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A good friend once told me, โ€œdonโ€™t let anyone live in your head rent free.โ€ โŒ๐Ÿšช๐Ÿ โœจ
#quotestoliveby #namaste #myhouse
A good friend once told me, โ€œdonโ€™t let anyone live in your head rent free.โ€ โŒ๐Ÿšช๐Ÿ โœจ #quotestoliveby  #namaste  #myhouse 
โ˜€๏ธSTAMFORD SOCIAL MEET UP!โ˜€๏ธ
Sunday 4th March 2018 from 11am - 1pm, everyoneโ€™s welcome to come along to see us at The London Inn. Itโ€™s a great chance to meet some of the Network Volunteers & other people connected to IBD. #stamford #ibd #crohnsandcolitisuk #social #lincolnshire
โ˜€๏ธSTAMFORD SOCIAL MEET UP!โ˜€๏ธ Sunday 4th March 2018 from 11am - 1pm, everyoneโ€™s welcome to come along to see us at The London Inn. Itโ€™s a great chance to meet some of the Network Volunteers & other people connected to IBD. #stamford  #ibd  #crohnsandcolitisuk  #social  #lincolnshire 
Trying to read the @crohnsandcolitisuk Connect magazine but I can feel a pair of eyes on me...
Trying to read the @crohnsandcolitisuk Connect magazine but I can feel a pair of eyes on me...
My Connect Magazine came today!
Lately, due to my current management plan Iโ€™ve been forgetting about the troublesome times I went through and that there are thousands of us out there fighting the stigma, for visibility and for more support. So getting this today made me feel lucky. Not only because I feel fairly well for the first time in nearly 8 years. But because Iโ€™m part of a group of people who are incredible, inspiring and invisible illness soldiers. It doesnโ€™t dictate our lives, but itโ€™s still a big part of them and nobody should go through it alone. This little magazine is a fantastic little lifeline and inspires me to spread the word and keep fighting for all us IBD warriors ๐Ÿ’œ
. . . 
#IBD #crohnsandcolitis #crohnsandcolitisUK #invisibleillness #idontwanttobemanagedanymore #fight #lifeline #inspire #ambitious #compassionate #strongertogether #charitysupport #letsgetvisible #walkit #purpleheart #purplewings #connect
My Connect Magazine came today! Lately, due to my current management plan Iโ€™ve been forgetting about the troublesome times I went through and that there are thousands of us out there fighting the stigma, for visibility and for more support. So getting this today made me feel lucky. Not only because I feel fairly well for the first time in nearly 8 years. But because Iโ€™m part of a group of people who are incredible, inspiring and invisible illness soldiers. It doesnโ€™t dictate our lives, but itโ€™s still a big part of them and nobody should go through it alone. This little magazine is a fantastic little lifeline and inspires me to spread the word and keep fighting for all us IBD warriors ๐Ÿ’œ . . . #IBD  #crohnsandcolitis  #crohnsandcolitisUK  #invisibleillness  #idontwanttobemanagedanymore  #fight  #lifeline  #inspire  #ambitious  #compassionate  #strongertogether  #charitysupport  #letsgetvisible  #walkit  #purpleheart  #purplewings  #connect 
When you're having a bad flare up so are using the lastest Crohns and Colitis magazine for reading matter. #irony ๐Ÿค”

#crohns #crohnsdisease #colitis #crohnsandcolitisuk #crohnsandcolitis #crohns&colitis #IBD #connect
Canโ€™t wait to sign up for #WalkIt at Leazes Park, Newcastle for @crohnsandcolitisuk ๐Ÿ’œ Iโ€™ve suffered with colitis for 3 years now and its a constant struggle. More funding is needed & awareness needs to be raised about not just Colitis but IBD in general #crohnsandcolitisuk #ibdsucks #ibdwarrior
Canโ€™t wait to sign up for #WalkIt  at Leazes Park, Newcastle for @crohnsandcolitisuk ๐Ÿ’œ Iโ€™ve suffered with colitis for 3 years now and its a constant struggle. More funding is needed & awareness needs to be raised about not just Colitis but IBD in general #crohnsandcolitisuk  #ibdsucks  #ibdwarrior 
Leg day..... 200kg Leg press as a warm up.
I love seeing progress ๐Ÿ‘Œ๐Ÿ’ช๐Ÿ’™
Leg day..... 200kg Leg press as a warm up. I love seeing progress ๐Ÿ‘Œ๐Ÿ’ช๐Ÿ’™
Weโ€™re not here to be perfect, weโ€™re here to practice || I look at this and immediately think, terrible hip levelling, poor shoulder alignment, locked out supporting knee. And then I remember that this is the first time Iโ€™ve done dancers pose since my abdominal surgery in November and I was in an amazing place laughing having with friends and the fact I can do even a poorly aligned version is a bloody miracle! .
๐ŸŒฑ
Yoga is not about create a perfect pose, itโ€™s about being in your body, accepting where you are, knowing that wherever that may be is perfect and the fact you are moving is often enough of an achievement. On social media we often see the โ€˜perfectโ€™ aesthetically pleasing pose and it can make us feel insufficient, but the reality for most of us is a) far from that, and b) there is no end point. It doesnโ€™t really matter what anyone else can do. Accept where you are and enjoy the process ๐Ÿง˜๐Ÿปโ€โ™€๏ธ #youdontdoyogayoufeelyoga .
.
๐Ÿ“ธ @lifeisjustastorywritten with encouragement from the wonderful @angelpixielove
Weโ€™re not here to be perfect, weโ€™re here to practice || I look at this and immediately think, terrible hip levelling, poor shoulder alignment, locked out supporting knee. And then I remember that this is the first time Iโ€™ve done dancers pose since my abdominal surgery in November and I was in an amazing place laughing having with friends and the fact I can do even a poorly aligned version is a bloody miracle! . ๐ŸŒฑ Yoga is not about create a perfect pose, itโ€™s about being in your body, accepting where you are, knowing that wherever that may be is perfect and the fact you are moving is often enough of an achievement. On social media we often see the โ€˜perfectโ€™ aesthetically pleasing pose and it can make us feel insufficient, but the reality for most of us is a) far from that, and b) there is no end point. It doesnโ€™t really matter what anyone else can do. Accept where you are and enjoy the process ๐Ÿง˜๐Ÿปโ€โ™€๏ธ #youdontdoyogayoufeelyoga  . . ๐Ÿ“ธ @lifeisjustastorywritten with encouragement from the wonderful @angelpixielove
Just a few words of wisdom given to me by @snehapatel_colitis a few weeks ago that I thought I should share. Everyone is beautiful the way they are and nothing should drag you down no matter what. Living with a chronic illness can be tough but we have to find ways of overcoming how tough it may be - including working together to make this illness more visible. Lets fight this together #nowucme #crohns #chronsdisease #chronicillness #uc #colitis #ulcerativecolitis #ibdorknownasinflammatoryboweldisease #ibdwarriors #crohnsandcolitisuk
Just a few words of wisdom given to me by @snehapatel_colitis a few weeks ago that I thought I should share. Everyone is beautiful the way they are and nothing should drag you down no matter what. Living with a chronic illness can be tough but we have to find ways of overcoming how tough it may be - including working together to make this illness more visible. Lets fight this together #nowucme  #crohns  #chronsdisease  #chronicillness  #uc  #colitis  #ulcerativecolitis  #ibdorknownasinflammatoryboweldisease  #ibdwarriors  #crohnsandcolitisuk 
It's heartbreaking to hear people say "yeah he's beaten that disease" or "you're fine now though". Just because you turn up to work more days than not, or slap on your make up to try to at least feel a bit more 'normal', even when you feel like crap, (which let's face it is most days) doesn't mean you are "fine" or cured! They don't see the fight to get out of bed every day or the strength it takes to stay in work/pop to the shops. On the outside, we look strong and "fine" but on the inside is a constant battle to keep us looking strong and "fine". Only those who have Inflammatory Bowel Disease know the real strength it takes to keep getting up every day. ๐Ÿ’œ
It's heartbreaking to hear people say "yeah he's beaten that disease" or "you're fine now though". Just because you turn up to work more days than not, or slap on your make up to try to at least feel a bit more 'normal', even when you feel like crap, (which let's face it is most days) doesn't mean you are "fine" or cured! They don't see the fight to get out of bed every day or the strength it takes to stay in work/pop to the shops. On the outside, we look strong and "fine" but on the inside is a constant battle to keep us looking strong and "fine". Only those who have Inflammatory Bowel Disease know the real strength it takes to keep getting up every day. ๐Ÿ’œ
This year's #GetYourBellyOut party is fast approaching, so here's a sneaky peek at the goodie boxes that we've prepared for our guests ๐Ÿ˜Š
Can you guess what's inside?

