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It’s still #CHDAwarenessMonth and I CANNOT believe I forgot to share the info I got back from Emmett’s cardiologist a couple weeks ago.. especially since so many of you have been praying for him! Here is the full report I received.. it says that it has gotten a little worse, but overall he is good!  I’m thankful that we do not need surgery right now!! Thank you all so much! The picture I shared with it gives me chills.. Emmett had a CHD & Down syndrome before I ever knew he was growing inside of me. Wow. ♥️😍
It’s still #CHDAwarenessMonth  and I CANNOT believe I forgot to share the info I got back from Emmett’s cardiologist a couple weeks ago.. especially since so many of you have been praying for him! Here is the full report I received.. it says that it has gotten a little worse, but overall he is good! I’m thankful that we do not need surgery right now!! Thank you all so much! The picture I shared with it gives me chills.. Emmett had a CHD & Down syndrome before I ever knew he was growing inside of me. Wow. ♥️😍
The luck few tattoo shirt for those who don’t want permanent ink!! Available at wordsonwingsprinting.com. #ourlittlebutterfly #theluckyfewtattoo #heartbeat #chd #theluckyfew #adoption #ndsan #loveonashirt #ctfob #downsyndromecutie #downsyndrome #tshirtdesign #ohsocute #t21 #t21rocks #t21love
Another fun @justice experience! I like using my skills! I encourage all of you to look at strengths and abilities in people you meet!! What did you do today? #abbeysupnotdown #LiveJustice #LivePositively
*turns off Disney JR* cutest argument ever ensues 😂🤦🏻‍♀️ #EmmettSlade #canyoutellhisfavoritewordisno #threenager Part of me wants to let him win because Daddy & Big Bro are at the movies and I’ll be lonely lol!
I love my family❤️
I love my family❤️
😘 MILESTONE 😘
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Road-trippin’ to Mississippi for volleyball and big sis is in the backseat just caaaaasually teaching Evie Love to blow kisses for the first time! 😘 No biggie. I’ll just be up here in the front seat. No YOU’RE crying! 😭😭😭
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
😘 MILESTONE 😘 . Road-trippin’ to Mississippi for volleyball and big sis is in the backseat just caaaaasually teaching Evie Love to blow kisses for the first time! 😘 No biggie. I’ll just be up here in the front seat. No YOU’RE crying! 😭😭😭 . . . PLEASE LIKE and FOLLOW !!! • #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou 
☀️💦.
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#tbt to when I was the "New Mom" of a child with Down syndrome. Now when I talk to new moms it usually goes something like...
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New Mom: I just found out my baby has Down syndrome.
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Me: *thinking* OHMIGOSH!!!! I AM SO EXCITED FOR YOU!!!! THAT IS AMAZING!!!! AAAAAAAAAAAAHHHHHHHHHHHH!!!!!!!!
💥🎆⚡️🚨🎉💥✨🎇🎊🚨⚡️🚀.
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*then awkwardly trying to play it cool* Congratulations.
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou @lindaleaphotography
#tbt  to when I was the "New Mom" of a child with Down syndrome. Now when I talk to new moms it usually goes something like... . New Mom: I just found out my baby has Down syndrome. . Me: *thinking* OHMIGOSH!!!! I AM SO EXCITED FOR YOU!!!! THAT IS AMAZING!!!! AAAAAAAAAAAAHHHHHHHHHHHH!!!!!!!! 💥🎆⚡️🚨🎉💥✨🎇🎊🚨⚡️🚀. . *then awkwardly trying to play it cool* Congratulations. . . . PLEASE LIKE and FOLLOW !!! • #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  @lindaleaphotography
Oh hello 👋, this is her I-just-played-and-have-not-cared-about-my-hair-or-the-grime-on-my-face look . 😘 She pulls me close to tell me she loves me and gives me a sweet kiss , waves g’bye to her friends and to the aftercare staff.  She saunters slowly to the lot holding my hand , admiring the passing by parents with their babies . Then says “Look it’s a baby! Just like me right? “ 
No anak .you are a small girl now not a baby .are you being silly? .she pauses .. ..
