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I'd be lost without my spoonie sisters AND brothers. ❤️🥄🥄 💜🥄🥄💙🥄💛🥄🥄💚🥄🥄
#sisterhood #support #community #igetbywithalittlehelpfrommyfriends #spooniesupport #spoonie #spoonielife #sharing #caring #empathy #youdontgetituntilyougetit
I have been going to work with pain levels like this since a couple of days. But today, I decided to take a little break so as to continue with the rest of the day.

So low on spoons today.

How are your pain levels today?

#fibromyalgiawarriors #Fibromyalgia #fibro #fibrowarrior #spoonie #spoonielife #workingwithfibromyalgia #womenentrepreneur #chronicallyill #chronicpain #sciatica #managingpain #takeabreak #instafibro
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Celebrated my grandparents 60th anniversary 🎉🎉 I left early after eating some green beans which caused lots of pain. 
And had to take lots of benedryl because of peanuts of the salad. I didn’t eat it but just them being around caused itching and redness.
Celebrated my grandparents 60th anniversary 🎉🎉 I left early after eating some green beans which caused lots of pain. And had to take lots of benedryl because of peanuts of the salad. I didn’t eat it but just them being around caused itching and redness.
#PRAY  I love#solotheater and this #play - Diana was amazing playing 35 different characters! It was inspirational and as someone who has had to go through the journey of trauma recovery herself, I felt so connected to her and to her story. I received a loving FB message from a friend after the play saying how incredible it’s been to see the inner path I have had to take bc of #lupus and #rheumatoidarthritis  #chronicillnesses and #trauma and the play was very much of a reflection of my journey too. It reminded me of all the thoughts, anxiety, depression, and panic attacks I had gone through and how far I have come from that place in my life. It reminded me of how grateful I am to be alive and how blessed I am for this life and the people in it. It reminded me of all the hard mental, physical, and emotional work i continue to work on. It reminded me of all my prayers and meditations to God and the Angels. It reminded me that the choices I made in the past were based from fear. It reminded me that God is love and when I focus on the positive and love, I’m choosing to connect with everyone and not run away because of fear. I’m still learning and growing and enjoying this beautiful life I have been given. This play is so beautifully written and beautifully done. I highly recommend “Shattered” written and performed by Diana Varco and directed by Jessica Lynn Johnson. Thanks @safkami for inviting me along 💞 #whitefiretheatre #soloplay #solofest2018 #shattered #livingthelupuslife #roadtoremission #spoonie #spoonielife #enjoyinglife #enjoyingthelittlethings #iamblessed #iamgrateful #godislove
#PRAY  I love#solotheater  and this #play  - Diana was amazing playing 35 different characters! It was inspirational and as someone who has had to go through the journey of trauma recovery herself, I felt so connected to her and to her story. I received a loving FB message from a friend after the play saying how incredible it’s been to see the inner path I have had to take bc of #lupus  and #rheumatoidarthritis  #chronicillnesses  and #trauma  and the play was very much of a reflection of my journey too. It reminded me of all the thoughts, anxiety, depression, and panic attacks I had gone through and how far I have come from that place in my life. It reminded me of how grateful I am to be alive and how blessed I am for this life and the people in it. It reminded me of all the hard mental, physical, and emotional work i continue to work on. It reminded me of all my prayers and meditations to God and the Angels. It reminded me that the choices I made in the past were based from fear. It reminded me that God is love and when I focus on the positive and love, I’m choosing to connect with everyone and not run away because of fear. I’m still learning and growing and enjoying this beautiful life I have been given. This play is so beautifully written and beautifully done. I highly recommend “Shattered” written and performed by Diana Varco and directed by Jessica Lynn Johnson. Thanks @safkami for inviting me along 💞 #whitefiretheatre  #soloplay  #solofest2018  #shattered  #livingthelupuslife  #roadtoremission  #spoonie  #spoonielife  #enjoyinglife  #enjoyingthelittlethings  #iamblessed  #iamgrateful  #godislove 
⚠️TRUTH: Sometimes I’m not strong⚠️
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Do any of my other #chronicillnesswarrior feel like sometimes there is this inescapable weight of being “strong”? I know when people tell me how strong I am for what I go through it’s supposed to make me feel supported, but sometimes it feels like a crushing weight. If I’m being honest, most days I’m not strong at all. Most days I struggle to wake up on time, get to work on time, meet all my deadlines, stick to my strict diet, cook dinner, do laundry, or clean the house. Most days I make my way to work (late) and then relocate to my couch shortly after 5 o’clock. And almost every day I struggle to not be a depressed, anxious blob. Sometimes that’s what chronic illness is. •
#chronicillness #chronicfatigue #chronicfatigue #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #ibd #ibdwarrior #spoonie #spoonielife
⚠️TRUTH: Sometimes I’m not strong⚠️ • • • Do any of my other #chronicillnesswarrior  feel like sometimes there is this inescapable weight of being “strong”? I know when people tell me how strong I am for what I go through it’s supposed to make me feel supported, but sometimes it feels like a crushing weight. If I’m being honest, most days I’m not strong at all. Most days I struggle to wake up on time, get to work on time, meet all my deadlines, stick to my strict diet, cook dinner, do laundry, or clean the house. Most days I make my way to work (late) and then relocate to my couch shortly after 5 o’clock. And almost every day I struggle to not be a depressed, anxious blob. Sometimes that’s what chronic illness is. • #chronicillness  #chronicfatigue  #chronicfatigue  #crohnsdisease  #ulcerativecolitis  #inflammatoryboweldisease  #ibd  #ibdwarrior  #spoonie  #spoonielife 
This is a picture taken on January 5th. I had felt fine the day before but then it hit me all at once. I had the chills, extreme body aches I don't think my body had been in so much pain before, a fever of over 102, and more. My body couldn't handle it so I had my boyfriend to me to the ER. Because I have an autoimmune disorder I tend to get sick very easily and very quickly. I have a hard time fighting off things too and it where's my body out even more than it usually is normally. My white blood cell count was extremely high it was over half of the normal range in which it should be. I obviously had some kind of infection but they couldn't figure out what it was after doing multiple tests. They did a flu test, strep test, blood cultures, mono, and they all came out negative. They gave me antibiotics through my IV and I continued to take them to be on the safe side. It's crazy how fast things can progress in my body. I try to be really careful when I'm out because of how easily I can catch things.