Friends, family and loved ones are all welcome to join us for a night of celebration๐Ÿ’•

www.GetYourBellyOut.org.uk for more info

#crohns #crohnssucks #crohnsandcolitisuk #crohnsdisease #IBD #IBDawareness #inflammatoryboweldisease #colitis #ulcerativeColitis #purpleribbon #spoonie #chronicillness #invisibleillness #ostomy #jpouch
This year's #GetYourBellyOut  party is fast approaching, so here's a sneaky peek at the goodie boxes that we've prepared for our guests ๐Ÿ˜Š Can you guess what's inside? Friends, family and loved ones are all welcome to join us for a night of celebration๐Ÿ’• www.GetYourBellyOut.org.uk for more info #crohns  #crohnssucks  #crohnsandcolitisuk  #crohnsdisease  #IBD  #IBDawareness  #inflammatoryboweldisease  #colitis  #ulcerativeColitis  #purpleribbon  #spoonie  #chronicillness  #invisibleillness  #ostomy  #jpouch 
#crohnsandcolitisuk #twinsresearch #IBD Exciting times for the UK IBD Twin BioBank @crohnsandcolitisuk @marcusharbord @willblad
Today Iโ€™m having a liquids-only type day in a bid to rest my gut. Herbal โ˜•๏ธ is my lifeline for days like this, so Iโ€™ve created a new post (link in bio!) telling you about all my faves! ๐Ÿ’•The @sainsburys caramel roobios Is INSANELY good (you need to try It) and I also love the concept of @tearexrocks! Which is completely cold-pressed tea! (Fresh turmeric and ginger ๐Ÿ™Œ) Whatโ€™s your go to herbal tea?
Today Iโ€™m having a liquids-only type day in a bid to rest my gut. Herbal โ˜•๏ธ is my lifeline for days like this, so Iโ€™ve created a new post (link in bio!) telling you about all my faves! ๐Ÿ’•The @sainsburys caramel roobios Is INSANELY good (you need to try It) and I also love the concept of @tearexrocks! Which is completely cold-pressed tea! (Fresh turmeric and ginger ๐Ÿ™Œ) Whatโ€™s your go to herbal tea?
Between May-July 2017 while I hospitalized, I really had horrible pain on my left leg. I wasnโ€™t able to stand on it, or walk! I couldnโ€™t move it properly! And the color of it changed to dark purple.My doctors couldnโ€™t figure out at first but after my ultrasound they did for my left leg, we found out that I had DVT. DVT (deep vein thrombosis) is when a blood clot forms in one or more of the deep veins in your body. My doctors were shocked. They said these could have happened in my brain or in my lungs. Because of DVT, I had to use clexane(itโ€™s an injection used to stop the blood clots forming within the blood vessels) and while using this, it increased my bleeding with UC! So I was stuck in between! If I didnโ€™t use clexane I could have DVT again, If I use it my UC bleeding would go crazy! So after using it almost 4 months we had to cut it.And thanks to my DVT, I have to wear Surgical Stocking forever ๐Ÿ˜„๐Ÿ˜‚ another thing is that thanks to my DVT - I canโ€™t get into hot tub,sauna or turkish hammam. Taking a shower is Painful too! Because hot water gives pain where my DVT was! So before I get out of the shower I have to wash my left leg with FREEZING COLD WATER! Yeap! This is my life โค๏ธโค๏ธ #dvt #deepveinthrombosis #deepveinthrombosissurvivor #ulseratifkolit #รผlseratifkolitlemรผcadele #ulcerativecolitis #uc #ulcerativecolitislife #crohnsandcolitis #crohnsandcolitisuk #warrior #pain #survivor #fightlikeawarrior #crohnsandcolitisawareness
Between May-July 2017 while I hospitalized, I really had horrible pain on my left leg. I wasnโ€™t able to stand on it, or walk! I couldnโ€™t move it properly! And the color of it changed to dark purple.My doctors couldnโ€™t figure out at first but after my ultrasound they did for my left leg, we found out that I had DVT. DVT (deep vein thrombosis) is when a blood clot forms in one or more of the deep veins in your body. My doctors were shocked. They said these could have happened in my brain or in my lungs. Because of DVT, I had to use clexane(itโ€™s an injection used to stop the blood clots forming within the blood vessels) and while using this, it increased my bleeding with UC! So I was stuck in between! If I didnโ€™t use clexane I could have DVT again, If I use it my UC bleeding would go crazy! So after using it almost 4 months we had to cut it.And thanks to my DVT, I have to wear Surgical Stocking forever ๐Ÿ˜„๐Ÿ˜‚ another thing is that thanks to my DVT - I canโ€™t get into hot tub,sauna or turkish hammam. Taking a shower is Painful too! Because hot water gives pain where my DVT was! So before I get out of the shower I have to wash my left leg with FREEZING COLD WATER! Yeap! This is my life โค๏ธโค๏ธ #dvt  #deepveinthrombosis  #deepveinthrombosissurvivor  #ulseratifkolit  #รผlseratifkolitlemรผcadele  #ulcerativecolitis  #uc  #ulcerativecolitislife  #crohnsandcolitis  #crohnsandcolitisuk  #warrior  #pain  #survivor  #fightlikeawarrior  #crohnsandcolitisawareness 
I think itโ€™s safe to say that studying brings out the best in my level of distraction! Iโ€™ve really been trying with this eating clean business, specifically because, why only operate at 80% when you can reach 100%? None the less, in this home we LOVE to snack, itโ€™s basically our life line...so i attempted to make some really healthy snacks that really kick the craving, high source of protein and tantalize my taste buds! So, the little chocolate heart is homemade chocolate, with the only sweetener being a dash of honey and then the little peanut butter oats squares, with a cup of tea and Iโ€™m ready to get back to the books.