Then says “But Dad says I’m his baby forever, right?” ❤️
Of course you are my love! Forever my baby ! #love #myGirl #T21 #DS #CTFOB #beauty #erinsworldglasses #specs4us #glasses @erinsworldframes
Oh hello 👋, this is her I-just-played-and-have-not-cared-about-my-hair-or-the-grime-on-my-face look . 😘 She pulls me close to tell me she loves me and gives me a sweet kiss , waves g’bye to her friends and to the aftercare staff. She saunters slowly to the lot holding my hand , admiring the passing by parents with their babies . Then says “Look it’s a baby! Just like me right? “ No anak .you are a small girl now not a baby .are you being silly? .she pauses .. .. Then says “But Dad says I’m his baby forever, right?” ❤️ Of course you are my love! Forever my baby ! #love  #myGirl  #T21  #DS  #CTFOB  #beauty  #erinsworldglasses  #specs4us  #glasses  @erinsworldframes
Happy Birthday Cupid! 💘 More than anything, over the last 16 months this little heartbreaker has taught us that Love... Love is all you need ❤️ .
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
Sharing a piece of my heart because Valentines 😘 
To know Love is to know and be a part of a whole , to be with my class and be silly with my teachers . To sit with my peeps , the ones close to my heart . To be loved and accepted  for who I am extra chromosome and all . Happy Valentines friends❤️ You dont know it but I Love you all😊
#myGirl #DS #T21 .
because ALL kids are special #inclusionWorks #UCP @ucpoc @ucpbailes #Faith #love #family #friends #valentines #happy #smile #kids #CTFOB #Beauty #beautiful
Sharing a piece of my heart because Valentines 😘 To know Love is to know and be a part of a whole , to be with my class and be silly with my teachers . To sit with my peeps , the ones close to my heart . To be loved and accepted for who I am extra chromosome and all . Happy Valentines friends❤️ You dont know it but I Love you all😊 #myGirl  #DS  #T21  . because ALL kids are special #inclusionWorks  #UCP  @ucpoc @ucpbailes #Faith  #love  #family  #friends  #valentines  #happy  #smile  #kids  #CTFOB  #Beauty  #beautiful 
Happy Mardi Gras ! These two had a blast running in the streets! They are zonked out now ❤️ Tees by @eastcoasttribaldesigns use eastcoastfriends for 15 percent off. 
#mardigras2018 #carnival #inclusion #ctfob #instagood #nolababies #letthembelittle #toddlersofinstagram #candidchildhood #followyournola #showmeyournola #petitejoys
Rolls and ruffles and smiles and stripes. Little toes and pony tails. Cheeks! Those sweet, sweet cheeks. She’s 47 pieces of perfection and somehow God found me worthy to be her Mommy. 💝
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PLEASE LIKE and FOLLOW !!!
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou 
@matildajaneclothing @refinerykids
Rolls and ruffles and smiles and stripes. Little toes and pony tails. Cheeks! Those sweet, sweet cheeks. She’s 47 pieces of perfection and somehow God found me worthy to be her Mommy. 💝 • PLEASE LIKE and FOLLOW !!! • #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou  @matildajaneclothing @refinerykids
Our children are our pride and joy - keeping them safe is our mission! ⠀
#kids #safety #joy #pride #ctfob #toddlermonitor #love #childhood #safety1st #wandering #changingthefaceofbeauty
No two stars are alike ❤️ God has blessed us with two amazingly beautiful girls in their own unique way we couldn’t be more proud of each one for who they are! 😍
No two stars are alike ❤️ God has blessed us with two amazingly beautiful girls in their own unique way we couldn’t be more proud of each one for who they are! 😍
Three arrows represent the trio of chromosomes our babies and loved ones with Down Syndrome have. They remind us to persist forward - changing the world as we stand side by side. We are stronger together! #downsyndrome #trisomy21 #worlddownsyndromeday
Three arrows represent the trio of chromosomes our babies and loved ones with Down Syndrome have. They remind us to persist forward - changing the world as we stand side by side. We are stronger together! #downsyndrome  #trisomy21  #worlddownsyndromeday 
#Peace #love @erinsworldframes and #Faith ❤️ .Coz sometimes the best things in life are things made just for me 😊 #eyeglasses #specs4us #DS #CTFOB #beauty #smile #myGirl 
#tgif
A little update on the walking. This girl is MOVING!! No matter what room we are in she just walks back and forth, from wall to wall. I have never been so excited! 😁 she won't hold my hand and walk with me yet, (because she's just so independent) But she will in time! ❤
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#downsyndromeawareness #theluckyfew #upsyndrome #nothingdownaboutit #17months #CTFOB #changingthefaceofbeauty #Inclusion #walking #therapy
Soooo I won’t lie... I know it’s totally unreasonable, but I cried when our therapist sent us this picture. Like cried. It’s the first time I’ve ever seen real, tangible evidence that Evie Love has "special needs.”
