a few times a day, and we will TAKE it! I still remember when her head used to flop from side to side and she couldn’t even lift it off of the bed...at all. My husbands goal as Lucy’s personal at home PT 😂 is to have her sitting up on her own by the time she is 2. Lucy we have one year and a lot of work to do! Keep it up big girl! 💗 💪 #lowmuscletone #downsyndrome #downsyndromeawareness #joubertsyndrome #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids
Miss Floppy Pants has been working hard over the past month. She can now hold her head up like in this video during tummy time for about 20 seconds a few times a day, and we will TAKE it! I still remember when her head used to flop from side to side and she couldn’t even lift it off of the bed...at all. My husbands goal as Lucy’s personal at home PT 😂 is to have her sitting up on her own by the time she is 2. Lucy we have one year and a lot of work to do! Keep it up big girl! 💗 💪 #lowmuscletone  #downsyndrome  #downsyndromeawareness  #joubertsyndrome  #downsyndromelove  #nothingdownaboutit  #congenitalheartdefect  #openheartsurgery  #zipperclub  #heartwarrior  #sleepapnea  #lowmuscletone  #t21  #trisomy21  #theluckyfew  #dsdn  #upsyndrome  #changingthefaceofbeauty  #bilateralhearingloss  #hearingaids 
Auction starts at 4pm EST today! Go check it out @babysweetsheart ❤️ We have donated shop credit so you can use it on whatever you would like! .
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#CORAgeous #chd #chdawareness #shopsmallforacause #pegdolls #pegdoll #heartwarrior
I discovered something today and I’m so glad I did! Go check out my insta stories for the full low down! @dailyharvest is my new fave! Especially during this time after my heart procedure. I’m in no mood to prepare food at the moment. 😜
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Whole Foods
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Convenient • 
Your daily dose of smoothie sent right to your door, frozen and ready to go. • 
No added preservatives or yucky stuff. Just straight up chopped produce. • 
And at a great price too! •
Check out my referral link for 3 free cups! Link is in my bio.
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Or: 
https://bit.ly/ThreeFreeCups • 
Note: when clicking on this link I do make a slight commission, but as always the price is the same to you or in this case even better since you are getting 3 FREE CUPS! Thank you for purchasing thru this link! You are helping me keep my blogs running, so I can continue to bring you more tips. ❤️ (I was not compensated for this review. It comes straight from the heart.)
I discovered something today and I’m so glad I did! Go check out my insta stories for the full low down! @dailyharvest is my new fave! Especially during this time after my heart procedure. I’m in no mood to prepare food at the moment. 😜 • Whole Foods • Convenient • Your daily dose of smoothie sent right to your door, frozen and ready to go. • No added preservatives or yucky stuff. Just straight up chopped produce. • And at a great price too! • Check out my referral link for 3 free cups! Link is in my bio. • Or: https://bit.ly/ThreeFreeCups • Note: when clicking on this link I do make a slight commission, but as always the price is the same to you or in this case even better since you are getting 3 FREE CUPS! Thank you for purchasing thru this link! You are helping me keep my blogs running, so I can continue to bring you more tips. ❤️ (I was not compensated for this review. It comes straight from the heart.)
Fletcher is recovering beautifully but is pretty uncomfortable this morning.  Here’s the snapshot of what he’s got going on:  He has two lines in his chest that are sewn on, a line in his leg that's sewn on, a chest tube through his chest which is also sewn on. He has an IV in his groin, an IV in his neck, two IV's in his hand, and an IV in his foot.  He has two electrical wires that are sewn on to his heart and coming out of his chest to use in the event he needs help pacemaking.  A nasal cannula, a special headband to monitor his brain activity.  A monitor on his back for his kidney.  And the little stickers to monitor his heart activity and an spo2 monitor to measure his oxygen levels. Machines and medications and tests galore.  We look up to this kid, he’s a champ ❤️
Fletcher is recovering beautifully but is pretty uncomfortable this morning. Here’s the snapshot of what he’s got going on: He has two lines in his chest that are sewn on, a line in his leg that's sewn on, a chest tube through his chest which is also sewn on. He has an IV in his groin, an IV in his neck, two IV's in his hand, and an IV in his foot. He has two electrical wires that are sewn on to his heart and coming out of his chest to use in the event he needs help pacemaking. A nasal cannula, a special headband to monitor his brain activity. A monitor on his back for his kidney. And the little stickers to monitor his heart activity and an spo2 monitor to measure his oxygen levels. Machines and medications and tests galore. We look up to this kid, he’s a champ ❤️
Brodie got to try one of his daddy's real French fries at lunch. Not something to eat all the time but when in France... #blw #blwmama #blwbaby #6months #baby #playingcatchup #loveit #weaning #nibbles #cutebaby #messybaby #heartwarrior #heartwarriorbaby #loveshisfood #babyhands #homemade #homemadefood #babyfood #diybabyfood #eggfree #eggallergy #allergies
Some alpine potatoes with Beaufort cheese. He was a little offput after the change from Orkney Cheddar but gobbled it all up all the same then had some pear! 
#blw #blwmama #blwbaby #6months #baby #playingcatchup #loveit #weaning #nibbles #cutebaby #messybaby #heartwarrior #heartwarriorbaby #loveshisfood #babyhands #homemade #homemadefood #babyfood #diybabyfood #eggfree #eggallergy #allergies
DAY 22 CHD AWARENESS challenge - MILESTONES.  What a perfect day to be milestones because seven years ago TODAY when Tagg was just a few days shy of turning 2 years old, he took his first solo steps in physical therapy. What most don't think or realize but children born with Congenital Heart Defects are often bedridden, weak, classified as "failure to thrive" because of eating issues or poor hear function. Taggert was around 6 pounds when he was born and 19.5 inches long yet by the time he turned one he was still barely over 8 pounds. He didn't sit up on his own without support until a year, he didn't crawl until much later and first steps at 2 years old. He had a feeding tube called a g-tube port in his stomach until age three because he couldn't eat by mouth and was in feeding therapy weekly. For any parent the first steps and words are a big milestone but for us they are MAJOR!  #Teamtagg #heartwarrior #chdawareness
DAY 22 CHD AWARENESS challenge - MILESTONES. What a perfect day to be milestones because seven years ago TODAY when Tagg was just a few days shy of turning 2 years old, he took his first solo steps in physical therapy. What most don't think or realize but children born with Congenital Heart Defects are often bedridden, weak, classified as "failure to thrive" because of eating issues or poor hear function. Taggert was around 6 pounds when he was born and 19.5 inches long yet by the time he turned one he was still barely over 8 pounds. He didn't sit up on his own without support until a year, he didn't crawl until much later and first steps at 2 years old. He had a feeding tube called a g-tube port in his stomach until age three because he couldn't eat by mouth and was in feeding therapy weekly. For any parent the first steps and words are a big milestone but for us they are MAJOR! #Teamtagg  #heartwarrior  #chdawareness 
In the heart of the mind 
are the roots of the silence 
of thoughts.