#health #healthyfood #snack #studybreak #tea #homemade #distractions #ulcerativecolitis #crohnsandcolitisuk #IBD #autoimmunedisease #healthybody #healthymind #chocolate #honey #carolboyes #destinymagazine
I think itโ€™s safe to say that studying brings out the best in my level of distraction! Iโ€™ve really been trying with this eating clean business, specifically because, why only operate at 80% when you can reach 100%? None the less, in this home we LOVE to snack, itโ€™s basically our life line...so i attempted to make some really healthy snacks that really kick the craving, high source of protein and tantalize my taste buds! So, the little chocolate heart is homemade chocolate, with the only sweetener being a dash of honey and then the little peanut butter oats squares, with a cup of tea and Iโ€™m ready to get back to the books. #health  #healthyfood  #snack  #studybreak  #tea  #homemade  #distractions  #ulcerativecolitis  #crohnsandcolitisuk  #IBD  #autoimmunedisease  #healthybody  #healthymind  #chocolate  #honey  #carolboyes  #destinymagazine 
Itโ€™s Friday. And today is day 209 of active flare. Still struggling with energy levels and self motivation. But Iโ€™m off the steroids (thank god) and the five week count down is on for my next infusion. After that will be more ...... testing and biopsies to see whether the Entyvio is working. But this is my I know I donโ€™t look sick selfie. Because fuck everyone who doesnโ€™t believe me or understand how serious it is! ๐Ÿ–•๐Ÿป just because I feel like shit doesnโ€™t mean I have to look like it too! #invisibleillness #invisibleillnessawareness #selfie #fridayfun #entyvio #entyviowarrior #entyviowarriorprincess #pinkhair #nyxlips #filteredtothegods #seemeconquer #directionscerise #cerisepink #inflammatoryboweldisease #ibd #ulcerativecolitis #uc #crohnslife #crohnsandcolitisuk #crohnsandcolitisawareness #dontlooksick #flaring #ucwarrior #thisisme #autoimmunedisease #iamawarrior
Itโ€™s Friday. And today is day 209 of active flare. Still struggling with energy levels and self motivation. But Iโ€™m off the steroids (thank god) and the five week count down is on for my next infusion. After that will be more ...... testing and biopsies to see whether the Entyvio is working. But this is my I know I donโ€™t look sick selfie. Because fuck everyone who doesnโ€™t believe me or understand how serious it is! ๐Ÿ–•๐Ÿป just because I feel like shit doesnโ€™t mean I have to look like it too! #invisibleillness  #invisibleillnessawareness  #selfie  #fridayfun  #entyvio  #entyviowarrior  #entyviowarriorprincess  #pinkhair  #nyxlips  #filteredtothegods  #seemeconquer  #directionscerise  #cerisepink  #inflammatoryboweldisease  #ibd  #ulcerativecolitis  #uc  #crohnslife  #crohnsandcolitisuk  #crohnsandcolitisawareness  #dontlooksick  #flaring  #ucwarrior  #thisisme  #autoimmunedisease  #iamawarrior 
Hold onto your pants boys & girls.......Iโ€™m super excited to announce that today is the launch ๐Ÿš€ of my blog www.theladyandthebag.com 
As some of you may know I suffered with Crohnโ€™s for many years with multiple operations resulting in an ileostomy. I have been travelling Asia for nearly a year & the aim of this blog is to show (& hopefully help) others that with a little planning travelling anywhere is possible, living life with an ileostomy can be amazing & fulfilling.
I would like to hear your thoughts / comments & of course please feel free to share. Oh and I also have a new insta account @theladyandthebag .......please check it out๐Ÿ™๐Ÿ’ชโค๏ธ๐Ÿš€
Lastly I just want to thank those people who have so patiently supported me on this blog journey.....you know who you are ๐Ÿ’•๐Ÿ’•๐Ÿ’•
#crohnsdisease #crohns #drugfree #medicationfree #travelblogger #healthblog #crohnswarrior #travel #boweldisease #ibs #ibd #ileostomy #ileostomybag #colostomy #crohnsandcolitisuk #crohnsandcolitis #theladyandthebag #willnotbestopped
Hold onto your pants boys & girls.......Iโ€™m super excited to announce that today is the launch ๐Ÿš€ of my blog www.theladyandthebag.com As some of you may know I suffered with Crohnโ€™s for many years with multiple operations resulting in an ileostomy. I have been travelling Asia for nearly a year & the aim of this blog is to show (& hopefully help) others that with a little planning travelling anywhere is possible, living life with an ileostomy can be amazing & fulfilling. I would like to hear your thoughts / comments & of course please feel free to share. Oh and I also have a new insta account @theladyandthebag .......please check it out๐Ÿ™๐Ÿ’ชโค๏ธ๐Ÿš€ Lastly I just want to thank those people who have so patiently supported me on this blog journey.....you know who you are ๐Ÿ’•๐Ÿ’•๐Ÿ’• #crohnsdisease  #crohns  #drugfree  #medicationfree  #travelblogger  #healthblog  #crohnswarrior  #travel  #boweldisease  #ibs  #ibd  #ileostomy  #ileostomybag  #colostomy  #crohnsandcolitisuk  #crohnsandcolitis  #theladyandthebag  #willnotbestopped 
Hold onto your pants boys & girls.......Iโ€™m super excited to announce that today is the launch ๐Ÿš€ of my blog www.theladyandthebag.com 
As some of you may know I suffered with Crohnโ€™s for many years with multiple operations resulting in an ileostomy. I have been travelling Asia for nearly a year & the aim of this blog is to show (& hopefully help) others that with a little planning travelling anywhere is possible, living life with an ileostomy can be amazing & fulfilling.
I would like to hear your thoughts / comments & of course please feel free to share. ๐Ÿ™๐Ÿ’ชโค๏ธ๐Ÿš€
Lastly I just want to thank those people who have so patiently supported me on this blog journey.....you know who you are ๐Ÿ’•๐Ÿ’•๐Ÿ’•
#crohnsdisease #crohns #drugfree #medicationfree #travelblogger #healthblog #crohnswarrior #travel #boweldisease #ibs #ibd #ileostomy #ileostomybag #colostomy #crohnsandcolitisuk #crohnsandcolitis #theladyandthebag #willnotbestopped
Hold onto your pants boys & girls.......Iโ€™m super excited to announce that today is the launch ๐Ÿš€ of my blog www.theladyandthebag.com As some of you may know I suffered with Crohnโ€™s for many years with multiple operations resulting in an ileostomy. I have been travelling Asia for nearly a year & the aim of this blog is to show (& hopefully help) others that with a little planning travelling anywhere is possible, living life with an ileostomy can be amazing & fulfilling. I would like to hear your thoughts / comments & of course please feel free to share. ๐Ÿ™๐Ÿ’ชโค๏ธ๐Ÿš€ Lastly I just want to thank those people who have so patiently supported me on this blog journey.....you know who you are ๐Ÿ’•๐Ÿ’•๐Ÿ’• #crohnsdisease  #crohns  #drugfree  #medicationfree  #travelblogger  #healthblog  #crohnswarrior  #travel  #boweldisease  #ibs  #ibd  #ileostomy  #ileostomybag  #colostomy  #crohnsandcolitisuk  #crohnsandcolitis  #theladyandthebag  #willnotbestopped 
Concentration face on ๐Ÿ˜‚! Cooking for me is like a meditation, I get lost in the food! I love cooking and even more so going vegan and becoming more inventive with ingredients and spices. I'm cooking 2 dinners tonight, vegan pulled veggy burritos for me and quorn burritos for my bro. First time I've tried the pulled veggy burrito and it was awesome, nice and spicy! 
#crohnsdisease #crohns #colitis #crohnsandcolitisuk #veggy #vegan #foodie #foodporn #veganstyle #veganrecipes #plantpower #plantbased
Concentration face on ๐Ÿ˜‚! Cooking for me is like a meditation, I get lost in the food! I love cooking and even more so going vegan and becoming more inventive with ingredients and spices. I'm cooking 2 dinners tonight, vegan pulled veggy burritos for me and quorn burritos for my bro. First time I've tried the pulled veggy burrito and it was awesome, nice and spicy! #crohnsdisease  #crohns  #colitis  #crohnsandcolitisuk  #veggy  #vegan  #foodie  #foodporn  #veganstyle  #veganrecipes  #plantpower  #plantbased 
#throwbackthursday 
In the past I was a tipical party face. Drinking, smoking, eating  junk food almost every weekend. Than I saw an advert in the TV and the #insanityworkout changed my life. Two years later I have started to run and something unbelievable happened. First time in my life I was able to keep focus on my goals. In 17.10.2015 I ran my first #Marathon in Budapest and fundraised money for people who's suffering of #crohnsdisease. Finished in 3:41:39. My new goal is to run a sub 1:30 #halfmarathon. This is my short story, thanks for reading it ๐Ÿ‘
#asicsfrontrunner #asicsfrontrunneruk #under90minutes #over40s #motivation #letmemotivateyou #imoveme #crohnsandcolitisuk #halfmarathontraining
#throwbackthursday  In the past I was a tipical party face. Drinking, smoking, eating junk food almost every weekend. Than I saw an advert in the TV and the #insanityworkout  changed my life. Two years later I have started to run and something unbelievable happened. First time in my life I was able to keep focus on my goals. In 17.10.2015 I ran my first #Marathon  in Budapest and fundraised money for people who's suffering of #crohnsdisease . Finished in 3:41:39. My new goal is to run a sub 1:30 #halfmarathon . This is my short story, thanks for reading it ๐Ÿ‘ #asicsfrontrunner  #asicsfrontrunneruk  #under90minutes  #over40s  #motivation  #letmemotivateyou  #imoveme  #crohnsandcolitisuk  #halfmarathontraining 
10 things to do after a Crohnโ€™s Disease diagnosis:

After first receiving a Crohnโ€™s Disease diagnosis itโ€™s hard to know what to say, feel or do. Itโ€™s a shock and a lot to process all at once. You rush home and frantically search google for more information, raising your levels of stress and anxiety, with all the worst case scenarios rushing through your mind. This was me 3 years ago; lost, confused and scared with no clue about what to do next. 