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Unlike a lot of DS families, we’ve been blessed to not have any significant heart issues or feeding problems or concerns about vision or really much of anything. So far, our time with Evie Love has been fairly “typical”, whatever that means. 🤷🏼‍♀️ So, no matter how irrational it may seem, to see her using a gait trainer just wasn’t something I was fully 💯% prepared for.
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Don’t get me wrong, a gait trainer is awesome and if we get one full time, it will absolutely help Evie walk independently. It just took me a hot minute to process and to realize just how great (and adorbs 😍) it’ll be.
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Okaaaaay fine... I didn’t ACTUALLY calm down on my own. 🤦🏼‍♀️ Huge shout out to my favorite local moms of children with DS who were the real heroes here. They called and texted and said all the right things! Thank you, ladies. 😉
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And of course, I can’t say enough great things about Evie Love’s physical therapist. She always knows exactly what Evie needs to be her best. 💪🏼 We couldn’t ask for anyone better!
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Now, if only we still have the trainer for Halloween... I can’t WAIT to dress-up together like little old ladies!!! 👵🏼👵🏻
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
Soooo I won’t lie... I know it’s totally unreasonable, but I cried when our therapist sent us this picture. Like cried. It’s the first time I’ve ever seen real, tangible evidence that Evie Love has "special needs.” . Unlike a lot of DS families, we’ve been blessed to not have any significant heart issues or feeding problems or concerns about vision or really much of anything. So far, our time with Evie Love has been fairly “typical”, whatever that means. 🤷🏼‍♀️ So, no matter how irrational it may seem, to see her using a gait trainer just wasn’t something I was fully 💯% prepared for. . Don’t get me wrong, a gait trainer is awesome and if we get one full time, it will absolutely help Evie walk independently. It just took me a hot minute to process and to realize just how great (and adorbs 😍) it’ll be. . Okaaaaay fine... I didn’t ACTUALLY calm down on my own. 🤦🏼‍♀️ Huge shout out to my favorite local moms of children with DS who were the real heroes here. They called and texted and said all the right things! Thank you, ladies. 😉 . And of course, I can’t say enough great things about Evie Love’s physical therapist. She always knows exactly what Evie needs to be her best. 💪🏼 We couldn’t ask for anyone better! . Now, if only we still have the trainer for Halloween... I can’t WAIT to dress-up together like little old ladies!!! 👵🏼👵🏻 • #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou 
Aria’s staring down the saline spray and pulse-ox we’ve had to break out. She’s had a little cold the past few days {or at least we hope that’s all it is!} but she’s surprised me with pivoting all over the place and today she kept letting go, wanting to try and sit solo. This isn’t a milestone...but I’m happy it’ll make for cute pictures 🤣
Aria’s staring down the saline spray and pulse-ox we’ve had to break out. She’s had a little cold the past few days {or at least we hope that’s all it is!} but she’s surprised me with pivoting all over the place and today she kept letting go, wanting to try and sit solo. This isn’t a milestone...but I’m happy it’ll make for cute pictures 🤣
I have to say we have made HUGE progress with appointments in the last year. Today, Kendall said bye to the doctor and asked for a hug!  What?!!!! ❤❤
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This little girl really does bring smiles to everyone she meets. We've been to the pediatric OBGYN about 5 times in the past 2 months. The assistant LOVES Kendall and she said she gets excited when she sees Kendall's name on the chart. Kendall also gave her a hug goodbye too. ❤❤
