Even after starting a new course of steroids, I experienced some sudden severe pain, so off to the ER I went. This was scary to me bc pain levels come down as inflammation goes down, not up. Either I was still inflamed or there were complications 😖 I guess the doctor had a similar concern bc I was given ‘STAT’ status. Yeah it gets results quicker but STAT status isn’t exactly a good thing. Happily I can report no perforation, obstruction, adhesions etc. The CT showed severe #pancolitis . But this was a relief bc I really feared that pain was something more serious and it wasn’t so yay! 🎉 On another note, I was highly amused at my ‘Ticket to Ride’ given to me for my ride to CT. #Beatles 😀 Also, I’m home already and resting with the help of some pain control. Now to get the steroids to kick in and get this flare under control! #crohnsdisease#crohns#crohnscolitis#ibd
Had a little scare with my health today... Yesterday I did my bimonthly labs (6th week), and today my primary called me with big concerns.
My numbers were bad/low/out of range last time, with my WBC being down to a 2 something...She was very worried as my RBC count has dropped even lower, my anemia has become the worst ever, and my WBC has dropped down to a 1. Kind of scary. She was saying I might need a blood/iron IV transfusion, but due to the thalassemia that makes things tricky. She wanted to refer me to a hematologist asap, and talk to my specialist. She was also concerned about me having some bone marrow problems due to the numbers showing & drugs i'm taking. I'm just over here wondering how my immune system is holding up with such a LOW white blood cell count! ...She spoke with me directly on this call. I am so thankful for my doctors. She said she would call my specialist. (Also thankful, because it's much better for my doctors to be communicating about my care instead of asking me to call, like some do...) ...
She called me back within 10 minutes, having spoken to my GI, who didn't share all the same concerns. The GOOD news, is that he agreed it's best to reduce my 6mp dosage from 75mg per day to 50mg. He said these symptoms are all just a sign that the meds are working = suppressing my immune system, and he didn't think a trip to the hematologist was necessary. (Yay for saving $!) lol....About 10 minutes later my specialist called to say about the same thing. They just want me to get labs done every week for a little while to make sure things get back to normal. I'm SO thankful for having good doctors and a good relationship with them. If only they knew.