Whilst starting to come to terms with my diagnosis, the following 10 actions really helped me to understand and learn more about my condition and how I could move forward. I hope that they give you, or someone you know,  somewhere to start in this time of uncertainty.

1. Take the time to sit down and process all the information (itโ€™s a lot)
2. Have a cup of tea (or drink of choice!)
3. Cry โ€“ bottling up your emotions will only make things worse in the long run
4. Make a list of questions for your Gastroenterologist
5. Check out the Crohnsโ€™ and Colitis UK website โ€“ brilliant resource
6. Tell a friend/family member
7.Find out about an IBD Nurse (Rare and very special)
8. Follow your care plan even when you are feeling ok
9. Educate yourself about the disease and your care plan, to make sure you receive the best care for YOU
10. Try to manage your stress and anxiety to avoid triggering your symptoms

Crohnโ€™s Disease does not define youโ€ฆ.you are more than Crohnโ€™s. 
Rebecca xx
10 things to do after a Crohnโ€™s Disease diagnosis: After first receiving a Crohnโ€™s Disease diagnosis itโ€™s hard to know what to say, feel or do. Itโ€™s a shock and a lot to process all at once. You rush home and frantically search google for more information, raising your levels of stress and anxiety, with all the worst case scenarios rushing through your mind. This was me 3 years ago; lost, confused and scared with no clue about what to do next. Whilst starting to come to terms with my diagnosis, the following 10 actions really helped me to understand and learn more about my condition and how I could move forward. I hope that they give you, or someone you know, somewhere to start in this time of uncertainty. 1. Take the time to sit down and process all the information (itโ€™s a lot) 2. Have a cup of tea (or drink of choice!) 3. Cry โ€“ bottling up your emotions will only make things worse in the long run 4. Make a list of questions for your Gastroenterologist 5. Check out the Crohnsโ€™ and Colitis UK website โ€“ brilliant resource 6. Tell a friend/family member 7.Find out about an IBD Nurse (Rare and very special) 8. Follow your care plan even when you are feeling ok 9. Educate yourself about the disease and your care plan, to make sure you receive the best care for YOU 10. Try to manage your stress and anxiety to avoid triggering your symptoms Crohnโ€™s Disease does not define youโ€ฆ.you are more than Crohnโ€™s. Rebecca xx
Real life of a person who deals with Ulcerative Colitis ๐Ÿšฝ I hate having cramps and pain.. suddenly I get so sad, mad and emotional. I have to rush to the bathroom when I have cramps and I hate it ๐Ÿ’ฉ Today I feel so extremely tired.. I just canโ€™t open my eyes and want to sleep 24/7 .. really looking for my surgery ๐Ÿ–ค๐Ÿ’‰ #uc #ulcerativecolitislife #ulcerativecolitis #ulcerativecolitisflares #colitis #crohns #ibd #inflammatoryboweldisease #fightlikeawarrior #warrior #pain #flareup #cramps #raiseawareness #ulseratifkolit #crohnsandcolitis #crohnsandcolitisuk #crohnsandcolitisawareness
Real life of a person who deals with Ulcerative Colitis ๐Ÿšฝ I hate having cramps and pain.. suddenly I get so sad, mad and emotional. I have to rush to the bathroom when I have cramps and I hate it ๐Ÿ’ฉ Today I feel so extremely tired.. I just canโ€™t open my eyes and want to sleep 24/7 .. really looking for my surgery ๐Ÿ–ค๐Ÿ’‰ #uc  #ulcerativecolitislife  #ulcerativecolitis  #ulcerativecolitisflares  #colitis  #crohns  #ibd  #inflammatoryboweldisease  #fightlikeawarrior  #warrior  #pain  #flareup  #cramps  #raiseawareness  #ulseratifkolit  #crohnsandcolitis  #crohnsandcolitisuk  #crohnsandcolitisawareness 
Anyone else feel like this...๐Ÿ™ˆ got enough meds to start my own pharmacy. This bag is huge!!!
Anyone else feel like this...๐Ÿ™ˆ got enough meds to start my own pharmacy. This bag is huge!!!
I wish I could have some how written myself a letter from this point in my life and sent it back 2 years ago when this all began. I thrive on staying positive and I've always been a great believer that staying strong through all of this will help me get through the other side but it's just not true. 9 months ago I was promised my life would change after having an ileostomy that my life would return, my pain would stop, I would heal and I would grow to become the person I once was. That was the truth they weren't lying but I was told 12 years. 9 months later and I'm back to where I started but for me I wish I'd never experienced that few months just to have it stolen again so soon. If I could have written a letter to myself I'd have told myself not to trust what they say, to not get my hopes up and not to rely on others. 
The truth of the matter is I'm terrified, I'm absolutely terrified, I'd have told myself In that letter that what's the point in putting all that effort into strength when your going to end up scared to death, confused, back to pain, blood, morphine. But this time your own consultant admitting he doesn't have a clue and he's handing you over to the surgeons. 
I want to be able to stop covering up and lying when family and friends say, 'how are you doing?' yes I'm fine. No I'm not fine my insides feel like a knife has been up there, is still up there and I'm pouring in blood and I don't have the energy to talk to you. But I'm scared if I admit that I will start to loose people but right now that is me, I'm not Beth covered in glitter, shouting from the roof I'm a girl who feels like she's dying.
At 23 why should I be in a position where I have to go through more invasive surgery that effects my fertility by 50%, recovery that I know is excruciating because I experienced a fraction of it 9 months ago, the energy,  the healing the pain the scars, the wounds the learning how to walk again, being scared to eat. 
And the truth is I don't even trust that after I go through all of that, that this will be over because the scariest part of living with Crohn's disease is that it's waiting for the next place it's going to attack.
I wish I could have some how written myself a letter from this point in my life and sent it back 2 years ago when this all began. I thrive on staying positive and I've always been a great believer that staying strong through all of this will help me get through the other side but it's just not true. 9 months ago I was promised my life would change after having an ileostomy that my life would return, my pain would stop, I would heal and I would grow to become the person I once was. That was the truth they weren't lying but I was told 12 years. 9 months later and I'm back to where I started but for me I wish I'd never experienced that few months just to have it stolen again so soon. If I could have written a letter to myself I'd have told myself not to trust what they say, to not get my hopes up and not to rely on others. The truth of the matter is I'm terrified, I'm absolutely terrified, I'd have told myself In that letter that what's the point in putting all that effort into strength when your going to end up scared to death, confused, back to pain, blood, morphine. But this time your own consultant admitting he doesn't have a clue and he's handing you over to the surgeons. I want to be able to stop covering up and lying when family and friends say, 'how are you doing?' yes I'm fine. No I'm not fine my insides feel like a knife has been up there, is still up there and I'm pouring in blood and I don't have the energy to talk to you. But I'm scared if I admit that I will start to loose people but right now that is me, I'm not Beth covered in glitter, shouting from the roof I'm a girl who feels like she's dying. At 23 why should I be in a position where I have to go through more invasive surgery that effects my fertility by 50%, recovery that I know is excruciating because I experienced a fraction of it 9 months ago, the energy, the healing the pain the scars, the wounds the learning how to walk again, being scared to eat. And the truth is I don't even trust that after I go through all of that, that this will be over because the scariest part of living with Crohn's disease is that it's waiting for the next place it's going to attack.
Got my bloat on today !! ๐Ÿ™ˆ Who else suffers with severe bloating?
Got my bloat on today !! ๐Ÿ™ˆ Who else suffers with severe bloating?