Ozkahrel
In the heart of the mind are the roots of the silence of thoughts. Ozkahrel
•Guess who's registered for Kindergarten?! KINDERGARTEN... like what?!?!?! Can't believe my little ride or die is starting school this year 😭. Ugh I look at him and tell myself he's too little to start school. I'm definitely going to miss our Target trips, lunch/park dates and everything else we do together. My handsome boy, mama is going to have a hard time dropping you off at school 💔• #Alexjeremiah #heartwarrior •
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momlife #motherhoodlens #motherhoodrising #motherhood #motherhoodthroughinstagram #honestmotherhood  #beyond_motherhood #unitedmotherhood #vscodaily #darlingmoments #mytinymoments #ohheymama #mymamahood  #darlingmamatribe #therealinstamoms #wildmamatribe #ohmamamoment #preciousmoments #motherhoodunplugged #childhoodunplugged #stopcensoringmotherhood #parenthood_moments #rawmotherhood #momofinstagram
•Guess who's registered for Kindergarten?! KINDERGARTEN... like what?!?!?! Can't believe my little ride or die is starting school this year 😭. Ugh I look at him and tell myself he's too little to start school. I'm definitely going to miss our Target trips, lunch/park dates and everything else we do together. My handsome boy, mama is going to have a hard time dropping you off at school 💔• #Alexjeremiah  #heartwarrior  • • • • momlife #motherhoodlens  #motherhoodrising  #motherhood  #motherhoodthroughinstagram  #honestmotherhood  #beyond_motherhood  #unitedmotherhood  #vscodaily  #darlingmoments  #mytinymoments  #ohheymama  #mymamahood  #darlingmamatribe  #therealinstamoms  #wildmamatribe  #ohmamamoment  #preciousmoments  #motherhoodunplugged  #childhoodunplugged  #stopcensoringmotherhood  #parenthood_moments  #rawmotherhood  #momofinstagram 
Forget everything I just said lol this stinker is just fine! They said she needs support because she is sick but expect she will come off it in a few days and we’ll transition to her CPAP she will take home for when she sleeps. #morealikethandifferent #theluckyfew #heartwarrior #chdawareness #hyperinsilinusm #kittystrong
#Repost @babysweetsheart with @get_repost
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Only a few hours until the #CORAgeous Instagram Auction begins!  Make sure you go follow @babysweetsheart 👀enjoy this little sneak peek!👀
#yay #heartwarrior #heartmom #chd #chdawareness #warrior #shopsmall
Only a few hours until the #CORAgeous Instagram Auction begins!
👀enjoy this little sneak peek!👀
#yay #heartwarrior #heartmom #chd #chdawareness #warrior #shopsmall
@brooksrunning raffle for Team Big Heart Boston Marathon. Please share with friends. If you’re interested please click on this link (also in bio)
 https://www.crowdrise.com/josephmiddlemissbigheartfoundationboston2018/fundraiser/
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Click on donate now and then select team member: Jennifer Kane. In the comments please put Brooks running raffle so you will be entered. $25 for 1 entry, $50 for 2 entries, $75 for 3 entries, $100+ for 4 entries. 
WHAT YOU GET: a pair of Brooks Running shoes of your choice, socks, beanie, sweatband, cool shades and 2 bracelets. 
And also a donation to this amazing cause. On Friday, Feb 16th, Jack Middlemiss had a heart transplant and less than 72 hours was walking and sitting up in a chair. He is a true superhero. Please consider helping out. ❤️❤️ Winner will be chosen on March 1st. 
#brooksrunning #brookswomen #runhappy #teambigheart #heartwarrior #childrenshospital #togetherforward #runner #marathoner #runtoinspire #runnersofinstagram #womenrunning #womenrunningcommunity #charity #giveback #bostonmarathon #johnhancock #boston
@brooksrunning raffle for Team Big Heart Boston Marathon. Please share with friends. If you’re interested please click on this link (also in bio) https://www.crowdrise.com/josephmiddlemissbigheartfoundationboston2018/fundraiser/ ——— Click on donate now and then select team member: Jennifer Kane. In the comments please put Brooks running raffle so you will be entered. $25 for 1 entry, $50 for 2 entries, $75 for 3 entries, $100+ for 4 entries. WHAT YOU GET: a pair of Brooks Running shoes of your choice, socks, beanie, sweatband, cool shades and 2 bracelets. And also a donation to this amazing cause. On Friday, Feb 16th, Jack Middlemiss had a heart transplant and less than 72 hours was walking and sitting up in a chair. He is a true superhero. Please consider helping out. ❤️❤️ Winner will be chosen on March 1st. #brooksrunning  #brookswomen  #runhappy  #teambigheart  #heartwarrior  #childrenshospital  #togetherforward  #runner  #marathoner  #runtoinspire  #runnersofinstagram  #womenrunning  #womenrunningcommunity  #charity  #giveback  #bostonmarathon  #johnhancock  #boston 
She’s already a reckless AF driver 😆 #didyouevenputitinpark #jumpingoutthevehicle #noseatbelt #warriorprincess
🍇🍓Berries are some of the healthiest foods you can eat. They're low in calories, but high in fiber, vitamin C and antioxidants. ⠀
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Great for the heart, benefits of these delcious fruits include lowering blood pressure and cholesterol, as well as reducing oxidative stress.⠀
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What's your favorite kind of berry? #BeWellFans #AmericanHeartMonth | ✍️: @healthline
🍇🍓Berries are some of the healthiest foods you can eat. They're low in calories, but high in fiber, vitamin C and antioxidants. ⠀ ⠀ Great for the heart, benefits of these delcious fruits include lowering blood pressure and cholesterol, as well as reducing oxidative stress.⠀ ⠀ What's your favorite kind of berry? #BeWellFans  #AmericanHeartMonth  | ✍️: @healthline
1 year ago today. 💔 It feels crazy and unreal and heavy and painful. February has proven to be one hell of a month for our grief. So many feelings and memories. So much sadness and pain. I tried explaining to a friend recently just how much we long for Everett and miss him...it’s suffocating most days...but there are really no accurate enough words to put that longing into perspective. It’s like nothing I’ve ever felt...it can make me physically sick and knock me off my feet and make me scream f*#@ at the top of my lungs driving down the road.  I just want my baby back.  And I’d walk this same road 1000 times over to know Everett, to be loved by Everett and to be his mama. Our whole family would...in an instant.  Everett made our family even better and being his mama is my greatest honor.  I know so true that I am surely the luckiest mama around. Yet another day closer to holding our boy again. ❤️👦🏻❤️ #kelleychinaadventure .