This is a picture taken on January 5th. I had felt fine the day before but then it hit me all at once. I had the chills, extreme body aches I don't think my body had been in so much pain before, a fever of over 102, and more. My body couldn't handle it so I had my boyfriend to me to the ER. Because I have an autoimmune disorder I tend to get sick very easily and very quickly. I have a hard time fighting off things too and it where's my body out even more than it usually is normally. My white blood cell count was extremely high it was over half of the normal range in which it should be. I obviously had some kind of infection but they couldn't figure out what it was after doing multiple tests. They did a flu test, strep test, blood cultures, mono, and they all came out negative. They gave me antibiotics through my IV and I continued to take them to be on the safe side. It's crazy how fast things can progress in my body. I try to be really careful when I'm out because of how easily I can catch things.
Lately my days look like...
8am: eyes wide awake, body is not
11am: body, okay maybe we can do today *still stays laying down*
2-3pm: nope we cant, unexpected immediate nap time
6-7pm: fuck did I really nap? Now I won't be able to sleep
10-11pm: complete crash regardless of nap

Im so TIRED of always being TIRED... looking forward to days I have the energy to participate in life again...
I feel like Im too tired to even watch tv sometimes, I just sit and stare off for lengths at a time...
Things I used to be able to do like.. knitting, reading, painting, even watching TV can take too much energy to focus...
Im tired of waiting for my days to end just so I can get some sleep for a while.. What are your favorite go to "Im too tired to do anything" activities?? I need a few 😣

#eds #ehlersdanlossyndrome #mcas #mastcellactivationsyndrome #gastroparesis #pots #posturalorthostatictachycardiasyndrome #dysautonomia #syncopes #innapropriatesinustachycardia #PICCline #piccplacement #port #portacath #portplacement #portplacementsurgery #chronicallyhealing #chronicallyill #healing #gettingbetter #presurgery #postsurgery #spoonies #spoonielife #movingforward
Lately my days look like... 8am: eyes wide awake, body is not 11am: body, okay maybe we can do today *still stays laying down* 2-3pm: nope we cant, unexpected immediate nap time 6-7pm: fuck did I really nap? Now I won't be able to sleep 10-11pm: complete crash regardless of nap Im so TIRED of always being TIRED... looking forward to days I have the energy to participate in life again... I feel like Im too tired to even watch tv sometimes, I just sit and stare off for lengths at a time... Things I used to be able to do like.. knitting, reading, painting, even watching TV can take too much energy to focus... Im tired of waiting for my days to end just so I can get some sleep for a while.. What are your favorite go to "Im too tired to do anything" activities?? I need a few 😣 #eds  #ehlersdanlossyndrome  #mcas  #mastcellactivationsyndrome  #gastroparesis  #pots  #posturalorthostatictachycardiasyndrome  #dysautonomia  #syncopes  #innapropriatesinustachycardia  #PICCline  #piccplacement  #port  #portacath  #portplacement  #portplacementsurgery  #chronicallyhealing  #chronicallyill  #healing  #gettingbetter  #presurgery  #postsurgery  #spoonies  #spoonielife  #movingforward 
Trip to the park today! 😊
Check out our wonderful pawtners!
@missladydane
@service_dog_jewbs
@honeydippedtimbit
@service_dog_roo
#servicedog #servicedogsofinstagram #chihuahua #psychiatricservicedog #dogtraining #buildlovenothate #mentalhealthawareness #workhard #mylifeline #bigdogsmallbody #spoonielife #spoonie #gotspoons #fightthestygma #bipolardisorder #gad #ocd #borderlinepersonalitydisorder #ptsd
#Repost @lolatailack with @get_repost
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Did you say ball?! We met this gorgeous girl, Echo, yesterday when her owner @plazzo_ stopped to pose for a photo with @xedos_adventures. She is one of the best behaved pups we've met in a long time!
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#itsadogslife #dogsofinstagram #beautifulpup #whosagoodgirl #whosagoodboy #puplove #tampapetphotography #tampapetphotographer #tampabaypets #hiddentampa #gofetch #doggyportrait #pupportrait #petportrait #petportraits#didyousayball #dogfriendly #muttsofig #instawoof #dogstagram #dogsofinstaworld #pupsofinstagram #pupoftheday #petphotography #universityoftampa #lolatailack #spoonielife #fibrowarrior
#Repost  @lolatailack with @get_repost ・・・ Did you say ball?! We met this gorgeous girl, Echo, yesterday when her owner @plazzo_ stopped to pose for a photo with @xedos_adventures. She is one of the best behaved pups we've met in a long time! . . . . . . . . . . . . . . . #itsadogslife  #dogsofinstagram  #beautifulpup  #whosagoodgirl  #whosagoodboy  #puplove  #tampapetphotography  #tampapetphotographer  #tampabaypets  #hiddentampa  #gofetch  #doggyportrait  #pupportrait  #petportrait  #petportraits #didyousayball  #dogfriendly  #muttsofig  #instawoof  #dogstagram  #dogsofinstaworld  #pupsofinstagram  #pupoftheday  #petphotography  #universityoftampa  #lolatailack  #spoonielife  #fibrowarrior 
Ugh...so drained and tired. I think all my spoons are used up for the rest of the month 🛌. But I went to #Disneyland today ❤️. Love going on Sundays. Thanks to my #rollator and #vogmask I was able to walk around and not worry about getting sick. #spoonie #spoonielife #babewithamobilityaid #disneyap #disneyannualpassholder #disneylandresort #disneylife #disneywifehappylife #chronicpain #chronicillness #chronicallyill #chronicillnesswarrior #justdoit #enjoyinglife #donttalktometomorrow #sleep #everythinghurtsandimdying 🤪
Ugh...so drained and tired. I think all my spoons are used up for the rest of the month 🛌. But I went to #Disneyland  today ❤️. Love going on Sundays. Thanks to my #rollator  and #vogmask  I was able to walk around and not worry about getting sick. #spoonie  #spoonielife  #babewithamobilityaid  #disneyap  #disneyannualpassholder  #disneylandresort  #disneylife  #disneywifehappylife  #chronicpain  #chronicillness  #chronicallyill  #chronicillnesswarrior  #justdoit  #enjoyinglife  #donttalktometomorrow  #sleep  #everythinghurtsandimdying  🤪
Showing up to face every new day -come what may - is a big deal, especially if you’re in some form of pain. If you feel like you’re a loser or unaccomplished because your grief and pain is holding you back, remember that showing up is also colossal effort on your part which the universe applauds, even if no one else is watching.⠀⠀
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#chronicillness #chronicdisease #chroniclife #chronicpain #spoonie #spoonielife #mentalhealth #mentaldisorder #mentalillness #mentalhealthawareness #disability #invisibleillness #quote #showup #showingup #courage #tenacity #bebrave #bestrong #strength #survive #survival #thrive #thriving #itsanewday #lifeslikethat #grief #grieving #sorrow #sadness
Showing up to face every new day -come what may - is a big deal, especially if you’re in some form of pain. If you feel like you’re a loser or unaccomplished because your grief and pain is holding you back, remember that showing up is also colossal effort on your part which the universe applauds, even if no one else is watching.⠀⠀ .⠀⠀ .⠀⠀ .⠀⠀ .⠀⠀ .⠀⠀ #chronicillness  #chronicdisease  #chroniclife  #chronicpain  #spoonie  #spoonielife  #mentalhealth  #mentaldisorder  #mentalillness  #mentalhealthawareness  #disability  #invisibleillness  #quote  #showup  #showingup  #courage  #tenacity  #bebrave  #bestrong  #strength  #survive  #survival  #thrive  #thriving  #itsanewday  #lifeslikethat  #grief  #grieving  #sorrow  #sadness 
I bet she doesn’t cry in the restaurant bathroom because it hurts so much, then goes back to the conversation totally composed. Or maybe she does. Who knows. Something is definitely extra wonky right now though. Like a warm painful fluid spreading through my right side. To ER or not to ER? #flareup #adenomyosis #endometriosis #chronicillness #chronicpain #spoonie #spoonielife #womenshealth
