Some people ask why I eat the way I eat. I used to just think that I was picky. I was teased about it because I didn't like certain things. Looking back now, I have a clear picture why I don't have the same tastes as everyone else. My body was telling me in a code I didn't understand.
My health journey really began about 2.5 years ago when I found out I have #fibromyalgia . I used to deal with chronic pains, allergies, #PCOS , daily headaches, weight issues, body image, bouts of depression and more as early as I can remember around the age of 10.
I have tried every diet the doctors have recommended to the fad diets that everyone is trying out at that moment. I did allergy shots weekly. I lived on ibuprofen almost daily. I was UNHAPPY and UNHEALTHY. What I ate was causing inflammation which led to chronic disease. I had had enough!
I have learned that what you put in your body has everything to do with how you feel and how you survive on a daily basis. For me food is my healer and it will continue to be my healer the rest of my life. Food is AMAZING! Am I perfect? NO! I eat gluten, dairy, meat, consume alcohol, etc. Eating a majority of a #plantbased diet works for me. For me it really is about moderation of what I consume or limits of once a month or once a week. I've learned my body's reactions so well that I know if I go overboard I will be in pain for a few days before my body can detox and recover from those toxins I put into my body.
The beauty of all of this is that I've become happy with who I am through my journey and most importantly how I feel. What I have learned and having the voice and ability to share with my family and friends is amazing! I've found my passion and my path in life and that is to help people who are stuck like I was feeling like you are supposed to be miserable. Guess what?! You aren't supposed to feel miserable or feel pain everyday! This started as a food post and has ended in a different way. I hope some of you find that if you're feeling stuck, you're not alone.
IT’S. NOT. YOUR. FAULT... I looked up the word “unreliable” in the thesaurus & the following words were listed as synonyms:
Yikes, huh? That’s quite the list of nefarious sounding adjectives!
At some point in time or another, when you live with a chronic illness, you will feel like you’re all of these words... and then some.
I’m here to remind you that it’s your HEALTH that can be capricious, fickle or weak, but it’s NOT YOU.
Let me repeat that:
IT’S NOT YOU!
It’s not who you are as a person.
Feeling/being unreliable is one of the unfortunate outcomes of having a chronic illness.
This may seem like semantics to some, but there is a huge difference between YOU and your HEALTH (and the life consequences of having bad health).
It’s not something that we choose.
It’s not something that we want.
We are not jerks... we are just unwell.
CHOOSING to be an unreliable dick is very different to having a health flare & being forced to cancel plans or “flake” on a responsibility.
Personally, I’ve spent my entire life feeling unreliable... and I hate it.
When my health isn’t good, I am no use to anyone, and it’s feels bloody awful.
I absolutely LOATHE to let anyone down, but unfortunately, it is almost completely out of my control and the unreliable nature of my disease causes that to happen much more than I’d like.
And when it happens, it can be very difficult to remind myself that it’s not an indictment on me as a person.
Things get extra tricky when you have to then convince others of this fact as well.
How many of you have had friends take it personally when you’ve been repeatedly forgetful, had to rearrange plans/take a rain check or have arrived late (or not at all, because you were still sleeping).
CONTINUED IN COMMENTS BELOW 👇
Everyday you meet people, and you have no idea who they are, what they have been through, and they don’t know if you’ll stick around for their future issues. Be gentle with people. They could have been abused as a child, or like me and medically fragile as one, maybe they didn’t eat dinner as a kid, and you never know what they are enduring now. This is especially true with social media, I have told people the truth which is you only see what I want you too. My life could be crashing and I could post a sunset with a quote and you’d think everything is fine. Social media may do us more injustice in this manner. Technology is the same, you used to have to call someone on their home phone. They’d have to be in a place to space you to whether it be physically or emotionally. The person calling could tell how you feel, they could understand your tone, or if you seemed aloof. Now if you aren’t feeling good you don’t have to answer because you know who is calling, you can lie and say your busy, or people just text which you can pretend to see or answer through the tears! We are so able to lack the ability to be gentle in society and with ourselves! Just remember you don’t know anything about anyone but yourself! Reserve the judgements for God! ✨🌹💕 #god#judgements#thursday#quotestoliveby#quotes#begentle#gentle#love#loveyourself#you#youreamazing#amazing#life#chronicillness#spoonie#hearttransplant#livertransplant#lymphedema#diabetes#fibromyalgia#hope#worldlove#world
I love this quote from @dwaynej0hnson. When choosing what to eat or deciding to exercise, it's not with the idea of reaching a goal of perfection. Instead I view my "diet" and #exercise routine as how I want to live. I want to be as healthy as I can, despite my #chronicillnesses . By consistently trying to move my body and becoming aware of what I'm putting in my mouth I am achieving greatness in regards to my body with #weightloss and how I physically feel. 💋
What are you currently working on being more consistent of in your life? 💋
BTW if you need #motivation to #makepainyourbitch , check out my #eBook "Make Pain Your Bitch " available at TheDisabledDiva.com or see link in bio.
Getting a Lyme diagnosis after decades of illness is the final piece in the health puzzle, and the most important breakthrough since learning about the mould sensitivity so common in chronic illness patients. Much more useful than the rest of my "You're system's a mess but we dont know what causes it" labels.
After 2 months on a waiting list, I saw one of the few Lyme literate doctors yesterday. He was helpful but realistic.
Long term patients have long term recoveries and heavy herx (die off) reactions. The plan is to start slowly with herbs, then add antibiotics, and continue all the detox treatments. GAME ON! Those spirochaetes are toast.
I have written a little on the politics of Lyme, with some useful links, on the blog. More to come soon.