#everettsheart #kelleyfamily8 #chd #chdawareness #chdwarrior #heartwarrior #heterotaxy #hailtothelittlevictors #childloss #grief
1 year ago today. 💔 It feels crazy and unreal and heavy and painful. February has proven to be one hell of a month for our grief. So many feelings and memories. So much sadness and pain. I tried explaining to a friend recently just how much we long for Everett and miss him...it’s suffocating most days...but there are really no accurate enough words to put that longing into perspective. It’s like nothing I’ve ever felt...it can make me physically sick and knock me off my feet and make me scream f*#@ at the top of my lungs driving down the road. I just want my baby back. And I’d walk this same road 1000 times over to know Everett, to be loved by Everett and to be his mama. Our whole family would...in an instant. Everett made our family even better and being his mama is my greatest honor. I know so true that I am surely the luckiest mama around. Yet another day closer to holding our boy again. ❤️👦🏻❤️ #kelleychinaadventure  . #everettsheart  #kelleyfamily8  #chd  #chdawareness  #chdwarrior  #heartwarrior  #heterotaxy  #hailtothelittlevictors  #childloss  #grief 
Jaxon with his own #sphygmomanometer... and of course it's #RED... this is still #NationalHeartMonth

Yay!!!! Celebrating over here all day long.  Jaxon is 6 months old!!! Happy HALF Birthday my sweet sweet boy!!! Time to start planning for the big #1!!!
#timeflies #6monthsold #LEObaby #mygrandson #gigislittleman #ActionJaxon #CHDwarrior #HeartWarrior  #EbsteinsAnomaly
Day 22: milestone. I graduate highschool in a few months and I'm in stable condition. I even got into a few out of state schools. #chdawarenessphotochallenge #chd #chdawareness #heartwarrior #heartmonth
Dealing With Toxic People: Top 5 #HeartWarrior
Yay!!!! Celebrating over here all day long.  Jaxon is 6 months old!!! Happy HALF Birthday my sweet sweet boy!!! Time to start planning for the big #1!!!
#timeflies #6monthsold #LEObaby #mygrandson #gigislittleman #ActionJaxon #CHDwarrior #HeartWarrior
Yay!!!! Celebrating over here all day long.  Jaxon is 6 months old!!! Happy HALF Birthday my sweet sweet boy!!! Time to start planning for the big #1!!!
#timeflies #6monthsold #LEObaby #mygrandson #gigislittleman #ActionJaxon #CHDwarrior #HeartWarrior
Yay!!!! Celebrating over here all day long.  Jaxon is 6 months old!!! Happy HALF Birthday my sweet sweet boy!!! Time to start planning for the big #1!!!
#timeflies #6monthsold #LEObaby #mygrandson #gigislittleman #ActionJaxon #CHDwarrior #HeartWarrior
11 Months!! 💗
16.3lbs & 4 teeth! 💗
These pictures were fun to take and show her personality as sass so well! 💗 
She loves to give kisses, Shake her head no-no and  show you how big she is “so big”! She says mama, dada, bye bye, Shay Shay and luloo (love you). She’s every bit as sassy as we expected but STILL the happiest baby ever! 💗
I can’t believe in one month she will be ONE!! 😢. She has blown us away with how far she’s come in such a short time ❤️❤️ 💗
#ourcallieharper #heartwarrior #baby #heart #chd #chdawareness #awareness 
SHARING from @brandi.lee23 😘
11 Months!! 💗 16.3lbs & 4 teeth! 💗 These pictures were fun to take and show her personality as sass so well! 💗 She loves to give kisses, Shake her head no-no and show you how big she is “so big”! She says mama, dada, bye bye, Shay Shay and luloo (love you). She’s every bit as sassy as we expected but STILL the happiest baby ever! 💗 I can’t believe in one month she will be ONE!! 😢. She has blown us away with how far she’s come in such a short time ❤️❤️ 💗 #ourcallieharper  #heartwarrior  #baby  #heart  #chd  #chdawareness  #awareness  SHARING from @brandi.lee23 😘
Yay!!!! Celebrating over here all day long.  Jaxon is 6 months old!!! Happy HALF Birthday my sweet sweet boy!!! Time to start planning for the big #1!!!
#timeflies #6monthsold #LEObaby #mygrandson #gigislittleman #ActionJaxon #CHDwarrior #HeartWarrior
Are you feeling the call to open your heart to ever deepening levels so you can continue expanding into the truth of your essence?

Maggie & I recorded a Masterclass this week on 3 Ways to Heal Your Heart & Become a Heart Warrior.

It was SO healing.

We shared about:
- What it felt like to work in the corporate world with closed hearts
- How Maggie and I formed our strong sisterhood
- How I was gifted the opportunity of leading my first Cacao ceremony in 2015
- How women can shift from competition with each other to empowering each other
- A sacred morning ritual to help you connect to Spirit with your Cacao
- How Ayahuasca is helping us heal deep feminine wounds
- Our favorite tips for staying centered during Ayahuasca ceremonies
- and so much more

To watch it click the 1st link in my bio and you will receive the video in your inbox.

If you're reading this, I believe that YOU are a heart warrior here to bring more light into this world. It's time to step into a more expanded, powerful Self than you’ve ever imagined, and I'm here to support you.

I hope that this video heals your heart and empowers your spirit!