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It's like I have a little celebrity sidekick. She walks out with confidence and waves and says bye to everyone. It's the cutest thing to watch. She does this every Friday at her therapy sessions too. ❤❤
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Next up, Cardiology appointment tomorrow. This appointment always makes me nervous
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#downsyndrome #321#nothingdown #downsyndromeawareness #ds #t21 #theluckyfew #nothingdownaboutit #downsyndromerocks #ctfob #dsdn #trisomy21#downsyndromelove #downrightperfect #NDSS #downrightbeautiful #savedownsyndrome #morealikethandifferent #lifeisbetterwithyou #dsawareness #alilsomethingextra #kidsofinstagram #toddlerstyle #momswithcameras #momlife
I have to say we have made HUGE progress with appointments in the last year. Today, Kendall said bye to the doctor and asked for a hug! What?!!!! ❤❤ . This little girl really does bring smiles to everyone she meets. We've been to the pediatric OBGYN about 5 times in the past 2 months. The assistant LOVES Kendall and she said she gets excited when she sees Kendall's name on the chart. Kendall also gave her a hug goodbye too. ❤❤ . It's like I have a little celebrity sidekick. She walks out with confidence and waves and says bye to everyone. It's the cutest thing to watch. She does this every Friday at her therapy sessions too. ❤❤ . Next up, Cardiology appointment tomorrow. This appointment always makes me nervous . #downsyndrome  #321 #nothingdown  #downsyndromeawareness  #ds  #t21  #theluckyfew  #nothingdownaboutit  #downsyndromerocks  #ctfob  #dsdn  #trisomy21 #downsyndromelove  #downrightperfect  #NDSS  #downrightbeautiful  #savedownsyndrome  #morealikethandifferent  #lifeisbetterwithyou  #dsawareness  #alilsomethingextra  #kidsofinstagram  #toddlerstyle  #momswithcameras  #momlife 
Buena esa @gerber por mostrarle al mundo nuestro extra de encanto y belleza 💁🏻‍♀️✨ Lucas acaba de ser escogido como bebé Gerber y es primera vez en la historia que un bebé con SD ocupa este puesto y seguro no será la última 🌟 Cada vez son más las marcas y empresas que quieren contar con nuestro extra-talento 😏😁 Quien sigue? #changingthefaceofbeauty #ctfob #gerberbaby #bebegerber #extracharm #extratalented #gamechanger #babymodel .
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#Repost @gerber with @get_repost
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Congratulations to our 2018 Gerber Spokesbaby Lucas! Welcome to the family Lucas, send him 💙love! #AnythingForBaby
Buena esa @gerber por mostrarle al mundo nuestro extra de encanto y belleza 💁🏻‍♀️✨ Lucas acaba de ser escogido como bebé Gerber y es primera vez en la historia que un bebé con SD ocupa este puesto y seguro no será la última 🌟 Cada vez son más las marcas y empresas que quieren contar con nuestro extra-talento 😏😁 Quien sigue? #changingthefaceofbeauty  #ctfob  #gerberbaby  #bebegerber  #extracharm  #extratalented  #gamechanger  #babymodel  . . #Repost  @gerber with @get_repost ・・・ Congratulations to our 2018 Gerber Spokesbaby Lucas! Welcome to the family Lucas, send him 💙love! #AnythingForBaby 
When people see a baby that they think is beautiful, they will say, “he could be the Gerber Baby”. Being the Gerber baby is a sign and stamp of beauty and perfection. Gerber revealed their 2018 winner today. I am so overwhelmed with emotion to say that they chose a baby with Down syndrome! ...here come the happy tears
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The fact that Gerber chose a child with Down syndrome is helping to change the face of beauty. It is changing perceptions of people who are "different". Different is not scary. Different is unique and beautiful.