๐Ÿ’œ1st n 2nd picture (today..10days after 'subtotal colectomy operation' removal of large intestines) 3.rd picture just before operation with my rock, my wall, my woman (mum)

40days in total in hospital today...
It has been painful,  scary, confusing, ... Yes i knew one day i was going to have this operation but wasn't expecting it to be this soon nor urgent. As they couldnt keep my flare under control for a month they had to do an urgent operation which left me in shock.  Still trying to come to terms with what i have experienced ( yes even tough I was determined  and keen) ๐Ÿ™‚ 
On the other hand I'm happy... happy that hopefully i will have my life back very soon.. not visit the toilet 10+ times a day, not  worry about pain, not take coctail of medicine, not worry about what to eat what not to eat... โ˜บ yeeaasss bring on fish&chips&pizza&kebab(making some serious plans about what to eat after hospt)

Anyways, the reason for my post is that I want to Thanks to my family, friends, loved ones, EVERYONE for your support via messages, calls, good wishes, random posts u've posted on social media... you have all helped keep me sane in this hospital bed. Thank you all.
And ofcourde thank you for all those beautiful strangers with similar condition who has unconditionally replied to my anxious painful questions... Thank you
And I am okay ๐Ÿ’œ

#ibdawareness
#crohnsandcolitisuk
#crohnsandcolitisawareness
#crohnsandcolitis
#ulcerativecolitis
@ostomyinspo
๐Ÿ’œ1st n 2nd picture (today..10days after 'subtotal colectomy operation' removal of large intestines) 3.rd picture just before operation with my rock, my wall, my woman (mum) 40days in total in hospital today... It has been painful, scary, confusing, ... Yes i knew one day i was going to have this operation but wasn't expecting it to be this soon nor urgent. As they couldnt keep my flare under control for a month they had to do an urgent operation which left me in shock. Still trying to come to terms with what i have experienced ( yes even tough I was determined and keen) ๐Ÿ™‚ On the other hand I'm happy... happy that hopefully i will have my life back very soon.. not visit the toilet 10+ times a day, not worry about pain, not take coctail of medicine, not worry about what to eat what not to eat... โ˜บ yeeaasss bring on fish&chips&pizza&kebab(making some serious plans about what to eat after hospt) Anyways, the reason for my post is that I want to Thanks to my family, friends, loved ones, EVERYONE for your support via messages, calls, good wishes, random posts u've posted on social media... you have all helped keep me sane in this hospital bed. Thank you all. And ofcourde thank you for all those beautiful strangers with similar condition who has unconditionally replied to my anxious painful questions... Thank you And I am okay ๐Ÿ’œ #ibdawareness  #crohnsandcolitisuk  #crohnsandcolitisawareness  #crohnsandcolitis  #ulcerativecolitis  @ostomyinspo
Not every illness is visible. There are so many people who are fighting a daily battle with an invisible illness. Be kind and "look beyond the horizon" โ™ฅ๏ธ
Not every illness is visible. There are so many people who are fighting a daily battle with an invisible illness. Be kind and "look beyond the horizon" โ™ฅ๏ธ
Thank you so much @ghc_est87 for leaving these surprise goodies at my department at James Cook Hospital today... for infusion 6... it's made my day ๐Ÿ˜˜ xxx
#friends #pressies #thoughtful #kind #generous #appreciated #mademyday
#crohns #crohnsdisease #ibd #inflammatoryboweldisease
#autoimmunedisorder #chronicillness #longtermcondition #invisableillness
#crohnsproblems #crohnslife
#crohnsawareness #ibdawareness 
#medication #biologicdrug 
#infliximab #infusion #intravenous #drip #cannula
#crohnsandcolitisuk #instacrohns
@crohnsandcolitisuk @instacrohns
Thank you so much @ghc_est87 for leaving these surprise goodies at my department at James Cook Hospital today... for infusion 6... it's made my day ๐Ÿ˜˜ xxx #friends  #pressies  #thoughtful  #kind  #generous  #appreciated  #mademyday  #crohns  #crohnsdisease  #ibd  #inflammatoryboweldisease  #autoimmunedisorder  #chronicillness  #longtermcondition  #invisableillness  #crohnsproblems  #crohnslife  #crohnsawareness  #ibdawareness  #medication  #biologicdrug  #infliximab  #infusion  #intravenous  #drip  #cannula  #crohnsandcolitisuk  #instacrohns  @crohnsandcolitisuk @instacrohns
Today was my first full day back at work in about a week. Tired. Emotional. Got home and had a cry because things get too much. The realisation of just how broken and sick my body is sets in and just takes over. Especially when Iโ€™m so exhausted. But. Of course. My hero, my rock, my @jessettinger123 sat with me, held my hand and rubbed my back while in cried it out. He then put the smile back on my face with some jokes and some amazing #glutenfree pancakes. Of course in trying to keep it healthier I used maple syrup and blueberries.... healthier sugar and a fruit! Letโ€™s face it. Could have been worse. I love my human. He makes me feel safe and makes me the perfect comfort foods. ๐Ÿ’œ #uc #ulcerativecolitis #crohnsandcolitisuk #ibd #invisibleillness #autoimmune #immunedisease #inflammatoryboweldisease #boweldisease #entyvio #entyviowarrior #entyviowarriorprincess #butyoudontlooksick #flares #remissionneeded
Today was my first full day back at work in about a week. Tired. Emotional. Got home and had a cry because things get too much. The realisation of just how broken and sick my body is sets in and just takes over. Especially when Iโ€™m so exhausted. But. Of course. My hero, my rock, my @jessettinger123 sat with me, held my hand and rubbed my back while in cried it out. He then put the smile back on my face with some jokes and some amazing #glutenfree  pancakes. Of course in trying to keep it healthier I used maple syrup and blueberries.... healthier sugar and a fruit! Letโ€™s face it. Could have been worse. I love my human. He makes me feel safe and makes me the perfect comfort foods. ๐Ÿ’œ #uc  #ulcerativecolitis  #crohnsandcolitisuk  #ibd  #invisibleillness  #autoimmune  #immunedisease  #inflammatoryboweldisease  #boweldisease  #entyvio  #entyviowarrior  #entyviowarriorprincess  #butyoudontlooksick  #flares  #remissionneeded 
Really struggling with fatigue at the minute, keep falling asleep when I get home. 
I wish I was just โ€˜tiredโ€™ - I can have 12 hours sleep and wake up like I havenโ€™t had any. 
Nothing better than a comfy hoodie ๐Ÿ‘Œ๐Ÿป @thetoiletmeandibd  #fatigue #crohnsandcolitisuk #crohns #colitis #thetoiletmeandibd
Really struggling with fatigue at the minute, keep falling asleep when I get home. I wish I was just โ€˜tiredโ€™ - I can have 12 hours sleep and wake up like I havenโ€™t had any. Nothing better than a comfy hoodie ๐Ÿ‘Œ๐Ÿป @thetoiletmeandibd #fatigue  #crohnsandcolitisuk  #crohns  #colitis  #thetoiletmeandibd 
Signed up for the challenge ๐Ÿ’ช๐ŸปOur team is raising money for Crohn's and Colitis UK, as they say every little helps, link for donations in my bio if you would like to show your support. 
#toughmudder #crohnsdisease #colitis #crohnsawareness #crohnsandcolitisuk #crohnsandcolitis #justgiving #charity #fundraising
โ€œIโ€™m Emily, Iโ€™m 23 and I was diagnosed with Colitis three years ago. I spent the summer of 2015 with a fever and bleeding into a basin because I was too weak to make it to the bathroom. It was only when I presented myself to A and E that a colonoscopy was performed and I was diagnosed with Colitis. I had a good two years of remission where I moved to Madrid to study and then finished my Law degree in London, top of my year. 
But in 2017 I had my first flare, which I am still trying to beat 10 months later. I stopped responding to first line treatment, became dependent on steroids and developed an intolerance to immunosuppressant therapy. Now Iโ€™m trying 6MP, a form of chemotherapy, before Biologic at-home injections. All this has been in Paris where I am studying for a Masters in Human Rights Law - it hasnโ€™t been easy! 