Big hug, familia! 💞
Are you feeling the call to open your heart to ever deepening levels so you can continue expanding into the truth of your essence? Maggie & I recorded a Masterclass this week on 3 Ways to Heal Your Heart & Become a Heart Warrior. It was SO healing. We shared about: - What it felt like to work in the corporate world with closed hearts - How Maggie and I formed our strong sisterhood - How I was gifted the opportunity of leading my first Cacao ceremony in 2015 - How women can shift from competition with each other to empowering each other - A sacred morning ritual to help you connect to Spirit with your Cacao - How Ayahuasca is helping us heal deep feminine wounds - Our favorite tips for staying centered during Ayahuasca ceremonies - and so much more To watch it click the 1st link in my bio and you will receive the video in your inbox. If you're reading this, I believe that YOU are a heart warrior here to bring more light into this world. It's time to step into a more expanded, powerful Self than you’ve ever imagined, and I'm here to support you. I hope that this video heals your heart and empowers your spirit! Big hug, familia! 💞
Currently on view, It's All Coming Apart with @ktucek. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
It’s All Coming Apart #2⠀⠀⠀⠀⠀⠀⠀⠀⠀
4 color screen print $40⠀⠀⠀⠀⠀⠀⠀⠀⠀
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1 of a 2 part series of limited edition screen prints, available through @atcdengallery. DM us for purchasing info. #atcden ⠀⠀⠀⠀⠀⠀⠀⠀⠀
#prints #printmaking #screenprint #edition #femaleform #abstract #markmaking #female #body #breakdown #color #primary #motherhood #momartist #mom #chdbaby #chdawareness #form #organicform #heartbaby #heartwarrior #heartmonth #series #studio #denver #denverartist
Currently on view, It's All Coming Apart with @ktucek. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ It’s All Coming Apart #2 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 4 color screen print $40⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 1 of a 2 part series of limited edition screen prints, available through @atcdengallery. DM us for purchasing info. #atcden  ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #prints  #printmaking  #screenprint  #edition  #femaleform  #abstract  #markmaking  #female  #body  #breakdown  #color  #primary  #motherhood  #momartist  #mom  #chdbaby  #chdawareness  #form  #organicform  #heartbaby  #heartwarrior  #heartmonth  #series  #studio  #denver  #denverartist 
6 months post transplant today, every day is a celebration. Elliott gets stronger with more energy as the days pass. With being sedated for over 2 weeks, and immobile for almost 2 months is such an accomplishment for a toddler! Learning to walk with a Berlin machine attached, then re learning to walk without it while your body adjusts to a new healthy heart. Your the strongest, bravest little human.

#heart #heartwarrior #hearttransplant #blessed #myheartkid #becauseofadonor 
#chla #losangeles #recycleyourself #beadonor #greatful #hero #toddlerlife #tbt #throwbackthursday
6 months post transplant today, every day is a celebration. Elliott gets stronger with more energy as the days pass. With being sedated for over 2 weeks, and immobile for almost 2 months is such an accomplishment for a toddler! Learning to walk with a Berlin machine attached, then re learning to walk without it while your body adjusts to a new healthy heart. Your the strongest, bravest little human. #heart  #heartwarrior  #hearttransplant  #blessed  #myheartkid  #becauseofadonor  #chla  #losangeles  #recycleyourself  #beadonor  #greatful  #hero  #toddlerlife  #tbt  #throwbackthursday 
February is Congenital Heart Defect Awareness Month!❤💗❤️💗 .
Up until the day that Paisley was diagnosed with multiple heart defects [while still swimming around in utero], I didn't really think all that often about the heart or the vital role it plays. 
Since that day when I was told her special little heart was broken & could result in fatality either in utero or shortly after birth, my life was quickly consumed with all things HEART! 
I know more about the heart than I ever thought I would ..... and all the fellow heart warrior mamas said, 'Amen!' 😬 
Hours spent online researching, sleepless nights crying, countless cardiologist visits, echocardiograms, EKGs, hospital stays & last but most certainly not least - at 2.5 years old, undergoing a big open heart surgery to fix that special little broken heart. 
And because of that special little broken heart, I will forever have a broken place in my own heart for all the amazing heart warriors ... 💗
PS ... You can check out a few stats about CHD in my story
❤️ .
#chdawareness #heartwarrior  #prayingforpaisley
February is Congenital Heart Defect Awareness Month!❤💗❤️💗 . Up until the day that Paisley was diagnosed with multiple heart defects [while still swimming around in utero], I didn't really think all that often about the heart or the vital role it plays. Since that day when I was told her special little heart was broken & could result in fatality either in utero or shortly after birth, my life was quickly consumed with all things HEART! I know more about the heart than I ever thought I would ..... and all the fellow heart warrior mamas said, 'Amen!' 😬 Hours spent online researching, sleepless nights crying, countless cardiologist visits, echocardiograms, EKGs, hospital stays & last but most certainly not least - at 2.5 years old, undergoing a big open heart surgery to fix that special little broken heart. And because of that special little broken heart, I will forever have a broken place in my own heart for all the amazing heart warriors ... 💗 PS ... You can check out a few stats about CHD in my story ❤️ . #chdawareness  #heartwarrior  #prayingforpaisley 
Malcolm’s wish — to go to Disney World with his family — was officially “granted” last night at his Wish Party. We are headed to Orlando on Sunday morning for some VIP treatment, courtesy of Make A Wish. Fast pass holders, you’ve got nothing on us. Team Malcolm! #makeawish #makeawishoregon #hlhs #heartwarrior #survivor
Malcolm’s wish — to go to Disney World with his family — was officially “granted” last night at his Wish Party. We are headed to Orlando on Sunday morning for some VIP treatment, courtesy of Make A Wish. Fast pass holders, you’ve got nothing on us. Team Malcolm! #makeawish  #makeawishoregon  #hlhs  #heartwarrior  #survivor 
About me..Im a Christian senior (66). I have two adult sons. My daughter passed away in 1999 from complications of Spina Bifida. On October 31st I had open heart surgery to replace my defective aortic valve. Five weeks later, on December 3rd, I had a radical hysterectomy for endometrial cancer. The cancer was stage one and I didn't need chemo or radiation. I'm recovering from both surgeries and easing back into daily living. 
I've been crafting for twenty five years. Polymer clay is my favorite with felt craft being a close second. I blog about my crafting and life after the surgeries, along with personal dialogues. 
I have arthritis in every joint and mild muscular weakness in my arms and legs. My right leg being weaker. I use a walker for short distances outdoors and para transportation around town. I've adapted every area of my life to my physical limitations, including crafting. 