Time to prep my morning lemon drink. I make a concoction of squeezed lemon juice (or apple cider vinegar if energy poor), zested ginger and honey to last me a week. I add about 1-2 Tbsp of this to a big glass of water and drink it before my breakfast and coffee. I’ve been doing this for about 4 yrs and it definitely helps me with digestion etc. I often forget to drink enough water during the day so this also helps me tick that box. I try everything a few times and if it works for me, I stick with it. The added ginger has probably helped me to shake of viruses and sinusitis a lot faster than before. The tiny changes can sometimes help. Might need someone to help with the squeezing...or just pace myself?😜🍋🍋🍋#lemongingerhoney #organiclemons #farmfresh #freshfood #healthiswealth #healthislife #chronicillnesshacks #digestiveandimmunesupport #MECFS #spoonielife #foodprepping #foodpreparation #organicproduce #rawhoney #applecidervinegar #braggsapplecidervinegar
Time to prep my morning lemon drink. I make a concoction of squeezed lemon juice (or apple cider vinegar if energy poor), zested ginger and honey to last me a week. I add about 1-2 Tbsp of this to a big glass of water and drink it before my breakfast and coffee. I’ve been doing this for about 4 yrs and it definitely helps me with digestion etc. I often forget to drink enough water during the day so this also helps me tick that box. I try everything a few times and if it works for me, I stick with it. The added ginger has probably helped me to shake of viruses and sinusitis a lot faster than before. The tiny changes can sometimes help. Might need someone to help with the squeezing...or just pace myself?😜🍋🍋🍋#lemongingerhoney  #organiclemons  #farmfresh  #freshfood  #healthiswealth  #healthislife  #chronicillnesshacks  #digestiveandimmunesupport  #MECFS  #spoonielife  #foodprepping  #foodpreparation  #organicproduce  #rawhoney  #applecidervinegar  #braggsapplecidervinegar 
The hospital meal this year that had me most excited! This was served on Chinese New Year eve, when many families have their reunion dinner. I know, it doesn’t even look like much, but I thought it was such a thoughtful gesture for them to try to make things a bit more festive for the few of us who spent probably the most important days of the Chinese New Year, in hospital. Kudos, NUH!
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In addition to what would have been the usual meal of rice with fish, veg and soup, they’ve added the Lohei dish (minus the raw fish, of course, but with the proper sauce and sachets of spice mix), some pineapple tarts, a fortune cookie, two mandarin oranges, and a red packet with chocolate gold coins in it.
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Having dinner alone in my room didn’t stop me from squealing (and taking pictures, obviously) 😂 It was a good meal, probably the best hospital meal I’ve ever had, and I polished off everything (no silly, not the rice, I don’t actually enjoy rice much haha)!
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This is not a self-pity post, ohhh nonono. It was a good day, it was a peacefully quiet stay this round, and I was glad to be given an excuse to escape the CNY mania 😁 I am now back at home hibernating, where the food delivery adventure starts! 😂
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I hope everyone has had a lovely celebration, or a nice getaway this long weekend. Have a great week ahead, and hey, start hitting the gym! 😁😁
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#NUH #sgfood #sgfoodies #foodsg #sgeats #instafood #instafoodie #foodstagram #foodiegram #foodpic #fooddiary #hospitalfood #chinesenewyear #cny #cny2018 #lohei #yusheng #fish #rice #cucumber #carrots #hospitalstay #multiplesclerosis #lemtrada #mssucks #msfighter #mswarrior #invisiblenessillness #spoonie #spoonielife
The hospital meal this year that had me most excited! This was served on Chinese New Year eve, when many families have their reunion dinner. I know, it doesn’t even look like much, but I thought it was such a thoughtful gesture for them to try to make things a bit more festive for the few of us who spent probably the most important days of the Chinese New Year, in hospital. Kudos, NUH! . In addition to what would have been the usual meal of rice with fish, veg and soup, they’ve added the Lohei dish (minus the raw fish, of course, but with the proper sauce and sachets of spice mix), some pineapple tarts, a fortune cookie, two mandarin oranges, and a red packet with chocolate gold coins in it. . Having dinner alone in my room didn’t stop me from squealing (and taking pictures, obviously) 😂 It was a good meal, probably the best hospital meal I’ve ever had, and I polished off everything (no silly, not the rice, I don’t actually enjoy rice much haha)! . This is not a self-pity post, ohhh nonono. It was a good day, it was a peacefully quiet stay this round, and I was glad to be given an excuse to escape the CNY mania 😁 I am now back at home hibernating, where the food delivery adventure starts! 😂 . I hope everyone has had a lovely celebration, or a nice getaway this long weekend. Have a great week ahead, and hey, start hitting the gym! 😁😁 . . . . . . . . #NUH  #sgfood  #sgfoodies  #foodsg  #sgeats  #instafood  #instafoodie  #foodstagram  #foodiegram  #foodpic  #fooddiary  #hospitalfood  #chinesenewyear  #cny  #cny2018  #lohei  #yusheng  #fish  #rice  #cucumber  #carrots  #hospitalstay  #multiplesclerosis  #lemtrada  #mssucks  #msfighter  #mswarrior  #invisiblenessillness  #spoonie  #spoonielife 
Hahaha! This little dude is one of my very favorite memes! Makes me laugh every single time. 😂😂 I have to give the credit for the caption to the love of my life, my wonderful husband, Jack! He knew I've been getting annoyed with my meter, and he loves to make me laugh! 😍😍 And y'all don't let my shade throwin' keep you from trying One Drop! I really love it, but like any other technology, it can be really annoying, occasionally! Really I usually blame it on the Bluetooth connection! Lmao! 😂😂
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#paperweightpancreas #type1 #type1diabetes #type1diabetic #type1warriors #diabadass #type1diabadass #type1memes #diabetesmemes #type1humor #type1love #type1diabetesmemes #type1warriormemes #type1lookslikeme #type1life #type1lifestyle #peoplewithdiabetes #pwd #peoplewithtype1 #type1d #diabetesawareness #type1awareness #beyondtype1 #type1blog #diabetesblog #type1blogger #diabeticblogger #spoonielife #spoonielifestyle #spoonies
Hahaha! This little dude is one of my very favorite memes! Makes me laugh every single time. 😂😂 I have to give the credit for the caption to the love of my life, my wonderful husband, Jack! He knew I've been getting annoyed with my meter, and he loves to make me laugh! 😍😍 And y'all don't let my shade throwin' keep you from trying One Drop! I really love it, but like any other technology, it can be really annoying, occasionally! Really I usually blame it on the Bluetooth connection! Lmao! 😂😂 ❤💉❤💉❤💉❤💉❤💉❤💉❤💉❤💉❤💉❤ #paperweightpancreas  #type1  #type1diabetes  #type1diabetic  #type1warriors  #diabadass  #type1diabadass  #type1memes  #diabetesmemes  #type1humor  #type1love  #type1diabetesmemes  #type1warriormemes  #type1lookslikeme  #type1life  #type1lifestyle  #peoplewithdiabetes  #pwd  #peoplewithtype1  #type1d  #diabetesawareness  #type1awareness  #beyondtype1  #type1blog  #diabetesblog  #type1blogger  #diabeticblogger  #spoonielife  #spoonielifestyle  #spoonies 
If it’s Sunday night and you don’t feel regret over all that homework procrastination - are you even a student? 🙈😂🤷🏼‍♀️
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For real though this weekend was great, although I’m finding myself tired out so much more easily than I used to.