Because #wedevelopfromthenegatives negatives
Because I’m tired of the stigma... “You look great! It’s all in your head”... It’s actually all in my brain, second to that it’s over active nerves constantly firing. This is a 9/10 Pain day. These are the moments where I beg for death to take me because it hurts so much to even breathe! But then I remind myself... #itsonlypain And I pray it only takes me from my life for a short time. Everyone has suggestions... Why don’t you try, CBD OIL ✔️ What don’t you try pineapple ✔️ fruits and vegetables diet ✔️why dont you try Tumeric ✔️ This flare was caused by sitting in a class at the Chronic Pain centre for 2 hours. It could have also been caused by something I ate or did two weeks ago! This is #fibromyalgia ! This is a #fibroflare
Today I’ve lost the battle but tomorrow I will win the war!
My creepy face!
Most people see this version of me. I'm always laughing, joking and being busy.
What they don't see is when I'm behind closed doors is the real me. I literally was on my hands and knees, head buried into the kitchen floor bawling my eyes out cause the pain is so intense whilst Glenn cooked tea. They don't see the days where I can't even brush my hair, or feed myself or even hold Drayven. They don't see me in bed recovering for days or me pushing myself through pain when shopping or pushing pram. They also don't see how much strain I put on my family. They don't see how much I fight not trying to end it all so I don't hurt anymore.
I try my hardest to not let it affect everyone else, and it's heartbreaking when your kids understand you are in pain and try to help. I don't want them to have to feel like they need to care for me. I explained to Glenn that nothing I take helps, heats okay till it gets cooler, doing anything or not doing anything makes it worse.
I am not a wimp. The amount of pain I'm in would have a normal person in hospital. I just have days where I literally feel like I'm dying. I'm probably gonna get worse, but guess the whole point of this is that I'll fight as long as possible, if not for me but for my loved ones.
#truthbomb I haven’t used a prescription pill for my #fibromyalgia or #asthma in close to 8ish years. Because A - I’m a cheapass girl 💸 B - who wants to worry about all those side effects 🤔 C - I prefer natural options at all costs! HOWEVER, today I had a phone appointment with my doctor to discuss my asthma which after summer last year (crazy forest fires), a gnarly infection this winter that has left with me a cough that’s still intense & Oregon bounding into spring time has been managed pretty shitty. He convinced me we needed to change up the game and take a more intense approach to get it back under control. This was a hard pill to swallow, figuratively not literally (they’re lil baby guys 😂). But I’m SO EXCITED to see what my easy, fun, vegan detox & cleanse have in store for my next month. I’m pretty sure these bad boys won’t be staying in the cabinet for long! 💊🚫
In 24 hours I could officially be in training for a job with extremely exciting career potential, eeeeee. That or I’ll be upset and disappointed in my body and/or mind (#spoonieproblems )...this ‘working interview’ tomorrow is the first time I’ll be working in the same physical place as my coworkers since this health debacle got totally debilitating in late 2015.
I really have no idea how my bod’s gonna handle all the interaction and movement and whatnot. I’m optimistic though. (Shocker!) How I feel on Friday and Saturday will be the big tests, as recovering from movement is much worse than the actual activity for me now — there’s so much to distract from the pain when I’m going/doing/talking/verbing. Vee shall see, eh? Please send that healthy juju my way ❤️❤️
📸: I love Trader Joe’s. ‘Twas a tasty tasty linner tonight.
I was still super tired this morning and had to seriously push myself to get my workout done. It was an hour workout and I knew my body just didn’t have enough to get through the whole thing. So I gave it 💯 for 2 rounds and didn’t do the third. I’m bummed that I wasn’t able to do the whole thing but sometimes you just have to listen to your body 💕
Oh, Mulher Maravilha tira sua roupa de heroína, não importa que as feridas não estão visíveis, sua batalha não foi contra um vilão humano, mas sim contra a dor crônica. Uma luta diária, persistente e avassaladora, um dia dói ali e queima aqui, mas no outro, ah no outro dia dói, queima e formiga. Não, as feridas não ficam evidentes, elas ficam aprisionadas pulsando, aguardando um alívio que, pode demorar horas, dias, semanas, meses ou anos. Meu super poder é vencer todos os meus dias como portadora da #fibromialgia . Sou sim venceDORa!!! #eutenhofibromialgia#fibromyalgia#fibromialgiaeutenho
‘You’re so lucky you don’t have to go to work.’ Anyone you know and love can say this, without much thought. But here I am with the regular dilemma, knowing it’s such a beautiful day outside (and you kinda wanna go somewhere lovely like the beach) but you know it’s a 30min drive and you’ll likely struggle and crash and burn hard and have heaps of pain if u do it. But naw... it’s nice to sit here and imagine it 😂 It’s funny, some people out there think I am *lucky* because I ‘don’t have to work’ (ignoring the financial stress of being on a seriously low benefit) and that I must have all this free time to have fun and relax whilst rolling in a pile of free money. But really most of the time I’m stuck inside or working my butt off organising appointments and getting meds and doing housework, trying to get better with specialists. All of which is super exhausting and not fun. I do try to get out in short periods with exercising and walks(which I do daily). But driving somewhere or leaving the home area to do something energy consuming is scary AF because making it back home might be hard 😕But I’m still super grateful I live in a country where ppl with disabilities are supported (to a degree) unlike in some other places in the world. So I am LUCKY I suppose to have this temporary time and support to get better. But it’s not a life you’d wanna trade with, trust me 😂😂😂you’d probably go mental!! 😕😕❤️❤️❤️🙏🙏🙏 #spoonielife#chronicfatigue#chronicpain#thursdaythoughts#sunnyday#fibromyalgia#myofascialrelease#sjogrenssyndrome