#polymerclaycraft #polymerclaycrafter #aorticstenosis #openheartsurgery #heartwarrior #endometrialcancer #uterinecancer #radicalhysterectomy #arthritis #behindthedisability #seniorcrafts #seniorcrafter
About me..Im a Christian senior (66). I have two adult sons. My daughter passed away in 1999 from complications of Spina Bifida. On October 31st I had open heart surgery to replace my defective aortic valve. Five weeks later, on December 3rd, I had a radical hysterectomy for endometrial cancer. The cancer was stage one and I didn't need chemo or radiation. I'm recovering from both surgeries and easing back into daily living. I've been crafting for twenty five years. Polymer clay is my favorite with felt craft being a close second. I blog about my crafting and life after the surgeries, along with personal dialogues. I have arthritis in every joint and mild muscular weakness in my arms and legs. My right leg being weaker. I use a walker for short distances outdoors and para transportation around town. I've adapted every area of my life to my physical limitations, including crafting. #polymerclaycraft  #polymerclaycrafter  #aorticstenosis  #openheartsurgery  #heartwarrior  #endometrialcancer  #uterinecancer  #radicalhysterectomy  #arthritis  #behindthedisability  #seniorcrafts  #seniorcrafter 
All she needs is gloves 😁 After Emma had stressful medical procedures as a baby, including open heart surgery, we were concerned that she would be scared of going to the doctor 👩‍⚕️ Luckily, it’s the total opposite. She has developed great coping skills & doesn’t mind the appointments 💛 She loves medical gloves so much that we have made it into a game. Before every docs visit, we guess what color gloves they will have. Yesterday, during an appointment @childrensla she added blue to her collection 💙#SwedestMoments
All she needs is gloves 😁 After Emma had stressful medical procedures as a baby, including open heart surgery, we were concerned that she would be scared of going to the doctor 👩‍⚕️ Luckily, it’s the total opposite. She has developed great coping skills & doesn’t mind the appointments 💛 She loves medical gloves so much that we have made it into a game. Before every docs visit, we guess what color gloves they will have. Yesterday, during an appointment @childrensla she added blue to her collection 💙#SwedestMoments 
U is for Unknown: Probably one of the hardest things about CHDs are the unknowns. What will your child's future look like, when will your child need another intervention? With new medical advances they are finding ways to make future interventions as non-invasive as possible. Sometimes eliminating the need for surgery. All children and adults living with a CHD should be followed regularly by cardiologist to determine their need and eligibility for such interventions. 
#februaryisheartmonth #heartawarenessmonth #chdawareness #chdaware #chd #chd1in100 #1in100 #awareness #conqueringchd #fact #heartwarrior #hearthero #unknown #future #moreinterventions #advances #cardiologists #cardiac #regularcheckups
U is for Unknown: Probably one of the hardest things about CHDs are the unknowns. What will your child's future look like, when will your child need another intervention? With new medical advances they are finding ways to make future interventions as non-invasive as possible. Sometimes eliminating the need for surgery. All children and adults living with a CHD should be followed regularly by cardiologist to determine their need and eligibility for such interventions. #februaryisheartmonth  #heartawarenessmonth  #chdawareness  #chdaware  #chd  #chd1in100  #1in100  #awareness  #conqueringchd  #fact  #heartwarrior  #hearthero  #unknown  #future  #moreinterventions  #advances  #cardiologists  #cardiac  #regularcheckups 
First day of school✨ @saudi_center #heartwarrior #downsyndrome #happinesssyndrome
Horse riding has been a passion of mine, as long as I can remember.⠀
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It has helped me to stay fit, I learned how to take care of another being, allowed me to build friendships and really taught me the meaning of responsibility.⠀
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Pop over to the blog to find out more about riding with CHD. (Link in bio)
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Have you ever tried horse riding and how did it work with your heart/medical condition?⠀
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📷 @littlepistolannie⠀
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#horseriding #horse #equestrian #ponies #pony  #horseridinglessons #horseridingholidays #horseridingschool #equine #hobby #passion ⠀
#heartwarrior #zipperclub #zipperclubmember #chdsurvivor #CHDaware #healthblogger #openheartsurgerysurvivor #openheartsurgery #heartsmart #pacemaker #heartdisease #heartsurgery #congenitalheartdefect #heartwarriors #congenitalheartdisease #pacemakers #chdaware #cardiacrehab #hearthealthy ⠀
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Horse riding has been a passion of mine, as long as I can remember.⠀ 🐴🐎⠀ It has helped me to stay fit, I learned how to take care of another being, allowed me to build friendships and really taught me the meaning of responsibility.⠀ ⠀ Pop over to the blog to find out more about riding with CHD. (Link in bio) ⠀ Have you ever tried horse riding and how did it work with your heart/medical condition?⠀ ⠀ 📷 @littlepistolannie⠀ ⠀ *⠀ *⠀ *⠀ ⠀ #horseriding  #horse  #equestrian  #ponies  #pony  #horseridinglessons  #horseridingholidays  #horseridingschool  #equine  #hobby  #passion  ⠀ #heartwarrior  #zipperclub  #zipperclubmember  #chdsurvivor  #CHDaware  #healthblogger  #openheartsurgerysurvivor  #openheartsurgery  #heartsmart  #pacemaker  #heartdisease  #heartsurgery  #congenitalheartdefect  #heartwarriors  #congenitalheartdisease  #pacemakers  #chdaware  #cardiacrehab  #hearthealthy  ⠀ ⠀
Yay! Today is the day! The #CORAgeous Instagram Auction kicks off this afternoon at 4pm eastern! Stayed tuned for sneak peeks! •
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I am getting DMs and questions about if it's too late to donate and the answer is, No! It's never too late to do a kind thing 💗☺️
If you have a business and want to contribute - just send a DM and I will get your product added!  And thank you!
💗Thanks again everybody for all the support!!! xoxo
📸/image by @thehouseofhays •
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#heartwarrior #heartmom #chdawareness #chdbaby #shopsmall #ittakesavillage #smallshoplife #bethegood #shopforacause
Yay! Today is the day! The #CORAgeous  Instagram Auction kicks off this afternoon at 4pm eastern! Stayed tuned for sneak peeks! • • I am getting DMs and questions about if it's too late to donate and the answer is, No! It's never too late to do a kind thing 💗☺️ If you have a business and want to contribute - just send a DM and I will get your product added! And thank you! 💗Thanks again everybody for all the support!!! xoxo 📸/image by @thehouseofhays • • • #heartwarrior  #heartmom  #chdawareness  #chdbaby  #shopsmall  #ittakesavillage  #smallshoplife  #bethegood  #shopforacause 
Who is this big boy?? Our little guy is getting so big. I love this boy to pieces! #EmmittLiam #timeslowdown #mommasboy #TGA #heartwarrior #6months
1 year ago- We kissed Charlie as they wheeled her to the OR and said, "We'll see you in a little bit." She was high as hell on whatever they gave her. She pretended her hospital bed was a parade float and was doing a better wave than Sandra Bullock in Ms. Congeniality and blowing kisses. I grabbed Stacey's number, one of the nurses walking back with her, so I could get updates as needed. 