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But we had a game night with friends, I went out to dinner with Devin and I got lots of rest in. You really can’t beat that. 💕
If it’s Sunday night and you don’t feel regret over all that homework procrastination - are you even a student? 🙈😂🤷🏼‍♀️ • For real though this weekend was great, although I’m finding myself tired out so much more easily than I used to. • But we had a game night with friends, I went out to dinner with Devin and I got lots of rest in. You really can’t beat that. 💕
2/18/18 Last week I had a migraine without needing to go to the hospital. I was hoping I would be okay this time, and today I pushed all night until I really had to go in the morning. 
Last night I did my pain management meditation and was trying to fall asleep without having to take any pills. At one am, I gave up and took a norco. It didn’t seem to work as I woke up every hour with throbbing pain. When I finally got up at seven I took one more norco and waited a half hour. Eventually I threw up and needed to be hospitalized for IV meds (usually when I throw up it starts a cycle and it’s just a waste to keep taking pills hoping one stays down, it’s easier to just get a shot).
The doctors gave me some morphine, zofran, and a new steroid. They wanted to give me a migraine bag, which has an anti-inflammation drug and Benadryl. I freaked out and decided not to have it because the idea of being drugged and not in control just freaks me out. Really, I should have just had some in fluids instead. We left after that I have been in better shape since I got home at 12. 
I have been fine the rest of the day, just mentally exhausted. It seems like I can control the pain on the weekdays but on the weekends it just gets intolerable. We are not quite sure what is causing it. It started being weekly flare ups after the first round of Botox, but then subsided when school started. But the past two weeks or so since the accident have been bad again. 
I am weening off the muscle relaxer still and by next week I should be down to only taking one pill. The Tramadol is always crazy on days like this, but hopefully this week I can stick to three doses. 
One of the ER doctors backed up the pain mgmt doctor and said I should really give CBD oil a chance. I think it scares me because it feels like a Real Drug. Like my narcotics are at least perscribed, and didn’t just become legal in the state in December 🙄. Whatever, I’ll try anything at this point. .
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#chronicpain #chronicillness #chiari #chiarimalformation #hydrocephalus #shunt #shuntlife #spoonie #spoonielife #invisibleillness #invisibledisease #invisibleillnessawareness
2/18/18 Last week I had a migraine without needing to go to the hospital. I was hoping I would be okay this time, and today I pushed all night until I really had to go in the morning. Last night I did my pain management meditation and was trying to fall asleep without having to take any pills. At one am, I gave up and took a norco. It didn’t seem to work as I woke up every hour with throbbing pain. When I finally got up at seven I took one more norco and waited a half hour. Eventually I threw up and needed to be hospitalized for IV meds (usually when I throw up it starts a cycle and it’s just a waste to keep taking pills hoping one stays down, it’s easier to just get a shot). The doctors gave me some morphine, zofran, and a new steroid. They wanted to give me a migraine bag, which has an anti-inflammation drug and Benadryl. I freaked out and decided not to have it because the idea of being drugged and not in control just freaks me out. Really, I should have just had some in fluids instead. We left after that I have been in better shape since I got home at 12. I have been fine the rest of the day, just mentally exhausted. It seems like I can control the pain on the weekdays but on the weekends it just gets intolerable. We are not quite sure what is causing it. It started being weekly flare ups after the first round of Botox, but then subsided when school started. But the past two weeks or so since the accident have been bad again. I am weening off the muscle relaxer still and by next week I should be down to only taking one pill. The Tramadol is always crazy on days like this, but hopefully this week I can stick to three doses. One of the ER doctors backed up the pain mgmt doctor and said I should really give CBD oil a chance. I think it scares me because it feels like a Real Drug. Like my narcotics are at least perscribed, and didn’t just become legal in the state in December 🙄. Whatever, I’ll try anything at this point. . . . . . . . #chronicpain  #chronicillness  #chiari  #chiarimalformation  #hydrocephalus  #shunt  #shuntlife  #spoonie  #spoonielife  #invisibleillness  #invisibledisease  #invisibleillnessawareness 
Hi guys! Just wanted to answer some FAQ about the design process of my tees. I put a lot of effort into hand drawing my designs and then I convert them into graphics on my laptop before being sent off to the company who prints my tees for me - organic tees. I am located on the north coast of NSW in ☀️ Australia and the company who prints them for me is about 3 hours north in Mullumbimby, NSW. They are a great company as all their tees are ethically made and environmentally friendly. This is really important to me and I will do another post later on about why I’m passionate about ethical consumerism 💚
As for sizing, I hope to offer more sizing options in the future so keep an eye out if we don’t offer your size just yet. However, I have uploaded specific sizing measurements in the photos section for each tee on my Etsy account so you can make an informed decision. Never hesitate to ask me any questions 😊
Also, I do offer international shipping so if you’re freezing right now instead of sweltering in the 🇦🇺 Aussie summer like me, I ship there too! 