IBD can be unpredictable. It has caused me pain, weight loss, excessive hair loss, arthritis and crippling fatigue. Though Iโ€™d give anything not to have Colitis, Iโ€™m grateful to it for teaching me the value of health, the beauty of hair regrowth, the importance of surrounding yourself with true friends and the bliss of stable mental health. 
My message to the newly diagnosed would be not to let this stop you from pursuing the life you would want for yourself, if IBD didnโ€™t exist. IBD can be a life- limiting disease but I hope my story helps other young people realise that the extent to which it limits your life is up to you. IBD can control a lot of things but donโ€™t let it control your dreams!โ€ Emily and Crohnโ€™s and Colitis UK - Fighting Inflammatory Bowel Disease together ๐Ÿ’œ
โ€œIโ€™m Emily, Iโ€™m 23 and I was diagnosed with Colitis three years ago. I spent the summer of 2015 with a fever and bleeding into a basin because I was too weak to make it to the bathroom. It was only when I presented myself to A and E that a colonoscopy was performed and I was diagnosed with Colitis. I had a good two years of remission where I moved to Madrid to study and then finished my Law degree in London, top of my year. But in 2017 I had my first flare, which I am still trying to beat 10 months later. I stopped responding to first line treatment, became dependent on steroids and developed an intolerance to immunosuppressant therapy. Now Iโ€™m trying 6MP, a form of chemotherapy, before Biologic at-home injections. All this has been in Paris where I am studying for a Masters in Human Rights Law - it hasnโ€™t been easy! IBD can be unpredictable. It has caused me pain, weight loss, excessive hair loss, arthritis and crippling fatigue. Though Iโ€™d give anything not to have Colitis, Iโ€™m grateful to it for teaching me the value of health, the beauty of hair regrowth, the importance of surrounding yourself with true friends and the bliss of stable mental health. My message to the newly diagnosed would be not to let this stop you from pursuing the life you would want for yourself, if IBD didnโ€™t exist. IBD can be a life- limiting disease but I hope my story helps other young people realise that the extent to which it limits your life is up to you. IBD can control a lot of things but donโ€™t let it control your dreams!โ€ Emily and Crohnโ€™s and Colitis UK - Fighting Inflammatory Bowel Disease together ๐Ÿ’œ
๐ŸŒŸ My Little Insta Family ๐ŸŒŸ
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
WTAF! So this is CRAZY ๐Ÿ˜ฑ 
1K Followers!โœจ
โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
I joined the blogging/insta world 7 months ago in the hope of helping anyone newly diagnosed with Crohnโ€™s or Colitis, at the same stage as me & just fancied an IBD buddy, & raising awareness to the big wide world! ๐Ÿ‘ฉ๐Ÿผโ€๐Ÿ’ป Awareness is where it starts! When I was first diagnosed I was so lonely. I didnโ€™t deal with it very well in the beginning but itโ€™s all the support on here that has helped me get where I am today ๐Ÿ’– Particularly throughout my surgery - that has been the toughest thing Iโ€™ve ever had to go through & I certainly wouldnโ€™t have been able do it without all of you โœจ Iโ€™m so grateful to every single person who has seen, liked, commented, shared & messaged ๐Ÿ’• So much love from me and Rosie ๐Ÿฅ€ I hope to continue to raise awareness for all things IBD & now Bag Life ๐Ÿ™Œ โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”
I canโ€™t thank you all enough for the support, love & help that everyone has given me! ๐ŸŒŸ I Love You All My Little Insta Family ๐Ÿ’–
๐ŸŒŸ My Little Insta Family ๐ŸŒŸ โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€” WTAF! So this is CRAZY ๐Ÿ˜ฑ 1K Followers!โœจ โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€” I joined the blogging/insta world 7 months ago in the hope of helping anyone newly diagnosed with Crohnโ€™s or Colitis, at the same stage as me & just fancied an IBD buddy, & raising awareness to the big wide world! ๐Ÿ‘ฉ๐Ÿผโ€๐Ÿ’ป Awareness is where it starts! When I was first diagnosed I was so lonely. I didnโ€™t deal with it very well in the beginning but itโ€™s all the support on here that has helped me get where I am today ๐Ÿ’– Particularly throughout my surgery - that has been the toughest thing Iโ€™ve ever had to go through & I certainly wouldnโ€™t have been able do it without all of you โœจ Iโ€™m so grateful to every single person who has seen, liked, commented, shared & messaged ๐Ÿ’• So much love from me and Rosie ๐Ÿฅ€ I hope to continue to raise awareness for all things IBD & now Bag Life ๐Ÿ™Œ โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€”โ€” I canโ€™t thank you all enough for the support, love & help that everyone has given me! ๐ŸŒŸ I Love You All My Little Insta Family ๐Ÿ’–
Yeah baby. #almondpancakes courtesy of @madeleine_shaw_  topped with cinnamon bananas and pecans and a drizzle of honey (after all!). Sooooo tasty. And healthy. .
.
.
#pancakeday #glutenfreepancakes #healthyeating #scddiet #specificcarbohydratediet #chronicillnesswarrior #colitisdiet #crohnsandcolitisuk #almondpancakes #deliciousfood
So happy to be back in India for the final 2 months of my trip. 
This ๐Ÿ“ท was actually taken last April at the start of my trip when I visited Tamil Nadu but I love the memories it evokes so wanted to share it with you guys. 
I was at the bottom of a waterfall with a wall separating the men & women; I was happy watching but the women called me in to join them - there was no refusing!!! They were so kind, taking my hand so I didnโ€™t slip.  We may not have understood each other or spoken but so much laughter was shared โค๏ธโค๏ธ๐Ÿ™๐Ÿ™. A beautiful time I will always remember. #makingmemories #travelblogger #healthblog #crohns #crohnsdisease #crohnswarrior #ostomy #ibs #ibd #colostomy #colostomybag #ileostomy #ileostomybag #willnotbestopped #free #india #freedom #medicationfree #tamilnadu #kerala #theladyandthebag #crohnsandcolitis #crohnsandcolitisuk #boweldisease #drugfree
So happy to be back in India for the final 2 months of my trip. This ๐Ÿ“ท was actually taken last April at the start of my trip when I visited Tamil Nadu but I love the memories it evokes so wanted to share it with you guys. I was at the bottom of a waterfall with a wall separating the men & women; I was happy watching but the women called me in to join them - there was no refusing!!! They were so kind, taking my hand so I didnโ€™t slip. We may not have understood each other or spoken but so much laughter was shared โค๏ธโค๏ธ๐Ÿ™๐Ÿ™. A beautiful time I will always remember. #makingmemories  #travelblogger  #healthblog  #crohns  #crohnsdisease  #crohnswarrior  #ostomy  #ibs  #ibd  #colostomy  #colostomybag  #ileostomy  #ileostomybag  #willnotbestopped  #free  #india  #freedom  #medicationfree  #tamilnadu  #kerala  #theladyandthebag  #crohnsandcolitis  #crohnsandcolitisuk  #boweldisease  #drugfree 
11 week stats 534,491 steps (380.35km) ๐Ÿƒ๐Ÿผโ€โ™€๏ธtracked by #fitbit off my 6 million step challenge leading up to running in a marathon for charity ๐Ÿ’—total number of steps in 11 weeks 4,979,062 steps ๐Ÿƒ๐Ÿผโ€โ™€๏ธ๐Ÿ’—๐Ÿ’ช๐Ÿป#fitbit #fitbitchallenge #fitness #fitnessmotivation #fitgirl #fit #fitnessjourney #instagramfitness #fitnesslifestyle #fitchick #fitfreak #run #running #runnersofinstagram #runninggirl #instarun #runningcommunity #runners #runnerscommunity #runitfast #marathontraining #marathon #instarunners #crohnsandcolitisuk
11 week stats 534,491 steps (380.35km) ๐Ÿƒ๐Ÿผโ€โ™€๏ธtracked by #fitbit  off my 6 million step challenge leading up to running in a marathon for charity ๐Ÿ’—total number of steps in 11 weeks 4,979,062 steps ๐Ÿƒ๐Ÿผโ€โ™€๏ธ๐Ÿ’—๐Ÿ’ช๐Ÿป#fitbit  #fitbitchallenge  #fitness  #fitnessmotivation  #fitgirl  #fit  #fitnessjourney  #instagramfitness  #fitnesslifestyle  #fitchick  #fitfreak  #run  #running  #runnersofinstagram  #runninggirl  #instarun  #runningcommunity  #runners  #runnerscommunity  #runitfast  #marathontraining  #marathon  #instarunners  #crohnsandcolitisuk 
IM BACK BABIESโคโคโคโค
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Cant apologise enough for not posting, but I've been doing a lot, and the week before last i was a poorly bee!!๐Ÿ˜ญ๐Ÿซ๐Ÿ™ˆ๐Ÿ˜ฃ
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What a better way of be coming back than posting one of my famous infliximab pictures?!๐Ÿ’‰๐Ÿ”ช๐Ÿ”ซ๐Ÿ’Š
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So when i was first put on infliximab, i would have azathioprine. God was that a bitch. But turns out that the azathioprine helps the infliximab keep working.. I HAD NO CLUE, and have not been taking the tablets for about a year....