We went to the waiting room and sat there. I didn't know what to feel. I didn't know what to expect. I went to the gym the night before and I stood over a bar loaded with a few hundred pounds and angrily picked it up and threw it back down, trying not to let it get to me (SN: it didn't work. I ended up giving in and crying on a box in the corner.). It was my out; but sitting in this waiting room for hours at a time... staring off into space and listening for the door. I felt the grey hairs on my head multiplying. 
What felt like days, was about 5 hours, I think. I don't know, but the doctors came in and said everything went well. I'm sitting there next to my dad, my jaw clenched trying to choke back tears. I'm a dude; we can't cry. The doctor says it'll be a bit until we can see Charlie so he heads out and I'm still in a twilight zone, my body tensed. I take a blink to process it and go give Amanda a hug, and sit there for a few minutes while my eyes leaked again. 
I had done research the past two days on her condition and I still had zero idea of what was actually going on. The fact that she was even alive for so long while her enlarged heart crushed her lungs is beyond anything i can comprehend. An hour or two pass by and they say she's ready. I still remember him saying, "look, when you go in there, that is not the Charlie you know. Just understand that this is temporary." Of course, me having had enough of my own surgeries I expected a zonked out kid, no big deal. 
We rounded the corner in the PICU and this is what greeted me. Tubes, wires, machines, a dozen lines going to one little port in her neck. Absolutely zero things can ever prepare you for walking into a room like that. I sat there and stared at her, wondering if my little girl was still in there somewhere.
1 year ago- We kissed Charlie as they wheeled her to the OR and said, "We'll see you in a little bit." She was high as hell on whatever they gave her. She pretended her hospital bed was a parade float and was doing a better wave than Sandra Bullock in Ms. Congeniality and blowing kisses. I grabbed Stacey's number, one of the nurses walking back with her, so I could get updates as needed. We went to the waiting room and sat there. I didn't know what to feel. I didn't know what to expect. I went to the gym the night before and I stood over a bar loaded with a few hundred pounds and angrily picked it up and threw it back down, trying not to let it get to me (SN: it didn't work. I ended up giving in and crying on a box in the corner.). It was my out; but sitting in this waiting room for hours at a time... staring off into space and listening for the door. I felt the grey hairs on my head multiplying. What felt like days, was about 5 hours, I think. I don't know, but the doctors came in and said everything went well. I'm sitting there next to my dad, my jaw clenched trying to choke back tears. I'm a dude; we can't cry. The doctor says it'll be a bit until we can see Charlie so he heads out and I'm still in a twilight zone, my body tensed. I take a blink to process it and go give Amanda a hug, and sit there for a few minutes while my eyes leaked again. I had done research the past two days on her condition and I still had zero idea of what was actually going on. The fact that she was even alive for so long while her enlarged heart crushed her lungs is beyond anything i can comprehend. An hour or two pass by and they say she's ready. I still remember him saying, "look, when you go in there, that is not the Charlie you know. Just understand that this is temporary." Of course, me having had enough of my own surgeries I expected a zonked out kid, no big deal. We rounded the corner in the PICU and this is what greeted me. Tubes, wires, machines, a dozen lines going to one little port in her neck. Absolutely zero things can ever prepare you for walking into a room like that. I sat there and stared at her, wondering if my little girl was still in there somewhere.
My precious prince is getting surgery today. Please pray for a safe and successful procedure as well as a quick and easy recovery ❤️💕 #heartwarrior #tof #tetralogyoffallot #gtube #gtubebaby #prolapse #fighter #smile #bubbles #realjoy @sir.norwood
This week my #heartwarrior had his first ski lessons and told me he didn't learn anything new. 😂😂 Can you tell he was excited tho?! He was so inspired by @shaunwhite and told me he is going to hug me after he wins a Gold medal for snowboarding just like @shaunwhite did. #chdawareness #threeopenheartsurgeries #tricuspidatresia #mywalkinghearts
Shine bright like a diamonddd - because every survivor was once a piece of coal who did well under pressure. So let this be your daily reminder that your beautiful, & unstoppable & fierce AF. 💎💙💃🏽 #heartdisease #fight #cantstopwontstop #survivor #heartwarrior #scasurvivor #chdwarrior
It is through love and understanding that will we have peace on earth, along with the courage required to stand up for these things. Much love 😘
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Created by me with love and light ✨💗✨.
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#peaceonearth #lovenothate #poweroflove #soulvoice_ig #shadow #shadowwork #wordstothewise #bodymindsoul #wisewords #havefaith #trustlife #couragetogrow #embodiment #consciousevolution #soulspeaking #darknesstolight #darkness #darknightofthesoul #innerwarrior #heartwarrior #martinlutherking #soulfullyspeaking #takeastand
It is through love and understanding that will we have peace on earth, along with the courage required to stand up for these things. Much love 😘 . . Created by me with love and light ✨💗✨. . . #peaceonearth  #lovenothate  #poweroflove  #soulvoice_ig  #shadow  #shadowwork  #wordstothewise  #bodymindsoul  #wisewords  #havefaith  #trustlife  #couragetogrow  #embodiment  #consciousevolution  #soulspeaking  #darknesstolight  #darkness  #darknightofthesoul  #innerwarrior  #heartwarrior  #martinlutherking  #soulfullyspeaking  #takeastand 
Fact:  Found mine in the ER while being checked for a broken arm.  #zipperclub #heartvalvereplacement #aorticaneurysm #heartwarrior #heartvalveawarenessday #chdawareness #heartdisease
Super brave she is 💕 #injections #heartdefects #heartwarrior #mummiesbravegirl 😍
BEING UNCONDITIONAL 💓✨.
This week Ive been through ALL the feels 🙈! After making a ‘semi-big’ mistake at work, that effected other people, I’ve spent the rest of the week recovering, restoring, finding solutions and FINALLY healing. Man, I’ve felt mortified, a failure, ready to quit, fearful, deep sadness and shame to clawing myself back from that old pain story to self-compassion, inner strength, trust, finding my integrity, standing my ground and forgiveness. 
And it’s made me think.
It’s easy to love ourselves when we’re doing great. When we’re practicing self-love and life is in the flow. 
But.......what about when we’re not? 
When we screw up, get fearful, clunky, messy, needy, grumpy ....what about then? 
I read a quote in #beinginheart last week that is so powerful. “To live a life of wholeheartedness, is to know...that even though we are imperfect & vulnerable & we feel fear, it does not change the #TRUTH that we are also brave and worthy of love and belonging”
We are ALL human. And when we’re imperfect (which we will be cause we’re human) we are still worthy of love. So can we show up for ourselves no matter what? 
Because real healing and growth comes only from a place of love and compassion. Nothing grows from fear and judgement. Only more pain.