Thanks so much to those who have already shown me so much support 💞
Hi guys! Just wanted to answer some FAQ about the design process of my tees. I put a lot of effort into hand drawing my designs and then I convert them into graphics on my laptop before being sent off to the company who prints my tees for me - organic tees. I am located on the north coast of NSW in ☀️ Australia and the company who prints them for me is about 3 hours north in Mullumbimby, NSW. They are a great company as all their tees are ethically made and environmentally friendly. This is really important to me and I will do another post later on about why I’m passionate about ethical consumerism 💚 As for sizing, I hope to offer more sizing options in the future so keep an eye out if we don’t offer your size just yet. However, I have uploaded specific sizing measurements in the photos section for each tee on my Etsy account so you can make an informed decision. Never hesitate to ask me any questions 😊 Also, I do offer international shipping so if you’re freezing right now instead of sweltering in the 🇦🇺 Aussie summer like me, I ship there too! Thanks so much to those who have already shown me so much support 💞
“Life is all about progress and movements, keep it moving.” - Hopal Green .
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Today was a big day for my husband and I. Since last year sometime in June, I don’t think that either of us had a decent goodnight’s sleep. It was then that I believe that a viral infection I was fighting kicked my #myastheniagravis symptoms into overdrive. During this time I kept waking my hubby on and off throughout the night as I battled my MG (my gremlin) symptoms. Over time I moved to sleeping on the couch in our living room out of necessity. For my comfort and insomniac nights. For him so he would have half a brain to make it through a work day. And it worked for several weeks. When we figured out that this was not just a virus I was fighting, but something more. For this reason I ended up on the couch for a lot longer than several weeks. Of course getting a diagnosis of what was happening to me took almost 10 months. So it is hard to admit to yourself and others after awhile that you are sleeping in separate rooms as a married couple. Well, That didn’t last long. It does wear on a relationship. But as usual, my husband made sure I was taken care of, made comfortable and tried to ease any pains or discomfort caused by my MG symptoms. Now that we finally have a diagnosis and have started a treatment plan we can start making accommodations around our home to make it easier for me. For all of us. Our new “normal” whatever that may be. And today a step was made to that new normal. We were very lucky to come across an amazing recliner sofa dumpster diving. Part of it has to be fixed. My husband is handy. So I’m not too worried. We plan on using that in the living room “my former bedroom 😉” We took the previous sofa and moved it into our bedroom. I’ll be honest. I can’t sleep in bed. But propped perfectly on that sofa, my gremlin’s neurotransmitters are very happy. The bedroom may be messy and unorganized at the moment. We will learn what I need and don’t need over time. But I do know this. I am ready to start “our new normal “with my family
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@themightysite .
#icandoanythingwithmg #mglifestory #cptsdlifestory #speedyandbrucewayne
“Life is all about progress and movements, keep it moving.” - Hopal Green . . Today was a big day for my husband and I. Since last year sometime in June, I don’t think that either of us had a decent goodnight’s sleep. It was then that I believe that a viral infection I was fighting kicked my #myastheniagravis  symptoms into overdrive. During this time I kept waking my hubby on and off throughout the night as I battled my MG (my gremlin) symptoms. Over time I moved to sleeping on the couch in our living room out of necessity. For my comfort and insomniac nights. For him so he would have half a brain to make it through a work day. And it worked for several weeks. When we figured out that this was not just a virus I was fighting, but something more. For this reason I ended up on the couch for a lot longer than several weeks. Of course getting a diagnosis of what was happening to me took almost 10 months. So it is hard to admit to yourself and others after awhile that you are sleeping in separate rooms as a married couple. Well, That didn’t last long. It does wear on a relationship. But as usual, my husband made sure I was taken care of, made comfortable and tried to ease any pains or discomfort caused by my MG symptoms. Now that we finally have a diagnosis and have started a treatment plan we can start making accommodations around our home to make it easier for me. For all of us. Our new “normal” whatever that may be. And today a step was made to that new normal. We were very lucky to come across an amazing recliner sofa dumpster diving. Part of it has to be fixed. My husband is handy. So I’m not too worried. We plan on using that in the living room “my former bedroom 😉” We took the previous sofa and moved it into our bedroom. I’ll be honest. I can’t sleep in bed. But propped perfectly on that sofa, my gremlin’s neurotransmitters are very happy. The bedroom may be messy and unorganized at the moment. We will learn what I need and don’t need over time. But I do know this. I am ready to start “our new normal “with my family . . . . . . @themightysite . #icandoanythingwithmg  #mglifestory  #cptsdlifestory  #speedyandbrucewayne 
#getitdone after a few days off my feet, ran in the dark with my schmoo. My left knee is screaming in the joint even after a few days’ rest.
#getitdone  after a few days off my feet, ran in the dark with my schmoo. My left knee is screaming in the joint even after a few days’ rest.
Flares in the winter are no fun.  The only things I can cling to is faith, family, and as much of my routine I can.  Texas flip flopping weather is a beast.
Flares in the winter are no fun. The only things I can cling to is faith, family, and as much of my routine I can. Texas flip flopping weather is a beast.
Lastest version. Ready for color. I was right in my post last night...I really overdid it while working on this piece. Sat in a weird position hunched over for a couple hours without a break. Oops. I just lost track of time. It feels good to be so consumed in something that I ignore my body more than usual. Well, I couldn't walk after...then couldn't sleep due to pain. I thought it was worth it, but turns out that it's not. Yet I did the same thing today out in the snow. I hope to not repeat the mistake again as I begin to add color. At least I'm back to creating art! So even though it increases pain, it also decreases depression. 😊
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#eds #ehlersdanlos #ehlersdanlossyndrome #edslife #hypermobileeds #edsawareness #hypermobility #edswarrior #zebrastrong #wheelchair #wheelchairlife #disability #disabled #pain #chronicallyill #chronicillness #invisibleillness #dysautonomia #art #chronicpain #chronicallyfabulous #blackandwhite #flare #arttherapy #zebrawarrior #spoonielife #spoonie #bones #skeleton #skull
Lastest version. Ready for color. I was right in my post last night...I really overdid it while working on this piece. Sat in a weird position hunched over for a couple hours without a break. Oops. I just lost track of time. It feels good to be so consumed in something that I ignore my body more than usual. Well, I couldn't walk after...then couldn't sleep due to pain. I thought it was worth it, but turns out that it's not. Yet I did the same thing today out in the snow. I hope to not repeat the mistake again as I begin to add color. At least I'm back to creating art! So even though it increases pain, it also decreases depression. 😊 . . . . . . . . . #eds  #ehlersdanlos  #ehlersdanlossyndrome  #edslife  #hypermobileeds  #edsawareness  #hypermobility  #edswarrior  #zebrastrong  #wheelchair  #wheelchairlife  #disability  #disabled  #pain  #chronicallyill  #chronicillness  #invisibleillness  #dysautonomia  #art  #chronicpain  #chronicallyfabulous  #blackandwhite  #flare  #arttherapy  #zebrawarrior  #spoonielife  #spoonie  #bones  #skeleton  #skull 
When your moms have been friends for 30+ years, you play together.