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Thank you @gerber for seeing Lucas just the way he is- beautiful, perfect, unique, and full of joy! 💛💙
When people see a baby that they think is beautiful, they will say, “he could be the Gerber Baby”. Being the Gerber baby is a sign and stamp of beauty and perfection. Gerber revealed their 2018 winner today. I am so overwhelmed with emotion to say that they chose a baby with Down syndrome! ...here come the happy tears . The fact that Gerber chose a child with Down syndrome is helping to change the face of beauty. It is changing perceptions of people who are "different". Different is not scary. Different is unique and beautiful. . Thank you @gerber for seeing Lucas just the way he is- beautiful, perfect, unique, and full of joy! 💛💙
*this post contains a graphic image*
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The 7th through the 14th of February is CHD Awareness Week. ❤
There are more than 40 different congenital heart defects. The cause is only known to a few of them, and there are no known cures.
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Remington was born with a defect known as Tetrology of Fallot, which is a combination of a few different defects. These problems consist of a hole between the lower chambers of the heart, an obstruction from the heart to the lungs ( her pulmonary artery is extremely small requiring stints put in over time), the aorta lies over the hole in the bottom chambers, and the muscle surrounding the lower right chamber is thickened. She had a complete repair done at 2 months of age, and is doing great now! Still has a slight murmur, but she looks and feels so much better.
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#CHD #chdaware #congenitalheartdefect #heartwarrior #heartmonth❤ #birthdefect #tetrologyoffallot #Tetbaby #remmy #remingtonolivia #downsyndromeawareness #theluckyfew #upsyndrome #nothingdownaboutit #17months #CTFOB #changinthefaceofbeauty
*this post contains a graphic image* ❤ The 7th through the 14th of February is CHD Awareness Week. ❤ There are more than 40 different congenital heart defects. The cause is only known to a few of them, and there are no known cures. ❤ Remington was born with a defect known as Tetrology of Fallot, which is a combination of a few different defects. These problems consist of a hole between the lower chambers of the heart, an obstruction from the heart to the lungs ( her pulmonary artery is extremely small requiring stints put in over time), the aorta lies over the hole in the bottom chambers, and the muscle surrounding the lower right chamber is thickened. She had a complete repair done at 2 months of age, and is doing great now! Still has a slight murmur, but she looks and feels so much better. ❤ #CHD  #chdaware  #congenitalheartdefect  #heartwarrior  #heartmonth ❤ #birthdefect  #tetrologyoffallot  #Tetbaby  #remmy  #remingtonolivia  #downsyndromeawareness  #theluckyfew  #upsyndrome  #nothingdownaboutit  #17months  #CTFOB  #changinthefaceofbeauty 
This.  Is.  Everything. 
First Gerber Baby with Down syndrome!
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The doors just opened wide for @princesskaylascourt and all of her friends!
#gerber #gerberbaby #thankyougerber #todayshow #today #inclusionmatters #inclusion #downsyndrome #thisshouldbehappeningeverywhere #advertising #model #modeling #ctfob #celebratedifferences @changingthefaceofbeauty @gerber
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CHD Awareness Week 2/7-2/14
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Congenital Heart Defects are the most common birth defect, and about 25% of all babies born with a CHD require surgery in their first year of life!
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Both our son, Julian, AND our sweet Evangeline were born with heart defects, with Julian having three holes in his heart and a PDA causing increased blood flow to his lungs.
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Evie Love was born with two holes - one having already closed on its own and the other we’re still monitoring. We see a cardiologist every 6 months but so far, everything looks promising and we’re not expecting any surgeries in our future. 🙏🏼
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To learn more or to donate to CHD research, check out the Children’s Heart Foundation at Heart.org
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#CHD #CHDAwareness #CongenitalHeartDefect
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#celebrateJULIAN #Trisomy18 #T18
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
. CHD Awareness Week 2/7-2/14 ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ Congenital Heart Defects are the most common birth defect, and about 25% of all babies born with a CHD require surgery in their first year of life! ❤️ Both our son, Julian, AND our sweet Evangeline were born with heart defects, with Julian having three holes in his heart and a PDA causing increased blood flow to his lungs. ❤️ Evie Love was born with two holes - one having already closed on its own and the other we’re still monitoring. We see a cardiologist every 6 months but so far, everything looks promising and we’re not expecting any surgeries in our future. 🙏🏼 ❤️ To learn more or to donate to CHD research, check out the Children’s Heart Foundation at Heart.org ❤️ #CHD  #CHDAwareness  #CongenitalHeartDefect  • #celebrateJULIAN  #Trisomy18  #T18  • #EvieLove  #DownSyndrome  #TheLuckyFew  #NothingDownAboutIt  #T21  #CTFOB  #Trisomy21  #DownSyndromeAwareness  #ChangingTheFaceOfBeauty  #DownSyndromeRocks  #DSDN  #MoreAlikeThanDifferent  #UpSyndrome  #DownSyndromeLove  #LIFEisbetterwithyou 
Save the date for one of the most moving and heartfelt events you will ever attend. This year is going to be extra special to see @loandepot receive their impact honoree award! 