So can we have an unconditional relationship with ourselves RIGHT NOW? At the height we are, weight we are and with our current burden of pain? Can we be unconditional with IT ALL?
HELL YES INDEED!! And I hope you say HELL YES too.
We are all worthy and enough RIGHT NOW.
Doing the best we can and learning on the way.
Love you all. I’m back from my hiding hole! Hello 🙌🏻.
And yes....I am missing the beach today! Hence the shot 🔥.
#unconditionallylove #beinginheart #compassionateliving #heartwarrior #standtall .
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#empoweredwomen #empoweredliving #raiseyourvibration #positivevibration #positivevibe #mindfulliving #mindbodyspirit #selfacceptance #selfworth #warriorspirit #forgeyourownpath #standinyourpower #truthbetold #wellbeingwarrior #wellnesswarrior #transformationcoach #heartopening #abundancemindset #abundanceoflove #freedomliving #conciousliving
#trusttheprocess #loveyourselffirst #openyourheart
BEING UNCONDITIONAL 💓✨. This week Ive been through ALL the feels 🙈! After making a ‘semi-big’ mistake at work, that effected other people, I’ve spent the rest of the week recovering, restoring, finding solutions and FINALLY healing. Man, I’ve felt mortified, a failure, ready to quit, fearful, deep sadness and shame to clawing myself back from that old pain story to self-compassion, inner strength, trust, finding my integrity, standing my ground and forgiveness. And it’s made me think. It’s easy to love ourselves when we’re doing great. When we’re practicing self-love and life is in the flow. But.......what about when we’re not? When we screw up, get fearful, clunky, messy, needy, grumpy ....what about then? I read a quote in #beinginheart  last week that is so powerful. “To live a life of wholeheartedness, is to know...that even though we are imperfect & vulnerable & we feel fear, it does not change the #TRUTH  that we are also brave and worthy of love and belonging” We are ALL human. And when we’re imperfect (which we will be cause we’re human) we are still worthy of love. So can we show up for ourselves no matter what? Because real healing and growth comes only from a place of love and compassion. Nothing grows from fear and judgement. Only more pain. So can we have an unconditional relationship with ourselves RIGHT NOW? At the height we are, weight we are and with our current burden of pain? Can we be unconditional with IT ALL? HELL YES INDEED!! And I hope you say HELL YES too. We are all worthy and enough RIGHT NOW. Doing the best we can and learning on the way. Love you all. I’m back from my hiding hole! Hello 🙌🏻. And yes....I am missing the beach today! Hence the shot 🔥. #unconditionallylove  #beinginheart  #compassionateliving  #heartwarrior  #standtall  . . . . . . . . #empoweredwomen  #empoweredliving  #raiseyourvibration  #positivevibration  #positivevibe  #mindfulliving  #mindbodyspirit  #selfacceptance  #selfworth  #warriorspirit  #forgeyourownpath  #standinyourpower  #truthbetold  #wellbeingwarrior  #wellnesswarrior  #transformationcoach  #heartopening  #abundancemindset  #abundanceoflove  #freedomliving  #conciousliving  #trusttheprocess  #loveyourselffirst  #openyourheart 
My husband is super talented. He is also the sweetest dad. When he talks about how Finn is his hero - I melt inside. He did this piece in honor of our son who has #tga 💔➡️❤️ I love you, @matthewkelly8793 and I love you, Finn! Go follow my husband, he does some pretty cool art too and is always open for commissions. He loves doing #heartwarrior inspired pieces. #zipperclub #heartmonth #chd #chdawareness #heart #heartbeat #openheartsurgery #baby #portrait #babyportrait #artist #artistsoninstagram #illustration #colorpencil
My husband is super talented. He is also the sweetest dad. When he talks about how Finn is his hero - I melt inside. He did this piece in honor of our son who has #tga  💔➡️❤️ I love you, @matthewkelly8793 and I love you, Finn! Go follow my husband, he does some pretty cool art too and is always open for commissions. He loves doing #heartwarrior  inspired pieces. #zipperclub  #heartmonth  #chd  #chdawareness  #heart  #heartbeat  #openheartsurgery  #baby  #portrait  #babyportrait  #artist  #artistsoninstagram  #illustration  #colorpencil 
I was super grumpy this morning. An early start (5.50 is not ok RoRo!), lots of work ahead of me, tired from a long day in London yesterday. 
But then these two 💕💕💕💕 I think RoRo has really learnt to crawl just so she can escape her sister's over enthusiastic cuddles and hair clips 🤣

#t21 #downssyndrome #downsyndrome #dsdn #homieswithextrachromies #nothingdownaboutdowns #dontbesorry #lovedoesntcountchromosomes #tubiebaby #fifteenmonths #heartwarrior #heartbaby #luckyfew #siblinglove
I was super grumpy this morning. An early start (5.50 is not ok RoRo!), lots of work ahead of me, tired from a long day in London yesterday. But then these two 💕💕💕💕 I think RoRo has really learnt to crawl just so she can escape her sister's over enthusiastic cuddles and hair clips 🤣 #t21  #downssyndrome  #downsyndrome  #dsdn  #homieswithextrachromies  #nothingdownaboutdowns  #dontbesorry  #lovedoesntcountchromosomes  #tubiebaby  #fifteenmonths  #heartwarrior  #heartbaby  #luckyfew  #siblinglove 
Selma från Göteborg är vår "Heart warrior of the day" 22 februari 2018. Selma är född med hjärtfelen ASD, VSD, förträngning av lungartären och öppetstående ductus. Hon är idag 2 och det är bara ett halvår sen hon opererades. Redan en vecka efter operationen blev hon utskriven. Selmas föräldrar var chockade över att det gått så fort och att hon återhämtade sig så snabbt. Selma är idag pigg och älskar att klättra, spela boll och sjunga. Läs mer om Selma via länk i bio. #heartwarrior #frånhjärtatillhjärta #allabarnhjärtansmånad #hjärtebarn #hjärtfel #barnhjärta #hjärtebarnsfonden #hjärtlungfonden #hjärtochlungfonden #1in100 #chd #chdawareness #februari #heartwarrioroftheday
Selma från Göteborg är vår "Heart warrior of the day" 22 februari 2018. Selma är född med hjärtfelen ASD, VSD, förträngning av lungartären och öppetstående ductus. Hon är idag 2 och det är bara ett halvår sen hon opererades. Redan en vecka efter operationen blev hon utskriven. Selmas föräldrar var chockade över att det gått så fort och att hon återhämtade sig så snabbt. Selma är idag pigg och älskar att klättra, spela boll och sjunga. Läs mer om Selma via länk i bio. #heartwarrior  #frånhjärtatillhjärta  #allabarnhjärtansmånad  #hjärtebarn  #hjärtfel  #barnhjärta  #hjärtebarnsfonden  #hjärtlungfonden  #hjärtochlungfonden  #1in100  #chd  #chdawareness  #februari  #heartwarrioroftheday 
what. a. day. | fletcher is doing awesome in recovery.  he is already off of the ventilator + breathing tube is out 👏🏼 we are so proud of him and the big day he had ❤️
what. a. day. | fletcher is doing awesome in recovery. he is already off of the ventilator + breathing tube is out 👏🏼 we are so proud of him and the big day he had ❤️
Day 21 #heartmonth challenge: Strength. We are thankful everyday for Tank's tremendous amount of strength. Over the past year or so we have discovered just how strong we can be as parents, as a family and for ourselves. This road isn't the easiest, but it is guaranteed to make you stronger.