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It's pretty awesome to have a built in Mom Tribe of friends you have had since you were little.
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We ran them, then fed them... I can't wait to do it again soon! I think we'll all sleep soundly tonight. 😴 .
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#OurAGirl #momtribe #momofgirls #momlife #momlifeisthebestlife #momfriends #mytribe #motheranddaughter #motivatedmama #motivatedmommy #motherhood #firsttimemom #tiredmom #girlmom #fitmomlife #fitnessmommy #fitmomgoals #spooniemom #spoonie #spoonielife #spooniewarrior #toddler #toddlermom #toddlerlife #toddleradventures #pregnant #pregnancy #secondpregnancy #idoitforthem #idoitforme
When your moms have been friends for 30+ years, you play together. . . It's pretty awesome to have a built in Mom Tribe of friends you have had since you were little. . . We ran them, then fed them... I can't wait to do it again soon! I think we'll all sleep soundly tonight. 😴 . . . . . . . . . . . . #OurAGirl  #momtribe  #momofgirls  #momlife  #momlifeisthebestlife  #momfriends  #mytribe  #motheranddaughter  #motivatedmama  #motivatedmommy  #motherhood  #firsttimemom  #tiredmom  #girlmom  #fitmomlife  #fitnessmommy  #fitmomgoals  #spooniemom  #spoonie  #spoonielife  #spooniewarrior  #toddler  #toddlermom  #toddlerlife  #toddleradventures  #pregnant  #pregnancy  #secondpregnancy  #idoitforthem  #idoitforme 
A throwback picture that still makes me laugh. This was taken in January 2012. I had surgery on my left scapula ahain to reattach my muscles, and my mom had surgery on her right shoulder joint.  Everybody thought we were in a car accident. Thankfully we weren't. We were just twinning. Now just picture this awesomeness walking around everywhere. We already get enough looks walking around since mom is 5'5 and I'm 6'. Let's slap on a
 couple shoulder braces to draw more attention. This picture makes us laugh. We look for humor...which isn't difficult when you look this ridiculous 😂😂 good support system for one another 😉
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@ehlersdanlosuk @ehlers.danlos @chronicloveclub

#ehlersdanlossyndrome #ehlersdanlos #begoofy #silly #besilly #laughter #laughteristhebestmedicine #laughatyourself #shoulder #scapula #shouldersurgery #scapulasurgery #orthopedicsurgeon #orthopedics #shoulderortho #likemotherlikedaughter #twinning #copycat #invisibleillness #chronicpain #spooniestrong #spooniesupport #spoonielife #fighter #warrior
A throwback picture that still makes me laugh. This was taken in January 2012. I had surgery on my left scapula ahain to reattach my muscles, and my mom had surgery on her right shoulder joint. Everybody thought we were in a car accident. Thankfully we weren't. We were just twinning. Now just picture this awesomeness walking around everywhere. We already get enough looks walking around since mom is 5'5 and I'm 6'. Let's slap on a  couple shoulder braces to draw more attention. This picture makes us laugh. We look for humor...which isn't difficult when you look this ridiculous 😂😂 good support system for one another 😉 * * @ehlersdanlosuk @ehlers.danlos @chronicloveclub #ehlersdanlossyndrome  #ehlersdanlos  #begoofy  #silly  #besilly  #laughter  #laughteristhebestmedicine  #laughatyourself  #shoulder  #scapula  #shouldersurgery  #scapulasurgery  #orthopedicsurgeon  #orthopedics  #shoulderortho  #likemotherlikedaughter  #twinning  #copycat  #invisibleillness  #chronicpain  #spooniestrong  #spooniesupport  #spoonielife  #fighter  #warrior 
Do you follow our chargie of the day stories here on instagram ? You too could encourage and inspire others by sharing your chronic illness journey with us.
To be featured a chargie of the day simply email or message us your story & a picture of yourself. ---------------------------------------------------
🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.
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#TheUnchargeables #Spoonie #unchargeables  #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
Do you follow our chargie of the day stories here on instagram ? You too could encourage and inspire others by sharing your chronic illness journey with us. To be featured a chargie of the day simply email or message us your story & a picture of yourself. --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables  #Spoonie  #unchargeables  #chronicillness  #Spoonies  #SpoonieLife  #ChronicPain  #ChronicFatigue  #disability  #chronicpainwarrior  #InvisibleIllness  #autoimmune  #supportgroup  #lowonenergy  #lowbattery  #StrongerThanYouThink  #chronicillnesswarrior  #autoimmunedisease  #fibromyalgia  #raredisease  #pcos  #endometriosis  #migraine  #butyoudontlooksick 
Y’all I fought the worst attack this weekend to be the dance mom my baby needs.
And I’ve paid for it with two straight days in the infusion center.  Tomorrow will be day 3!
Y’all I fought the worst attack this weekend to be the dance mom my baby needs. And I’ve paid for it with two straight days in the infusion center. Tomorrow will be day 3!
This week's #selflovesundaychallenge was to do something that my inner child would approve of. As I'm under the weather (again), I chose painting. I'm making a #minecraftcreeper for my nephew. 💕 it's slow going, but I'll get there! @thebalancedpt #spoonielife #spoonieproblems #spoonie #autoimmunedisease #neutropenia #neutrohero #zebrawarrior #raredisease #fibrowarrior #fibromyalgia
Had two wisdom teeth out yesterday because if it’s not one thing, it’s another. 🤷🏼‍♀️ It’s been a long few months with a lot going on. I’m tired as heck but still persevering and finding the good in every day. ☀️
Had two wisdom teeth out yesterday because if it’s not one thing, it’s another. 🤷🏼‍♀️ It’s been a long few months with a lot going on. I’m tired as heck but still persevering and finding the good in every day. ☀️
Things that happened on today’s hike:
1) Enjoyed gorgeous views of mountains, plants, rocks, and a waterfall
2) Scrambled up rocks and showed off some core and upper body strength
3) Took some breaks to let waves of lightheadedness and dizziness calm down
4) Came across an unexpected rope to help navigate down and up a steep path and had a blast
5) Rolled my ankle pretty majorly but luckily I had an ankle support in my hiking bag to immediately put on and keep down swelling 
6) Broke into a jog on a downhill portion and managed to mini-sublux my shoulder just as my husband excitedly said “wow you’re almost jogging!”