You can buy your tickets here 👇🏼
https://ucp-oc.ejoinme.org/gala
#familyambassadors #ucpoc #lifewithoutlimits #loandepot #giveback #fashionislandhotel
Our day was full of appointments (actually this whole week is 🙃) but, it started with the cardiologist.. we had his echo done and she said that his mitral valve leakage is still  severe and will for sure need to be replaced (which we already knew) She has a certain set of measurements for his heart that Dr. Law (from UAB Children’s where he had his surgery) set for Emmett’s heart and as long as his numbers look good then we do not need to intervene, however because she could not access the z-score calculator (where you input a ton of info about Emmett’s weight, heart measurements, blood pressure and a ton of other info to get those specific numbers) we do not know where he stands presently.. but she will be calling me back this week with that info! We are optimistic that since he is non-symptomatic all is well! I’ll keep you all updated on what she says this week. Thank you for continued prayers! ♥️ #EmmettSlade #downsyndromerocks #CHDdoesnot #alilsomethingextrarepsearch
Our day was full of appointments (actually this whole week is 🙃) but, it started with the cardiologist.. we had his echo done and she said that his mitral valve leakage is still severe and will for sure need to be replaced (which we already knew) She has a certain set of measurements for his heart that Dr. Law (from UAB Children’s where he had his surgery) set for Emmett’s heart and as long as his numbers look good then we do not need to intervene, however because she could not access the z-score calculator (where you input a ton of info about Emmett’s weight, heart measurements, blood pressure and a ton of other info to get those specific numbers) we do not know where he stands presently.. but she will be calling me back this week with that info! We are optimistic that since he is non-symptomatic all is well! I’ll keep you all updated on what she says this week. Thank you for continued prayers! ♥️ #EmmettSlade  #downsyndromerocks  #CHDdoesnot  #alilsomethingextrarepsearch 
"The brave may not live forever but the cautious do not live at all" Richard Branson
#alilsomethingextrarepsearch
The winners of our giveaway with @changingthefaceofbeauty are:
@kylienchann won the Gracie Earrings 
And
@mrskatiefyfe won the Unity Necklace!
Please DM us with your mailing address.
Thank you all 😘
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. . #handmadejewelry #wellscooperative #purchasewithpurpose #changetheworld #sustainablestyle #sustainablefashion #ethicalfashion #ethicalstyle #ethicallymade #greenfashion  #shopwelldogood #shopwell  #dogood #bethechange #madeintheusa #fairisfair #considerothers #bekind #showlove #togetherwerise #giveback #promotechange #changeingthefaceofbeauty #ctfob #makeadifference #makeachange #nothingdownaboutit #unitynecklace #unityandcourage
The winners of our giveaway with @changingthefaceofbeauty are: @kylienchann won the Gracie Earrings And @mrskatiefyfe won the Unity Necklace! Please DM us with your mailing address. Thank you all 😘 . . . . . #handmadejewelry  #wellscooperative  #purchasewithpurpose  #changetheworld  #sustainablestyle  #sustainablefashion  #ethicalfashion  #ethicalstyle  #ethicallymade  #greenfashion  #shopwelldogood  #shopwell  #dogood  #bethechange  #madeintheusa  #fairisfair  #considerothers  #bekind  #showlove  #togetherwerise  #giveback  #promotechange  #changeingthefaceofbeauty  #ctfob  #makeadifference  #makeachange  #nothingdownaboutit  #unitynecklace  #unityandcourage 
Wanted art. Got a masterpiece. 💙💛 (...also, learned the blue paint is non-toxic, thank the lawd! 🙌🏼)
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
How is this my job? I am in love with every bit of it. Creating beautiful pieces, supporting women, and making the world just a little bit better with a community of kind friends...well that is just the best 🙌🏽.