Im on a new drug now, which i shall explain in a different post to give you an overview!!
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This lil post is just to really say that im back and shall be posting a lot more! I have so much that i want to talk about that has happened with me recently, and really can't wait to share it all with youโคโคโคโคโคโค
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It has been really nice reading everyones IBD stories on the @crohnsandcolitisuk insta page. Really hope that they keep doing this ๐Ÿ’Š๐Ÿ˜‡๐Ÿ˜๐Ÿ’•
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Well im of to watch survival of the fittest, and see how good it is. Feeding my inner love island ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚
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#crohnsandcolitis #crohnsandcolitisuk #crohnsdisease #crohns #ibd #inflammatoryboweldisease #uc #colitis #ulcerativecolitis #crohnslife #crohnswarrior #blog #girl #infusion #drip #itv #loveisland #survivalofthefittest
IM BACK BABIESโคโคโคโค ------------------ Cant apologise enough for not posting, but I've been doing a lot, and the week before last i was a poorly bee!!๐Ÿ˜ญ๐Ÿซ๐Ÿ™ˆ๐Ÿ˜ฃ ----------------- What a better way of be coming back than posting one of my famous infliximab pictures?!๐Ÿ’‰๐Ÿ”ช๐Ÿ”ซ๐Ÿ’Š ----------------- So when i was first put on infliximab, i would have azathioprine. God was that a bitch. But turns out that the azathioprine helps the infliximab keep working.. I HAD NO CLUE, and have not been taking the tablets for about a year.... Im on a new drug now, which i shall explain in a different post to give you an overview!! -------------------- This lil post is just to really say that im back and shall be posting a lot more! I have so much that i want to talk about that has happened with me recently, and really can't wait to share it all with youโคโคโคโคโคโค ------------------- It has been really nice reading everyones IBD stories on the @crohnsandcolitisuk insta page. Really hope that they keep doing this ๐Ÿ’Š๐Ÿ˜‡๐Ÿ˜๐Ÿ’• ------------------- Well im of to watch survival of the fittest, and see how good it is. Feeding my inner love island ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ -------------------- #crohnsandcolitis  #crohnsandcolitisuk  #crohnsdisease  #crohns  #ibd  #inflammatoryboweldisease  #uc  #colitis  #ulcerativecolitis  #crohnslife  #crohnswarrior  #blog  #girl  #infusion  #drip  #itv  #loveisland  #survivalofthefittest 
So touched at how many likes and comments I have received on my last post of my green bow ostomy bag cover ๐Ÿ™ˆ so since people seem to be showing genuine interest, my plan from here is to invest in a sewing machine to speed up the process a bit, get a load more fabric ordered and set up a paypal in order for people to buy them. I will keep everyone updated on where I'm at with my progress and I will keep posting new designs and ideas on my other Instagram @fancystoma so if you are interested at all please go and follow that account and I will do my best to keep everyone posted! Thanks again for all the likes and comments, it means a lot ๐Ÿ’œ
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80/100 #100gratefuldays
#ostomy #ostomate #stoma #fancystoma #fightingthestigma #fashion #ibd #inflammatoryboweldisease #ulcerativecolitis #crohnsandcolitis #awareness #crohnsandcolitisuk
So touched at how many likes and comments I have received on my last post of my green bow ostomy bag cover ๐Ÿ™ˆ so since people seem to be showing genuine interest, my plan from here is to invest in a sewing machine to speed up the process a bit, get a load more fabric ordered and set up a paypal in order for people to buy them. I will keep everyone updated on where I'm at with my progress and I will keep posting new designs and ideas on my other Instagram @fancystoma so if you are interested at all please go and follow that account and I will do my best to keep everyone posted! Thanks again for all the likes and comments, it means a lot ๐Ÿ’œ . . 80/100 #100gratefuldays  #ostomy  #ostomate  #stoma  #fancystoma  #fightingthestigma  #fashion  #ibd  #inflammatoryboweldisease  #ulcerativecolitis  #crohnsandcolitis  #awareness  #crohnsandcolitisuk 
Come and join our Facebook group for support with anything Crohnโ€™s or Colitis related, share your questions freely, live Q&Aโ€™s with me every Monday at 7pm GMT look forward to seeing you there ๐Ÿ™‹๐Ÿป@ayshalivefree #ayshastrengthcircle #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #crohnsandcolitisuk #chronicillness #findacure #supportoneanother #makingtheinvisiblevisible #letstalkaboutit #beconfidentinyourownskin #ayshalivefree
I love this quote! Todayโ€™s win, fitting in a 30 minute gym session and 20 minute swim after work and all before 7pm!! Finding my new routine and I think itโ€™s going to be successful! ๐Ÿ“ธPinterest โ€ข
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#thegutsydoc #doctor #lifestylemedicine #fitness #healthandfitness #ulcerativecolitis #inflammatoryboweldisease #IBD #UC #crohnsdisease #lifestyle #medicine #wellness #blog #weightloss #nutrition #healthyliving #health #healthyeating #lifestylemedicinemovement #chrohnsandcolitisawarenessweek #crohnsandcolitisuk #monday
I love this quote! Todayโ€™s win, fitting in a 30 minute gym session and 20 minute swim after work and all before 7pm!! Finding my new routine and I think itโ€™s going to be successful! ๐Ÿ“ธPinterest โ€ข โ€ข โ€ข โ€ขโ€ข #thegutsydoc  #doctor  #lifestylemedicine  #fitness  #healthandfitness  #ulcerativecolitis  #inflammatoryboweldisease  #IBD  #UC  #crohnsdisease  #lifestyle  #medicine  #wellness  #blog  #weightloss  #nutrition  #healthyliving  #health  #healthyeating  #lifestylemedicinemovement  #chrohnsandcolitisawarenessweek  #crohnsandcolitisuk  #monday 
๐Ÿฉ Fluffy Butch ๐Ÿฉ
๐Ÿฉ Fluffy Butch ๐Ÿฉ
Hi my beautiful followers! ๐Ÿ‘‹๐Ÿค“๐Ÿ˜˜ I am so very sorry for being so absent!!! I've been back to uni and caught up massively in the routine ๐Ÿ“š and I am happy to say that I finally feel settled into normal adult human life ๐Ÿ˜‚ everything has felt rather BIG and scary since I had my operation in December 2016 and it has really taken me quite a while to get my head straight... But I feel I'm finally maybe there?!?!?! Well, we shall see ๐Ÿ‘€ but I will continue down this path as it appears to be good for me! ๐ŸŒž As a lil celebration, I think I shall do a bag change live video this evening ๐ŸŒƒ (on Insta and my personal FB) #reduce #dat #stigma ๐Ÿ… But now I wanna hear about you guys!!! How are you all doing, my beautiful little cherry tomatoes? ๐Ÿ… Did you have a good Monday?! What's new?! ๐ŸŒŸ BiG LoVe from Stan n Jas ๐Ÿ’–๐Ÿ…๐ŸŒž๐Ÿ’—๐Ÿ’•๐Ÿ•Š๐Ÿ… #stantheman #stanleythestoma #stoma #ostomates #ostomate #ostomy #ileostomy #stomasaywhaaat #getyourbellyout #bagchange #ostomybagchange #intestine #ibd #livingwithibd #Crohn's #crohnsdisease #livingwithcrohns #livingwithcrohnsdisease #crohnsandcolitis #ccuk #crohnsandcolitisuk
Hi my beautiful followers! ๐Ÿ‘‹๐Ÿค“๐Ÿ˜˜ I am so very sorry for being so absent!!! I've been back to uni and caught up massively in the routine ๐Ÿ“š and I am happy to say that I finally feel settled into normal adult human life ๐Ÿ˜‚ everything has felt rather BIG and scary since I had my operation in December 2016 and it has really taken me quite a while to get my head straight... But I feel I'm finally maybe there?!?!?! Well, we shall see ๐Ÿ‘€ but I will continue down this path as it appears to be good for me! ๐ŸŒž As a lil celebration, I think I shall do a bag change live video this evening ๐ŸŒƒ (on Insta and my personal FB) #reduce  #dat  #stigma  ๐Ÿ… But now I wanna hear about you guys!!! How are you all doing, my beautiful little cherry tomatoes? ๐Ÿ… Did you have a good Monday?! What's new?! ๐ŸŒŸ BiG LoVe from Stan n Jas ๐Ÿ’–๐Ÿ…๐ŸŒž๐Ÿ’—๐Ÿ’•๐Ÿ•Š๐Ÿ… #stantheman  #stanleythestoma  #stoma  #ostomates  #ostomate  #ostomy  #ileostomy  #stomasaywhaaat  #getyourbellyout  #bagchange  #ostomybagchange  #intestine  #ibd  #livingwithibd  #Crohn 's #crohnsdisease  #livingwithcrohns  #livingwithcrohnsdisease  #crohnsandcolitis  #ccuk  #crohnsandcolitisuk 
๐Ÿ’œSo I decided to end this suffering once for all. I want surgery to remove my colon and get rid of this disease, to reclaim my life back! and yet I cant seem to convince my medics.. they think I'm acting emotional :)) Let me tell you.. Ulcerative Colitis puts me in hospital again for the 3rd time in 4 months. Been here for 12 days already and dont have a discharge date yet.