7) Got to connect with nature and appreciate the beauty of this world we live in and the life I am fortunate enough to lead
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#ehlersdanlossyndrome #eds #ehlersdanlos #hypermobility #hypermobileeds #edsawareness #hikingadventures #hiking #outdoors #california #zebrastrong #zebrawarrior #edswarrior #butyoudontlooksick #spoonie #spoonielife #chronicpain #chronicillness #chronicfatigue #dysautonomia #invisibleillness
Things that happened on today’s hike: 1) Enjoyed gorgeous views of mountains, plants, rocks, and a waterfall 2) Scrambled up rocks and showed off some core and upper body strength 3) Took some breaks to let waves of lightheadedness and dizziness calm down 4) Came across an unexpected rope to help navigate down and up a steep path and had a blast 5) Rolled my ankle pretty majorly but luckily I had an ankle support in my hiking bag to immediately put on and keep down swelling 6) Broke into a jog on a downhill portion and managed to mini-sublux my shoulder just as my husband excitedly said “wow you’re almost jogging!” 7) Got to connect with nature and appreciate the beauty of this world we live in and the life I am fortunate enough to lead . . . #ehlersdanlossyndrome  #eds  #ehlersdanlos  #hypermobility  #hypermobileeds  #edsawareness  #hikingadventures  #hiking  #outdoors  #california  #zebrastrong  #zebrawarrior  #edswarrior  #butyoudontlooksick  #spoonie  #spoonielife  #chronicpain  #chronicillness  #chronicfatigue  #dysautonomia  #invisibleillness 
Even though I’m not traveling, I plan to enjoy this staycation to the fullest. Sometimes just veering from my routine is exactly what I need. 👯‍♀️ Finally got to try @xtendbarreburlington this AM and see miss @aljeeeean !
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New blog post (link in bio👆🏼) February STAYcation. Setting goals and tackling them! But resting and relaxing too—of course✌🏼
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#xtendbarre #fitnessblogger #healthblogger #fitnessjourney #fitnessmotivation #healthblog #healthylifestyle #wellnessblog #wellnessblogger #wellnessjourney #barreclass #autoimmunepaleo #autoimmunehealing #autoimmunedisease #autoimmuneblogger #chronicillness #spoonie #spoonielife #spooniestrong #lifestyleblogger #bostonblogger #burlingtonma #bigmagic #empoweringwomen #strongwomen #challengeyourself #tryme
Even though I’m not traveling, I plan to enjoy this staycation to the fullest. Sometimes just veering from my routine is exactly what I need. 👯‍♀️ Finally got to try @xtendbarreburlington this AM and see miss @aljeeeean ! ✨ New blog post (link in bio👆🏼) February STAYcation. Setting goals and tackling them! But resting and relaxing too—of course✌🏼 . . . . . . . . #xtendbarre  #fitnessblogger  #healthblogger  #fitnessjourney  #fitnessmotivation  #healthblog  #healthylifestyle  #wellnessblog  #wellnessblogger  #wellnessjourney  #barreclass  #autoimmunepaleo  #autoimmunehealing  #autoimmunedisease  #autoimmuneblogger  #chronicillness  #spoonie  #spoonielife  #spooniestrong  #lifestyleblogger  #bostonblogger  #burlingtonma  #bigmagic  #empoweringwomen  #strongwomen  #challengeyourself  #tryme 
Chair talk time. .
This is a great chair. And it’s pretty. And because it’s pretty and great I love to sit in it. .
I like to make rest time even more appealing and comforting so I will actually enjoy it and benefit the most from it. .
Who wouldn’t want this chair? Thanks IKEA. 😉🤣😊 #poangforlife .
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#fibromyalgia #chronicillness #spoonie #fibromyalgiawarrior #fibromyalgiasucks #chronicpain #invisibleillness #spoonielife #invisibleillnessawareness #chronicallysick #lifeofaspoonie #laughthroughthepain #spooniecommunity #supportforspoonies #chronicallyill #invisibledisease #pots #chronicfatiguesyndrome #cfs #chronicfatigue #zebra #undiagnosed #solveMECFS #medicalzebra #mcad #mcas #eds #ANS #ikea
Chair talk time. . This is a great chair. And it’s pretty. And because it’s pretty and great I love to sit in it. . I like to make rest time even more appealing and comforting so I will actually enjoy it and benefit the most from it. . Who wouldn’t want this chair? Thanks IKEA. 😉🤣😊 #poangforlife  . . . . . . . . . . . . . . . . . . . #fibromyalgia  #chronicillness  #spoonie  #fibromyalgiawarrior  #fibromyalgiasucks  #chronicpain  #invisibleillness  #spoonielife  #invisibleillnessawareness  #chronicallysick  #lifeofaspoonie  #laughthroughthepain  #spooniecommunity  #supportforspoonies  #chronicallyill  #invisibledisease  #pots  #chronicfatiguesyndrome  #cfs  #chronicfatigue  #zebra  #undiagnosed  #solveMECFS  #medicalzebra  #mcad  #mcas  #eds  #ANS  #ikea 
Day 49 of the 2018 RunCheweyRun Journey; 22nd & 23rd races finished @3wraces 6pack Series- Highlands Ranch. 🙏 3wraces staff, runners great crowd support throughout the course it means so much! We are making it 200💪in 2018 putting theory to work (solutions/cures); 🏃with passion & heart for all D-Community(s)! @heartrunners @runners_of_insta @runnerscommunity @jdrf_rockymtn @beyondtype1 @diabetescommunity @migraineagain @typeonerun @runcolfax @racedots @c3fit_USA -
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*4 Mile: 33:06 | 8:15 | 7 of 52 | 1st Age Grp
*5k: 25:52 | 8:20 | 5 of 56 | 1st Age Grp
*9am: 4 Mile Pre @dexcom BG Sugar Readings 92, Mid race 121, finish line 130 at 9:35am with 3unit Humalog pre race.
*9:46am: 5k start Dexcom BG 142 ↗ , mid race 149➡ post race 109 at 10:45am confirmed by @abbottglobal Freestyle Lite Meter 106 (+/- 3).
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⭐"Running to me is a community spirit sport. When you're out there; you draw on & can utilize the energy of your mates, fellow participants, nature & crowd as everyone is on a journey to the line. Today, in my 4 mile race I 🏃 behind @stephanie6590 for a big portion of the race through the hills. Thanks a bunch it helped me for the 2nd race as well! 💪 💙.