Here is ever lovely @highlinehomes modeling our Story Necklace. Julia has on the brand new Harper dress from the new collection by @elegantees! They have such a beautiful mission. Every clothing item is handmade in Nepal by women who have been rescued from human trafficking.
Together we rise.
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. . . #handmadejewelry #wellscooperative #purchasewithpurpose #changetheworld #sustainablestyle #sustainablefashion #ethicalfashion #ethicallymade #greenfashion  #shopwelldogood #shopwell  #dogood #bethechange #madeintheusa #fairisfair #considerothers #bekind #showlove #togetherwerise #giveback #promotechange #changeingthefaceofbeauty #ctfob #makeadifference #makeachange #storynecklace #elegantees #purchasewithapurpose #iowacity #madeiniowa
How is this my job? I am in love with every bit of it. Creating beautiful pieces, supporting women, and making the world just a little bit better with a community of kind friends...well that is just the best 🙌🏽. Here is ever lovely @highlinehomes modeling our Story Necklace. Julia has on the brand new Harper dress from the new collection by @elegantees! They have such a beautiful mission. Every clothing item is handmade in Nepal by women who have been rescued from human trafficking. Together we rise. . . . . . . #handmadejewelry  #wellscooperative  #purchasewithpurpose  #changetheworld  #sustainablestyle  #sustainablefashion  #ethicalfashion  #ethicallymade  #greenfashion  #shopwelldogood  #shopwell  #dogood  #bethechange  #madeintheusa  #fairisfair  #considerothers  #bekind  #showlove  #togetherwerise  #giveback  #promotechange  #changeingthefaceofbeauty  #ctfob  #makeadifference  #makeachange  #storynecklace  #elegantees  #purchasewithapurpose  #iowacity  #madeiniowa 
Today my baby, who isn’t really a baby anymore turns 2!!! I wrote him a letter and it’s posted on my blog. Link in BIO 👆🏼.
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#downwithdesmond #downsyndrome #upsyndrome #theluckyfew #t21 #nothingdownaboutit #morealikethandifferent #savedownsyndrome #downsyndromelove #birthdayboy #2ndbirthday #clickinmoms #momswithcameras #postthekids #letthembelittle #igkids #ctfob #dsdn #blogging #bloggermom #worththewait
I don’t know if Evangeline’s big brother, Julian, can see us, but I do know we can feel him.
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And we remember him.
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Happy Mardi Gras, Jules 😇
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#celebrateJULIAN #Trisomy18 #T18
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
Y’all... it’s challenging to find a formal/prom dress for our girls with curves 🤷🏻‍♀️ But I have found that it’s easier to shop in the women’s section than the junior section for these type of dresses 👍🏼 And unless you know someone who’s good at altering long dresses, the tea-length/cocktail dresses work best! 🙌🏼(imagine her without the leggings & flip-flops)😁 #prom #nighttoshine2018 #nighttoshine #timtebowfoundation #timtebow #changingthefaceofbeauty #ctfob #formal #formaldress #downsyndrome #downsyndromerocks #morealikethandifferent #upsideofdownsyndrome 💃🏻💝
Y’all... it’s challenging to find a formal/prom dress for our girls with curves 🤷🏻‍♀️ But I have found that it’s easier to shop in the women’s section than the junior section for these type of dresses 👍🏼 And unless you know someone who’s good at altering long dresses, the tea-length/cocktail dresses work best! 🙌🏼(imagine her without the leggings & flip-flops)😁 #prom  #nighttoshine2018  #nighttoshine  #timtebowfoundation  #timtebow  #changingthefaceofbeauty  #ctfob  #formal  #formaldress  #downsyndrome  #downsyndromerocks  #morealikethandifferent  #upsideofdownsyndrome  💃🏻💝
I heard “Mommy come take our picture while I hold Baby Aria” 📸 {yes she’s called by that full title 😆}
I heard “Mommy come take our picture while I hold Baby Aria” 📸 {yes she’s called by that full title 😆}