This post is by no means to get attention or get 'good wishes', it's just that I want to share my reality and of those thousands with similar condition.
Im in constant pain, cant sleep, cant eat, can't talk.. they are pumping my body with steroids and antivirals.. im swollen so much  that i cant even recognise my own face.. I cant have any visitors just incase i catch another virus, I cant see my loved ones... Soo err yeah i think that makes me EMOTIONAL.. but i have never been this determined about the surgery! It makes me have butterflies in my stomach to think I am gonna get my life back... when how where TBC.
I Just want some feedback from those with the stoma bag about their experiences... #ibdawareness
#chronsandcolitis
#ulcerativecolitis
#ulcerativecolitissupport
#crohnsandcolitisawareness
#crohnsandcolitisuk
๐Ÿ’œSo I decided to end this suffering once for all. I want surgery to remove my colon and get rid of this disease, to reclaim my life back! and yet I cant seem to convince my medics.. they think I'm acting emotional :)) Let me tell you.. Ulcerative Colitis puts me in hospital again for the 3rd time in 4 months. Been here for 12 days already and dont have a discharge date yet. This post is by no means to get attention or get 'good wishes', it's just that I want to share my reality and of those thousands with similar condition. Im in constant pain, cant sleep, cant eat, can't talk.. they are pumping my body with steroids and antivirals.. im swollen so much that i cant even recognise my own face.. I cant have any visitors just incase i catch another virus, I cant see my loved ones... Soo err yeah i think that makes me EMOTIONAL.. but i have never been this determined about the surgery! It makes me have butterflies in my stomach to think I am gonna get my life back... when how where TBC. I Just want some feedback from those with the stoma bag about their experiences... #ibdawareness  #chronsandcolitis  #ulcerativecolitis  #ulcerativecolitissupport  #crohnsandcolitisawareness  #crohnsandcolitisuk 
๐Ÿ’œSo what is this Ulcerative Colitis (UC)?
simply put.. its where your immune system works so damn well that after fighting off every single bad viruses/ bacterias,  it  decides to further do by attacking the beneficial bacterias in the colon ( large intestines). its a civil war between the immune system and the digestive system (colon specific in UC) 
Yep.. thats it..
andd ofcourse this war comes with its rewards in the form of 'inflammation'. Symptoms vary but simply: wound and ulcers in the colon causing bleeding, mucuousy diarrohea, intense intimacy with toilet ๐Ÿ˜‹ ( can go up to 30 times a day .. ), abdominal or bodily pain, tiredness, loss of apetite ...all these crowned  with pyschological ups n downs. ๐Ÿ’œ 
#ulcerativecolitiswarriors 
#ulcerativecolitissupport
#ibdawareness
#crohnsandcolitisuk
#crohnsandcolitisawareness
#crohnsandcolitis
#ulcerativecolitis
๐Ÿ’œSo what is this Ulcerative Colitis (UC)? simply put.. its where your immune system works so damn well that after fighting off every single bad viruses/ bacterias, it decides to further do by attacking the beneficial bacterias in the colon ( large intestines). its a civil war between the immune system and the digestive system (colon specific in UC) Yep.. thats it.. andd ofcourse this war comes with its rewards in the form of 'inflammation'. Symptoms vary but simply: wound and ulcers in the colon causing bleeding, mucuousy diarrohea, intense intimacy with toilet ๐Ÿ˜‹ ( can go up to 30 times a day .. ), abdominal or bodily pain, tiredness, loss of apetite ...all these crowned with pyschological ups n downs. ๐Ÿ’œ #ulcerativecolitiswarriors  #ulcerativecolitissupport  #ibdawareness  #crohnsandcolitisuk  #crohnsandcolitisawareness  #crohnsandcolitis  #ulcerativecolitis 
So after the conventional education plava, I studied more and more annd moree ( they say once you start you cant stop ๐Ÿ˜‰). But finally I got my courage together to stop and moved away to another town to work (those days you needed money to survive, life was hard back in my days ..lol.)
So one day I remember, October 2010, 5pm, off work, starving, no mummy to cook food, I am still a baby at the age of 25 and a serious junk eater at the time, I rightly decided to treat myself with a large pizza and a coke from some random kebab & pizza shop... I aet like there was no tomorrow and it felt good .....until i started running to toilet once, twice , 30 times in in 2 hrs... There  I was thinking "shit.. food poisining" not knowing it was the beginning of a turmoil relationship with my Ulcerative Colitis Condition (UC) ๐Ÿ’œ

Ps: after 7years of experience I feel ready to embrace and  raise awareness to my loved ones and everyone out there hoping I could help and contribute in some way.
So whats UC?
#crohnsandcolitis
#ulcerativecolitis
#ibdawareness
#crohnsandcolitisuk
#crohnsandcolitisawareness
So after the conventional education plava, I studied more and more annd moree ( they say once you start you cant stop ๐Ÿ˜‰). But finally I got my courage together to stop and moved away to another town to work (those days you needed money to survive, life was hard back in my days ..lol.) So one day I remember, October 2010, 5pm, off work, starving, no mummy to cook food, I am still a baby at the age of 25 and a serious junk eater at the time, I rightly decided to treat myself with a large pizza and a coke from some random kebab & pizza shop... I aet like there was no tomorrow and it felt good .....until i started running to toilet once, twice , 30 times in in 2 hrs... There I was thinking "shit.. food poisining" not knowing it was the beginning of a turmoil relationship with my Ulcerative Colitis Condition (UC) ๐Ÿ’œ Ps: after 7years of experience I feel ready to embrace and raise awareness to my loved ones and everyone out there hoping I could help and contribute in some way. So whats UC? #crohnsandcolitis  #ulcerativecolitis  #ibdawareness  #crohnsandcolitisuk  #crohnsandcolitisawareness