Day 21 #heartmonth  challenge: Strength. We are thankful everyday for Tank's tremendous amount of strength. Over the past year or so we have discovered just how strong we can be as parents, as a family and for ourselves. This road isn't the easiest, but it is guaranteed to make you stronger.
😍💛💙 just a bunch of cute videos of Vera and I! Lila wouldn't join us for any videos so I danced with Vera trying to make her smile lol in hopes she would laugh, still working on that! 😉 
#verarose #heartwarrior #morealikethandifferent #6monthsold #mommysgirl #t21rocks #downsyndromeawareness #theluckyfew #shouttheirworth #tubiebaby #downrightperfect
In February 2011, something unimaginable happened in Southern California, it began to pour pellets of hail... what are the odds of that?! But for my family, this was a day of victory, a day to celebrate something we weren’t sure would happen. We had made it through the first year... we made it through countless doctors appointments, open heart surgery, panic attacks, sleepless nights, sleepless days, anxiety, worry, despair... we made it though. We being Mom, Dad and our first born child. That first year left a lot of questions unanswered, uncertainty... yet we made it though. We were told 17months prior to this day very grim odds... one might even go so far to say our odds of celebrating our baby’s first birthday were as unimaginable as a hail storm in Southern California😉
by Life of Mom Co-Founder, @lucyriles 
#meanttobeamom #newmom #heartmom #heartwarrior #chdawarenessmonth #chdawareness #babysfirstyear #wemadeit #havehope #hope #holdonpainends #lifeisgood #lifeisbeautiful #lifeofmom
In February 2011, something unimaginable happened in Southern California, it began to pour pellets of hail... what are the odds of that?! But for my family, this was a day of victory, a day to celebrate something we weren’t sure would happen. We had made it through the first year... we made it through countless doctors appointments, open heart surgery, panic attacks, sleepless nights, sleepless days, anxiety, worry, despair... we made it though. We being Mom, Dad and our first born child. That first year left a lot of questions unanswered, uncertainty... yet we made it though. We were told 17months prior to this day very grim odds... one might even go so far to say our odds of celebrating our baby’s first birthday were as unimaginable as a hail storm in Southern California😉 by Life of Mom Co-Founder, @lucyriles #meanttobeamom  #newmom  #heartmom  #heartwarrior  #chdawarenessmonth  #chdawareness  #babysfirstyear  #wemadeit  #havehope  #hope  #holdonpainends  #lifeisgood  #lifeisbeautiful  #lifeofmom 
Thank you @this.little.heart.of.mine
I hope it was ok that I used a few extra letters 😊 💙❤💙 Regrann from @this.little.heart.of.mine -  A is for Awareness: CHDs occur in approximately 1 out of every 100 live births. Raising awareness is important, to help fund research and medical care for those living with a CHD. There are far fewer resources allocated to adult CHD patients than other cardiac patients, meaning longer waiting periods for clinic visits and surgical interventions. This can cause stress, added risks and sometimes death. Help spread CHD awareness!
#AidansHeart❤ #HLHS #HypoPlasticLeftHeartSyndrome #SpreadTheWord #RaiseAwareness #HeartDefect #CHD #HeartDisorder 
#februaryisheartmonth #heartawarenessmonth #chdawareness #chdaware #chd #awareness #conqueringchd #fact #heartwarrior #hearthero
Thank you @this.little.heart.of.mine I hope it was ok that I used a few extra letters 😊 💙❤💙 Regrann from @this.little.heart.of.mine - A is for Awareness: CHDs occur in approximately 1 out of every 100 live births. Raising awareness is important, to help fund research and medical care for those living with a CHD. There are far fewer resources allocated to adult CHD patients than other cardiac patients, meaning longer waiting periods for clinic visits and surgical interventions. This can cause stress, added risks and sometimes death. Help spread CHD awareness! #AidansHeart ❤ #HLHS  #HypoPlasticLeftHeartSyndrome  #SpreadTheWord  #RaiseAwareness  #HeartDefect  #CHD  #HeartDisorder  #februaryisheartmonth  #heartawarenessmonth  #chdawareness  #chdaware  #chd  #awareness  #conqueringchd  #fact  #heartwarrior  #hearthero 
Rawr means I love you in dinosaur 🐊 (why isn't there a dino emoji yet?! I am not sure if I tied this headwrap right but how adorable is Vera rockin her designer genes 💛💙, those dinos and that headwrap?! 😍

@babyladybows made that beautiful headwrap! She has so many different types of bows/patterns/textures to choose from! 
Use code BLBFRIENDS15 for 15% OFF and mention Vera sent ya! 😁

#verarose #heartwarrior #vsdbaby #tubiebaby #downrightperfect #inclusion #morealikethandifferent #6monthsold #babygirl #babyblueeyes #shouttheirworth #gerberbaby #theablefables #ador_able #weareallable #t21rocks #brandrep #babyladybows #bowsfordays
Rawr means I love you in dinosaur 🐊 (why isn't there a dino emoji yet?! I am not sure if I tied this headwrap right but how adorable is Vera rockin her designer genes 💛💙, those dinos and that headwrap?! 😍 @babyladybows made that beautiful headwrap! She has so many different types of bows/patterns/textures to choose from! Use code BLBFRIENDS15 for 15% OFF and mention Vera sent ya! 😁 #verarose  #heartwarrior  #vsdbaby  #tubiebaby  #downrightperfect  #inclusion  #morealikethandifferent  #6monthsold  #babygirl  #babyblueeyes  #shouttheirworth  #gerberbaby  #theablefables  #ador_able  #weareallable  #t21rocks  #brandrep  #babyladybows  #bowsfordays