"He's such a special little Down Syndrome boy."
Seems like a nice compliment from someone, right? I've heard many people use these same words, in this same order to compliment my son. They mean well. They're genuine. Although, there is something I have to admit: these very words, in this same order make me CRINGE. Like nails on a chalkboard. I don't mean to come across as a jerk when I say this, but as the mother of this "special Down Syndrome boy", I want everyone to know that he is a PERSON. Please don't refer to him as a Down Syndrome boy or a Down Syndrome person. He's a person, first. He's a person, who has Down Syndrome. It's not what he IS, it's what he HAS. As his advocate, I fight for his individuality. When you use these words in that order, whether you realize it or not, it feels like a slap in the face to me and everyone else fighting this battle. As much as this bothers me, I don't get upset when it happens. People are usually extremely nice when they approach me to talk about Carter. I just haven't found a nice way to correct people. Every time I go over it in my head, it doesn’t quite come across the way I want it to. When I spread awareness, my intentions are to be helpful, not make people feel bad. I just want people to know that there's a better way to say that without being offensive. Scrutinize your words carefully before unintentionally making a back handed compliment. I understand it's an awkward conversation. Almost as if you don't know what to say or how to say it. I'm not one to get offended easily. When I see your intentions are pure, I don't feel the need to be upset. I just want people to know my point of view as a parent. I'm open to conversation. I'm open to the topic of Down Syndrome. I love spreading awareness and educating people on the subject. But, I want people to keep an open mind to the fact that my son is a person first. Made perfectly in God's image. ❤️
"I will give thanks to You, for I am fearfully and wonderfully made; Wonderful are Your works, and my soul knows it very well." Psalm 139:14
I will keep it simple.
PM, please accept my apology in advance🙆♀️🙌💃💃💜💛..i know you didnt see this coming.
@pastormildred, remember the day you sent for me...let me confess🙈🙈now.....i felt special, excited and humbled.
Small me🙈with a Big God always working behind the scene.
Having you minister to our needs at the foundation and calling to find out how we are fairing beats my imagination as you have plenty plenty children, meetings and all to attend to....thank you for this and many more and may your strength be renewed daily.
Your ministration has impacted my personal life in numerous ways. I can't but mention you sir @kingsleypst, making a difference is as easy as a..b..c...for you , and i thank God for daily victories in your life and ministry.
I see butterflies in our garden anytime i look at the gifts, i see the smiles on our children's faces....maybe i see rainbows too.....as dreams do come true...because i have since deleted the ipads from the list of items needed to support our children with education, learning support and therapy ever since they were delivered to us. Thank you for letting God use you over and over again, thank you @arinze_jd and your selfless team. Indeed, this partnership has opened more doors of partnership for us. God bless everyone involved in this project in Jesus name.
I have controlled myself to keep it short and simple as promised.
NB: Swipe ⬅️to see excitement on our representative, little miss Mo
when i was pregnant with Reed and we found out he had Down Syndrome my reaction was just "oh, ok". i did not feel like it was a big deal.
but of course i was worried (i was not worried about his health, that came later on when i started reading about DS and the accompanying health issues :) but i was certainly worried that people would not accept him.
i was not worried for now, i knew as a baby and toddler that everyone would love and adore him,
i mean who doesn't love babies?
i was worried for when he gets older, like when he starts going to school, especially the teenage years.
what if nobody wants to be friends with him, or no girl has a crush on him?
and man did i bawl at that.
but then i realized, i would worry about these very same things anyway even if my child did not have Down Syndrome.
so i calmed down.
we'll just deal with that when we get there.
right now we'll just continue enjoying toddlerhood, and all that stubborness that comes with it :) #inclusionmatters#countmein#choosetobekind#downsyndromeadvocacy#DSawareness#reedsworld#downsyndromelove#igtoddlers
Sixteen month old #Colt is a curious #toddler who loves music! Whenever he hears it, he follows the music to shake and dance. Life of the party! His developmental report was completed in June when he was 13 months old. At that time, Colt could raise his head when lying on his stomach, turn over by himself, and grasp his feet to play. He loved to tease people. He will stick is tongue out, make faces and laugh. When he’s excited he says things like, “Ah ba da!” He babbles in response to people. When he goes outside, he is very curious about his surroundings. He engages people with eye contact, and he can nod his head for “yes.” He is strong-willed, and if he doesn’t like what you’re doing, he lets you know! Colt is closest to his caretaker. He enjoys colorful toys that make sounds. Colt was diagnosed with #Downsyndrome , and he has had surgery to correct an #atrialseptaldefect . http://reecesrainbow.org/121916/colt #downsyndromeawarenessmonth#downsyndromeadvocacy#downsyndromerocks#theluckyfew#chdawarenessmonth#chdawarenessphotochallenge#babyboy