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#T1D #Diabetes #toughness #migraines #xtremerunnerslife #Dexcom #WarriorUp #livebeyond #type2diabetes #JDRF  #ultratraining #marathonrunner #DiabeticRunner #heartrunners #instarunners #abbott #CGM  #runnerscommunity #RunCheweyRun #CourageToChange #3wraces #rundenver #runcolfax #anemic #spoonielife #t1dlookslikeme #butyoudontlooksick #diabadass #runstrong #consistencyiskey
Day 49 of the 2018 RunCheweyRun Journey; 22nd & 23rd races finished @3wraces 6pack Series- Highlands Ranch. 🙏 3wraces staff, runners great crowd support throughout the course it means so much! We are making it 200💪in 2018 putting theory to work (solutions/cures); 🏃with passion & heart for all D-Community(s)! @heartrunners @runners_of_insta @runnerscommunity @jdrf_rockymtn @beyondtype1 @diabetescommunity @migraineagain @typeonerun @runcolfax @racedots @c3fit_USA - - - *4 Mile: 33:06 | 8:15 | 7 of 52 | 1st Age Grp *5k: 25:52 | 8:20 | 5 of 56 | 1st Age Grp *9am: 4 Mile Pre @dexcom BG Sugar Readings 92, Mid race 121, finish line 130 at 9:35am with 3unit Humalog pre race. *9:46am: 5k start Dexcom BG 142 ↗ , mid race 149➡ post race 109 at 10:45am confirmed by @abbottglobal Freestyle Lite Meter 106 (+/- 3). - - - ⭐"Running to me is a community spirit sport. When you're out there; you draw on & can utilize the energy of your mates, fellow participants, nature & crowd as everyone is on a journey to the line. Today, in my 4 mile race I 🏃 behind @stephanie6590 for a big portion of the race through the hills. Thanks a bunch it helped me for the 2nd race as well! 💪 💙. . . . . . . #T1D  #Diabetes  #toughness  #migraines  #xtremerunnerslife  #Dexcom  #WarriorUp  #livebeyond  #type2diabetes  #JDRF  #ultratraining  #marathonrunner  #DiabeticRunner  #heartrunners  #instarunners  #abbott  #CGM  #runnerscommunity  #RunCheweyRun  #CourageToChange  #3wraces  #rundenver  #runcolfax  #anemic  #spoonielife  #t1dlookslikeme  #butyoudontlooksick  #diabadass  #runstrong  #consistencyiskey 
*Sips Tea* 😂  #SpoonieProblems
Hello lovely people! Here is my latest vlog for you, just more ramblings and details of how my life rolls. There is a big chunk of hospital stuff so if you want to skip that then please miss the first
 5-10 minutes. Illness stuff is a big part of my life so I have to include it. That being said enjoy or skip it if it’s not your thing! 
#vlogging #youtube
 #youtuber
#disabledyoutuber #hospitaltrips #shopping #chattingaway #mebehindthescenes
#reallife #mylifeinhighdefinition #spoonie #spoonielife #beautybeginner #liveeverymomentwell
Hello lovely people! Here is my latest vlog for you, just more ramblings and details of how my life rolls. There is a big chunk of hospital stuff so if you want to skip that then please miss the first 5-10 minutes. Illness stuff is a big part of my life so I have to include it. That being said enjoy or skip it if it’s not your thing! #vlogging  #youtube  #youtuber  #disabledyoutuber  #hospitaltrips  #shopping  #chattingaway  #mebehindthescenes  #reallife  #mylifeinhighdefinition  #spoonie  #spoonielife  #beautybeginner  #liveeverymomentwell 
This is the realest thing I’ve read all year.
This is the realest thing I’ve read all year.
Not only did I make my way outside, but IN THE SNOW! The cold hurts my bones, yet I couldn't help myself. I find that I'm saying that a lot lately...pushing past what I know my limit is. I tell myself that I accept the consequences...until the pain comes. Then I realize the horrible mistake, promise myself I won't do it again, but repeat anyway. Maybe one day I'll learn. I'll enjoy what I can when I can, I suppose. Limits are difficult. .
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#eds #ehlersdanlos #ehlersdanlossyndrome #edslife #hypermobileeds #edsawareness #hypermobility #edswarrior #zebrastrong #wheelchair #wheelchairlife #disability #disabled #pain #chronicallyill #chronicillness #invisibleillness #dysautonomia #pots #chronicpain #chronicallyfabulous #edssucks #flare #zebra #zebrawarrior #spoonielife #spoonie #disabledandcute #illness #babewithamobilityaid
Not only did I make my way outside, but IN THE SNOW! The cold hurts my bones, yet I couldn't help myself. I find that I'm saying that a lot lately...pushing past what I know my limit is. I tell myself that I accept the consequences...until the pain comes. Then I realize the horrible mistake, promise myself I won't do it again, but repeat anyway. Maybe one day I'll learn. I'll enjoy what I can when I can, I suppose. Limits are difficult. . . . . . . . . . #eds  #ehlersdanlos  #ehlersdanlossyndrome  #edslife  #hypermobileeds  #edsawareness  #hypermobility  #edswarrior  #zebrastrong  #wheelchair  #wheelchairlife  #disability  #disabled  #pain  #chronicallyill  #chronicillness  #invisibleillness  #dysautonomia  #pots  #chronicpain  #chronicallyfabulous  #edssucks  #flare  #zebra  #zebrawarrior  #spoonielife  #spoonie  #disabledandcute  #illness  #babewithamobilityaid 
Mirror mirror on the wall, who’s the sleepiest of them all? 😴👸🏼#chronicpainprincess #foreverfatigued #invisibleillness #dysautonomia #napqueen #spoonielife
Mr Bruno got a new collar since he’s been getting so big, I think this one looks better on him then the other, what do y’all think??
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Tags• #ChronicPain #ServiceDogInTraining #SDIT #Fighter #Loved #InvisibleIllness #NotAllDisabilitiesAreVisible #PTSD #MedicalAlertSDIT #PsychiatricServiceDogInTraining #PTSDAwareness #Spoonie #SpoonieLife #MedicalAlertDog #ChronicWarrior #PawSquad #PawsAndLove #PitBull #Dalmatian #ServiceDogsSaveLives #KeepMovingForward
Mr Bruno got a new collar since he’s been getting so big, I think this one looks better on him then the other, what do y’all think?? • • Tags• #ChronicPain  #ServiceDogInTraining  #SDIT  #Fighter  #Loved  #InvisibleIllness  #NotAllDisabilitiesAreVisible  #PTSD  #MedicalAlertSDIT  #PsychiatricServiceDogInTraining  #PTSDAwareness  #Spoonie  #SpoonieLife  #MedicalAlertDog  #ChronicWarrior  #PawSquad  #PawsAndLove  #PitBull  #Dalmatian  #ServiceDogsSaveLives  #KeepMovingForward